Dependent Older People Research Articles

Violence against dependent older people in Brazil: a multi-center study

Este estudo analisa narrativas sobre violência no âmbito do cuidado contra pessoas idosas dependentes no Brasil. A pesquisa possui abordagem qualitativa e caráter multicêntrico, realizada no ano de 2019 em oito municípios brasileiros: Porto Alegre, Rio de Janeiro, Brasília, Fortaleza, Recife, Teresina, Manaus e Araranguá. Foram entrevistas semiestruturadas com 193 pessoas: 64 pessoas idosas com dependência física e/ou cognitiva, 72 cuidadores familiares, 27 cuidadores formais, vinte profissionais de saúde e dez gestores. As informações foram analisadas por meio da “Análise de narrativa”. Abandono, negligência e maus-tratos foram evidenciados. As violências foram cometidas pelos familiares e no ambiente domiciliar. As consequências para as pessoas idosas incluem sofrimento psicológico, adoecimento físico e redução da qualidade de vida. Constatou-se a importância dos profissionais de saúde na identificação da violência, a negligência estatal na atenção e a implementação de políticas públicas específicas.

Facilitators for increasing dental attendance of people from vulnerable groups: a rapid review of evidence relevant to the UK

AbstractObjective To rapidly review facilitators of access for vulnerable groups and to evaluate their effectiveness.Methods Data sources: MEDLINE via Ovid. Publications in English from 2000. Data selection: Research involving ‘vulnerable groups' relevant to UK health systems, with a primary outcome of increasing attendance. Data extraction: One author extracted and tabulated data. These were audited by a second author. Data synthesis: A narrative synthesis was produced.Results Data from 31 studies were available for ten vulnerable groups: people with learning, physical or sensory disabilities (n = 8); people experiencing homelessness (n = 6); prisoners (n = 4); asylum-seekers and refugees (n = 3); people living in socioeconomically deprived areas (n = 3); people with severe mental health conditions (n = 2); vulnerable children (n = 2); dependent older people (n = 1); Gypsy, Roma or Traveller groups (n = 1); and people with drug dependency (n = 1). Many facilitators involved organisational reform and more integration of health, social and other services. Other facilitators included: modification of premises; team development and skill-mix use; and awareness of needs and flexible services to meet them. Few studies evaluated effectiveness.Conclusion Although facilitators for access for vulnerable groups have been proposed, there is little evidence to support or refute their effectiveness. Efforts are needed to promote access for vulnerable groups in the UK with evaluation plans embedded.

Association between Social Support and Depressive Symptoms in Informal Caregivers of Adult and Older Dependents: A Systematic Review and Meta-Analysis.

Social support is an important determinant of a carer's mental health. In recent decades, despite many studies reporting on the relationship between social support and depressive symptoms in informal caregivers of adult and older dependents, there are no systematic reviews synthesizing the available evidence. The purpose of the present study was to perform a systematic review and meta-analysis on the relationship between social support and depressive symptoms in informal caregivers of adults and older dependent people. We searched PubMed, CINAHL (EBSCO), PsycINFO (ProQuest), and Scopus, up to 15 January 2023 for studies. We applied no date or language limits to our search. A random-effects model was used to pool effect estimates. The included studies were also independently assessed for quality. Publication bias was evaluated by funnel plots, Egger's regression test, and the Trim and Fill method. Ninety-three studies were included in the review, reporting on a total of 15,431 informal caregivers. We found a moderate negative association between perceived social support and caregiver depressive symptoms (78 studies; r = -0.35, 95% CI = -0.39, -0.31; low heterogeneity and low risk of publications bias) and a small negative association between received social support and caregiver self-reported depressive symptoms (12 studies; r = -0.14, 95% CI = -0.20, -0.07; low heterogeneity and low risk of publications bias). Our results indicate that social support is a clinically relevant construct for carer well-being and an important protective factor for depressive symptoms in informal caregivers of adult and older dependents.

Family Care for Dependent Older People at Home: A Comparative Study between Brazil and Colombia

Objective: To analyze the socio-demographic profile and caregiving situation of dependent older adults and their family caregivers in Brazil and Colombia. Method: This mixed comparative and exploratory study follows the comparative study stages proposed by Bereday, namely: Description, interpretation, juxtaposition, and comparison. A semi-structured interview was used. National and international ethical principles were followed in the study, with the ethics committee’s approval in each country. Results: A total of 250 participants were interviewed: 52 dependent older adults in Brazil and 56 in Colombia, along with 70 family caregivers in Brazil and 72 in Colombia. A total of 68.5 % of the elderly and 83.8 % of the caregivers were women. Twelve categories were created based on the participants’ statements, six in the dependent older people and six in the caregivers. Conclusion: Women and daughters were the primary family caregivers, and the Catholic religion was prevalent in both countries. Regarding the caregiving situation in both countries, it stands out that dependent older people and family caregivers feel the presence of a superior being assisting them in overcoming the challenges of caregiving activities.

Reducing the Physical Burden of Older Persons' Household Caregivers: The Effect of Household Handrail Provision.

The household handrail is necessary for dependent older people to perform their daily living activities, improve caregiving competency, and reduce caregiver burden. This study aimed to explore physical burden levels and examine their association with handrail provision among caregivers in older people’s households in Phuttamonthon District, Thailand, in 2017. This study used the physical dimension of the Caregiver Burden Inventory to quantify the levels of physical burden among 254 caregivers in households with a dependent older person. It classified the studied households into three categories: no handrail, one handrail, and more than one handrail. The analysis employed the ordinal logistic model approach. The findings showed that the mean physical burden score was 5 ± 3.85, indicating a high burden. After adjusting for potential factors, the caregivers in older people’s households with one handrail were less likely to experience a high physical burden than those without a handrail (OR = 0.30, 95% CI = 0.14–0.67). Nonetheless, the analysis found no significant differences in physical burden between caregivers of households with more than one handrail and those of households with no handrails. Having handrails in housing might enhance older people’s ability to adjust to disability and illness, ultimately reducing the physical care burden of caregivers. However, having the appropriate number of handrails in older people’s households should be considered.

The effects of an innovative integrated care intervention in Brazil on local health service use by dependent older people

BackgroundSince 2011, the Brazilian city of Belo Horizonte has been operating an innovative scheme to support care-dependent older people in disadvantaged communities: Programa Maior Cuidado (PMC – Older Person’s Care Program). This paper examines two potential associations between inclusion in PMC on types of outpatient health service utilization by dependent older people. The first is that being in PMC is associated with a higher frequency of outpatient visits for physical rehabilitation. The second is that being in PMC is associated with a higher frequency of planned versus unplanned outpatient visits.MethodsWe apply a quasi-experimental design to a unique set of health administrative data recording visits to outpatient health services. We focus on comparisons of the universe of visits, transformed to ratios of planned/unplanned visits and rehabilitation/other reasons for visiting the outpatient service. First, we preprocess our sample through different matching techniques such as ‘coarsened exact matching’ (CEM), ‘nearest neighbor’ based on logit scores (NN), ‘optimal pair’ (OP) and ‘optimal full’ (OF) methods. Second, we estimate marginal effects of being in PMC on our outcomes of interest. We use Poisson regressions controlling for individual and community factors and use robust standard errors. Our results are presented as the comparative incidence ratio of PMC on rehabilitation and planned visits.ResultsWe find significant positive incidence rates for belonging to PMC for both outcomes of interest under all matching specifications. Poisson models using CEM shows a higher incidence rate for planned visits in comparison to unplanned visits, 1.3 (95% CI 1.1–1.4), by PMC patients compared to the non-PMC controls, and a higher proportion of visits for rehabilitation, 3.4 (95% CI 1.7–6.8). Similar positive results are found across other matching methods and models.ConclusionsOur analysis reveals significant positive associations between older people included in PMC and a matched set of controls for a greater ratio of making outpatient visits that were planned, rather than unplanned. We find similar associations for the proportion of visits made for rehabilitation, as opposed to other reasons. These findings indicate that PMC influences some elements of outpatient health service utilization by dependent older people.

The experiences of older individuals providing care to older dependents: A phenomenological study in Spain.

ObjectiveNon-professional care provided in domestic settings by a family member or someone from the close environment and without a connection to a professional care service, is increasingly assumed by older people, mainly the spouses of those requiring care. The aim of this study was to describe the experience of older people providing care at home to older dependents.MethodsA qualitative study was carried out to describe and explore the experience of older people, caregivers of dependent older people in the home.ResultsFour themes emerged as a result of the analysis: interpersonal relationships established in the caregivers’ immediate environment; the need and request for public and private resources; consequences of providing care during old age; and adaptation to the circumstance of being a caregiver during old age. Older people who provide home-based care, experience their situation as stressful, feel that it limits their daily life, deprives them of their freedom, and affects their interpersonal relationships and social activities.DiscussionOlder caregivers learn quickly and can manage the skills issues. The volume of work is their challenge. Interpersonal relationships are altered depending on the length of time spent together and the demand for care. Public services and benefits are not adapted to the demands of caregivers or dependent persons.

Sustainable Care and Factors Associated with Quality of Life among Older Beneficiaries of Social Services

Population aging has led to an increased recognition of the problems encountered by older persons. As a consequence, the most recent years have been marked by a series of changes with regard to the organization and provision of social services for dependent older people. The aim of this article is to identify factors associated with the quality of life in old age, using a logistic regression applied to the data collected following a field survey among the beneficiaries of social services. The analysis revealed that men are more likely to appreciate that life does not make sense, compared to dependent elderly women. Age is also a significant factor that influences the quality of life: the older the people are, the more they tend to think in a positive manner about their life. Health, social participation and food are also important factors that influence the perception regarding the quality of life.

Admission to long-stay residential care and mortality among people with and without dementia living at home but on the boundary of residential care: a competing risks survival analysis

Background Health policy in many countries is underpinned by a commitment to support dependent older people to remain in their own home for as long as possible and practicable. This study explores factors affecting both admission to long-stay residential care (LSRC) and mortality among people with and without dementia who are currently living at home with intensive formal care support. Methods This is a cross-sectional study based on administrative data collected on 429 dependent older people in Ireland, 269 of whom were people with dementia. A cause-specific hazard model was used to investigate the hazard of admission to LSRC, while accounting for mortality as a competing risk and vice versa. Results Admission to LSRC was higher for people with dementia relative to people without and for those receiving lower amounts of informal care. The hazard of mortality was significantly higher for older people aged 85+, whereas it was lower for individuals with a medium level of dependency relative to those with high levels of dependency. The hazard of mortality was also influenced by the amount of informal care provision. Conclusion People with dementia are more likely to be admitted to LSRC than people without. Care for people with dementia needs to be more specialised and personal, and intensity of provision should not be equated to the number of care hours on offer. Informal care provision may help to prevent admission to LSRC. Advanced age, physical dependency and informal care provision affect mortality, raising interesting issues in relation to resource allocation.

Caregiver Burden among Informal Caregivers of Rural Older Persons in Nepal

Background: Today, people are living longer than ever before due to advances in education, technology, medicine, food distribution, and public health. Longevity has also resulted in a caregiving burden in the family living together. The purpose of this paper is to analyze the situation of the elderly caregiving burden in Nepal. Methods: This is a cross-sectional study carried out in a rural area of Nepal. The total sample size for this study was 150 older persons 65 years and above. The caregiving burden was measured through the widely used scale Zarit Burden Interview (ZBI). Results: Mean age of the care recipients (elderly) was 78.46 (±7.78) years and the mean age of the care provider was 46.6 (±46) years. The mean score of the caregiving burden was 12.89 (±5.7). The majority of the caregiver has reported little or no burden (88%), 10% mild to the moderate burden, 1.33% moderate to severe burden and only one respondent (0.67%) has reported severe burden. Marital status, ethnicity, religion, living arrangement, and functional limitations on activities on daily living were significant variables related to caregiving burden. Conclusion: This study shows the caregiving burden is quite low among Nepalese care providers living in a rural area. Given the growing number of elderly people, there is an urgent need to care for the wellbeing of dependent older people and their families.

Integrating health and social care in Brazil

Abstract Integrating health and social care is now a high priority for public health policy in high-income countries. It has received much less attention in low and middle-income country (LMIC) settings. There is particular value in assessing the potential to integrate care services for older adults, given the speed of population ageing in LMICs. The presentation provides findings of process and impact evaluations of novel local government initiatives to integrate care for older people in Brazil (drawing on a study co-funded by the UK MRC and CONFAP Brazil). Programa Maior Cuidado (PMC) was established in the Brazilian city of Belo Horizonte in 2011. It is jointly managed by the departments of health and of social assistance and involves close community-level collaboration between health posts and neighbourhood social service centres. A key element of PMC is the provision of paid trained lay carers to support family care for dependent older people in socially vulnerable families. We will present findings on the implementation process and operation of PMC, as well as its effects on the following outcomes of interest: reduced unnecessary hospitalisations, enhanced health status for older people and reduced care burden for family carers. Quasi-experimental analysis using spatial-based Propensity Score Matching shows promising results in terms of increasing planned attentions as well as access to rehabilitation services, which confirms the ability of the Program to improve interface with health services avoiding unplanned unnecessary attentions We will examine the implementation of similar interventions in other Brazilian cities, including Fortaleza and Contagem, and will study the role of national and international processes in dissemination, knowledge sharing and agenda-setting. Key messages The presentation provides findings of process and impact evaluations of novel local government initiatives to integrate care for older people in Brazil. Programme under evaluation lead to interesting outcomes of interest: reduced unnecessary hospitalisations, enhanced health status for older people and reduced care burden for family carers.

High Rate of Oral Candida Detection in Dependent Japanese Older People.

The aim of this study was to clarify the association between oral Candida detection and the dependency status of older people. This study included 31 older people aged ≥70 years who had a certified need for long-term care or support and received care in a local day care center; it also included 27 independent older patients aged ≥70 years who visited Hiroshima University Hospital. Oral Candida was detected by a polymerase chain reaction using swab samples from the tongue surface. Oral moisture was significantly reduced in dependent older people, compared with independent older people (p = 0.003). There was a weak negative relationship between numbers of bacteria and levels of oral moisture (Spearman’s rank correlation coefficient; R = −0.29, p = 0.01). Dependent older people exhibited a significantly higher rate of Candida albicans detection (35.5%) compared with independent older people (11.1%). Dependent older people also exhibited a higher rate of concurrent detection of both C. albicans and Candida glabrata (32.3%) compared with independent older people (11.1%), but this difference was not statistically significant. Thus, dependent older people may be more susceptible to oral C. albicans infection, compared with independent older people. Good oral hygiene is necessary to prevent oral Candida infection in dependent older people.

EXPLORING THE HEALTH BURDEN AND SOCIOECONOMIC COSTS OF DEPENDENT ELDERLY CARE IN NSUKKA, NIGERIA

It is projected that by 2030, 6 percent of Nigeria’s present population of 180 million will be 60 years and above. However, the extent to which the traditional systems of family support and security can manage the care of the increasing number of older people in the country is not clear as limited studies are available in the country regarding the health burden and Socioeconomic costs of caring for dependent older people. This study is therefore aimed at assessing the health burden and costs of caring for dependent older people in Nsukka, Nigeria. This cross sectional survey involved 1030 randomly selected elderly persons in Nsukka, Nigeria (Mage=70.15, SD=12.23). Structured questionnaire and Focus Group Discussion Guide (FGD) provided the data for the study. The qualitative data were analyzed with descriptive statistics, while regression analysis formed the basis for predicting effects of the variables in the study. The qualitative data from the FGD were analyzed thematically. The findings show that the Nigeria government was largely uninvolved in the care and support for older dependent people; leaving families to negotiate a ‘journey without maps’. Families carried the health burden of care for the elderly with attendant socioeconomic costs. The traditional role of female relatives as caregivers was beginning to give way to paid caregivers. An innovative policy frame work targeted at the needs of older persons in health care, social protection and other forms of intergenerational support is required to supplement inputs from families of the aged in Nigeria.

Previous in-home physiotherapy prevents institutionalization after short-term hospitalization in community-dwelling older dependent people.

Short-term hospitalization of community-dwelling older dependent people in a geriatric acute care unit is sometimes needed to treat an acute health problem. Serious loss of independence can lead to difficulties in maintaining home care and is followed, at hospital discharge, to institutionalization in a long-term care home. We investigated the variables, particularly those related to the paramedical staff at home, predicting a return home or an institutionalization at hospital discharge. Retrospective observational study of 398 sixty and more year-old patients, living at home, having a natural caregiver, and hospitalized in an acute care unit of the State Geriatric Center. 289 (72.6%) patients returned home, 101 (25.3%) were admitted in a long-term care home, and 8 (2%) died. Independent predictors of institutionalization were length of stay in the acute care unit [adjusted OR (AOR) = 1.102, P < 0.001], disruptive behavioral and psychological symptoms of dementia (BPSD, AOR = 1.827, P = 0.039), caregiver burden (AOR = 1.976, P = 0.038), moderately severe-to-severe cognitive impairment (AOR = 2.121, P = 0.011), and living alone with a close or a remote caregiver (AOR = 2.620 and 4.446, P = 0.003 and 0.001, respectively). In-home physiotherapy was independently associated (AOR = 0.393, P = 0.002) with a lower risk of institutionalization. In-home physiotherapy should be recommended to community-dwelling older dependent people, especially if they are living alone and/or if they present disruptive BPSD and/or moderately severe-to-severe cognitive impairment.

Care inequality: care received according to gender, marital status, and socioeconomic status among Korean older adults with disability

BackgroundWe sought to identify the types of care and care resources available to older Korean adults with disabilities, and document the inequality in care received according to gender, marital status, and socioeconomic status.MethodData were derived from the sixth wave of the Korean Longitudinal Study of Ageing. The sample consisted of 946 men and women who were disabled in ADL and IADL. Generalized linear models and analyses of covariance were used to evaluate group differences in types of care received and care resources. The outcome variables were main primary caregivers, the total number of available caregivers, hours of care received per day, number of days of care, and fees paid to caregivers.ResultsIn total, 41.7% of men with ADL/IADL disabilities reported that they did not receive formal or informal care from any source, compared with 30.7% of women. Almost half (49.2%) of men without a spouse were in a state of care deficit (vs. 30.8% in women without a spouse, P < 0.001). Among care recipients, men reported receiving higher average days of care per month than women (25.6 vs. 21.2 days, P < 0.01). Both men and women received care primarily from their spouse, but adult children were more frequently care providers for older women than men. A combination of care from spouse and paid caregiver was more frequent among women. Dependent older people with high household incomes had a higher likelihood of receiving care There was the clear gradient in rate of paid formal caregivers use by household income (higher income = higher use) among women but not men.ConclusionsCare types and resources among disabled older adults appeared to be different by gender, marital status and socioeconomic status under the cultural phenomenon and contextual circumstances in the aging Korean population.

Strategies to prevent oral disease in dependent older people

Strategies to prevent oral disease in dependent older people

Predicting admission to long-term care and mortality among community-based, dependent older people in Ireland.

ObjectiveTo identify factors that predict admission to long‐term care (LTC) and mortality among community‐based, dependent older people in Ireland, who were in receipt of formal home support.MethodsAn audit was conducted of all community‐dwelling older adults receiving government funded home support during 2017 in the Dublin North Central, Health Service Executive administrative area. Data were extracted from the Common Summary Assessment Report (CSAR), a mandatory form used in the provision of home support. Multiple logistic regression analysis was used to examine the factors associated with admission to LTC and mortality, with the results presented as odds ratios (OR) and 95% confidence intervals.ResultsThe audit comprised 1597 community‐dwelling older adults with a mean age of 83.3 (SD: 7.2) years. The prevalence of transition to LTC and mortality was 8% and 9%, respectively, during the 12‐month period. Factors significantly associated with admission to LTC were “cognitive dysfunction” [OR 2.10 (1.41‐3.14), P < .001] and the intensity of home support [OR 1.05 (1.01‐1.06), P < .003], as measured by weekly formal care hours. Physical dependency and advanced age (aged 95 years +) were significantly associated with mortality in this population (P < .001).Conclusion“Cognitive dysfunction” and intensity of formal home support were associated with transition to LTC, while physical dependency and advanced age were associated with mortality. Investment in personalised, cognitive‐specific, services and supports are necessary to keep people with dementia and related cognitive impairments living at home for longer.

Barriers and facilitators for provision of oral health care in dependent older people: a systematic review.

Provision of oral health care (OHC), including oral hygiene (OH) or oral/dental treatment, to dependent older people (DOP) is frequently insufficient. We aimed to assess barriers and facilitators perceived by different healthcare professionals towards providing OHC to DOP. A systematic review was performed. Studies reporting on knowledge, attitudes, and beliefs acting as barriers and facilitators for provision of OHC were included. One database (PubMed) was searched and data extraction independently performed by two reviewers. Thematic analysis was used and identified themes translated to the domains and constructs of the theoretical domains framework (TDF) and aligned with the domains of the behavior change wheel (BCW). Analyses were stratified for the two target behaviors (providing oral hygiene and providing oral/dental treatment) and according to different stakeholders' perspective. For quantitative analysis, frequency effect sizes (FES) were calculated. In total, 1621 articles were identified and 41 (32 quantitative, 7 qualitative, 2 mixed method) studies included. Within these 41 studies, there were 7333 participants (4367 formal caregivers, 67 informal caregivers, 1100 managers of care, 1322 dentists, 340 DOP). Main barriers for providing OH were "lack of knowledge" (FES 65%, COM-B domain: capability, TDF domain: knowledge) and "patients refusing care" (62%, opportunity, environmental context and resources). Main facilitators were "OHC training/education" (41%, capability, skills) and "presence of a dental professional" (21%, opportunity, environmental context and resources). Main barriers for provision of dental treatment were "lack of suitable facilities for treatment/transportation of patients" (76%) and "patients refusing care" (53%) (both: opportunity, environmental context and resources). Main facilitators were "regular visiting dentist" (35%) and "routine assessment/increased awareness by staff" (35%) (both: opportunity, environmental context and resources). A number of barriers and facilitators for providing different aspects of OHC were identified for different stakeholders. Our findings help provide the evidence to develop implementation strategies for providing high-quality systematic OHC to DOP. This review was registered at Prospero (CRD42017056078).

Occurrence of oral health problems and planned measures in dependent older people in nursing care.

To describe oral health problems and planned measures in older people receiving nursing care. Poor oral health conditions have a negative impact on the quality of life of older people. Therefore, oral care is an important task in daily nursing activities. Data were obtained from the web-based Swedish national quality register Senior Alert. Data regarding oral health status and planned measures in individuals ≥65years from one county in Sweden between July 2014-June 2015 were included. The Revised Oral Assessment Guide-the Jönköping (ROAG-J) was used routinely by nursing staff in nursing care facilities to measure oral health status. Oral assessments were made on 2,567 individuals (65.7% women). The most common oral health problem was related to "Teeth" (43.0%), which indicates deficient oral hygiene and/or broken teeth. At least one measure was planned in all the participants. The most common planned measures were "Moistening of the mouth" (16.6%), followed by "Brushing - assistance or complete help" (13.5%). Oral health problems were common, and planned measures did not seem to be sufficient to address the identified problems. The results indicate that greater priority should be given to the oral health care of older people in nursing care. The study highlights the importance of not only identifying oral health problems but also having knowledge and strategies for oral health care. Collaboration is needed to support nurses in caring for the oral health care of older people in nursing homes.

Health and economic correlates of autonomy among older people in Peru, Mexico and China: The 10/66 INDEP study

Background: While autonomy is highlighted as central to older people’s wellbeing, there has been little empirical research to inform a measurement approach, support construct validity, or establish its determinants. We aimed to study the health and economic correlates of self-perceived autonomy among community-dwelling older people in Peru, Mexico and China, using a hypothesis-driven approach. Methods: Cross-sectional household surveys in urban and rural catchment areas in each country, comprising household, informant, and older person interviews, to elicit household income and older residents’ autonomy, unmet needs, and quality of life. Households, all with older residents, were selected from previous waves of the 10/66 Dementia Research Group’s comprehensive surveys of ageing and health. Results: Among 937 older respondents in 754 households, diminished autonomy was associated with older age, marital status, lower education, and lower household income. Physical, cognitive and mental morbidities, functional impairment and dependence were strongly and independently associated with diminished autonomy, explaining the effect of age. Controlling for these variables, an older person’s current total income was inversely associated with diminished autonomy (Count Ratio per fifth of total income 0.86, 95% CI 0.81-0.91). Autonomy was positively correlated with wellbeing and life satisfaction, supporting construct validity. Counter to hypotheses, less autonomy was associated with fewer unmet needs in rural sites. Conclusions: The effects of income insecurity, disability and dependence upon autonomy should be tested prospectively to confirm causal direction. Social pensions, and measures to support the rights of frail and dependent older people may be effective policy instruments for promoting autonomy. While the negative impact of diminished autonomy upon older people’s welfare is supported, the association in rural sites between more autonomy and more unmet needs should be further investigated; efforts to promote autonomy may need careful cultural nuancing, to support rather than subvert traditional family care systems.