This study aimed to investigate the effects of the social stigma of epilepsy on self-esteem and social support. It was hypothesized that people with epilepsy have low self-esteem and impaired social support networks. Twenty-eight participants responded to the Rosenberg Self-Esteem Scale (RSES), the Norbeck Social Support Questionnaire, and a Knowledge about Epilepsy Questionnaire. Although the first hypothesis was not supported, the variance of scores on the RSES was significantly greater than normal, indicating a disproportionate number of high and low scorers. Low scores were attributed to stigma and high scores to pride in overcoming it. Similarly, hypothesis 2 was not supported, but social support networks were restricted to family, neighbors, and health-care providers, who compensated for any lack in friends and work associates. Multiple regression analysis showed that self-esteem correlated positively with knowledge about epilepsy and negatively with seizure rate and anticonvulsant dosage, in that order. No relationship was found between self-esteem and age of onset, education, employment, or socioeconomic or marital status. It was concluded that education about epilepsy is the most effective enhancer of self-esteem in people with epilepsy and that their social support networks may be restricted to family, neighbors, and health-care providers, who compensate for a lack in friends and work associates. Further research on the relationship between anticonvulsant dosage, self-esteem, and related psychological factors is planned.
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