Neurological Nursing Research Articles

Utility and benefits of Camp for Children with Epilepsy: a retrospective

Objective: The aim of this study was to evaluate the benefits of educational and recreational camping programs for children with epilepsy.Method: A retrospective review of data collected from all children attending annual epilepsy camps organized by the Croatian Epilepsy Association and the Zagreb City Office for Health during 8 years was performed. Children included were between 6 and 18 years of age. The staff of the camp includes child neurologists, a psychologist, neurology nurses and trained volunteers. Educationalactivities are designed to improve children’s knowledge of epilepsy, importance of taking medication, academic choices, suggested employment, and regulations regarding driving laws. These issues were discussed in groups or in single sessions, depending on thecase. Other activities included supervised swimming, team sports, fun activities and games, arts and crafts and entertainment such as disco or movie night.Each of the participants filled out three questionnaires 1. General data questionnaire and pre-camp knowledge test; 2. Camp satisfaction questionnaire and post-camp knowledge test; 3. Questionnaire on adaptation to epilepsy in young people.Results: The analyses of surveys and tests showed that only 75% of children in camp knew that they had epilepsy. In 10% of children, friends and distant family members did not know about epilepsy. Comparing the knowledge test before and after the camp, theaverage percentage of correctly solved tasks on the first test is 65%, and on the second 87%. The answers in the questionnaire on adaptation to life with epilepsy are indicators of strong stigma in children with epilepsy.Conclusions: The main accomplishment of the camp was for children to gain confidence that they can reach their full potential in life and to feel equal to their peers in every aspect of life.

Psycho-emotional care by neurological nurses. Keys to deciphering the enigma of emotional well-being

Psycho-emotional care by neurological nurses. Keys to deciphering the enigma of emotional well-being

Reducing Discharge Medication Reconciliation Errors at a Pediatric Neurology Inpatient Unit.

Medication reconciliation errors are a common problem in health care, particularly during transitions of care. Discharge medication reconciliation (DMR) errors in a pediatric setting can range from 26% to 42.2%. We conducted a quality improvement project to decrease DMR error rate at Dayton Children's Hospital in Dayton, Ohio. We conducted 2 interventions, each with 3 Plan-Do-Study-Act cycles from September 2021 through February 2023. The first intervention focused on using current specialty neurology nurses as scribes and creating a template note to include the plan of care and review of DMR before discharge. Our second intervention consisted of standardizing the seizure rescue medication order by creating an order panel within our electronic medical record system for all the rescue medications presently available. Medication errors were documented by the specialty neurology nurse during a phone conversation on the next business day post discharge. DMR error rates were calculated for each week using a control chart. Medication errors and patient harm were classified according to the National Coordinating Council for Medication Error Reporting and Prevention Index. One hundred six errors were noted. Of these, 98 (92%) occurred in patients with seizure and 64 (60%) were related to prescription of seizure rescue medication specifically. The baseline error rate was calculated at 15.7% or 7 errors per month (January 2021 through June 2021). The average error rate dropped from 15.7% to 5.3% (2 errors per month) after initiation of our first intervention (September 2021). Twelve weeks after initiation of the second intervention, a 2.9% (1 error per month) was noted. Afterward, there was a ten-week period of 0% errors. Sustainable reduction of DMR errors in pediatric patients with epilepsy was achieved by using specialty neurology nurses to scribe the care plan and creating order panels to facilitate accuracy of discharge medication orders without additional cost to the hospital.

Utility of camp for children with epilepsy: a retrospective

Objective: The aim of this study was to evaluate the benefits of educational and recreational camping programs for children with epilepsy. Method: A retrospective review of data collected from all children attending annual epilepsy camps organized by the Croatian Epilepsy Association and the Zagreb City Office for Health during 8 years was performed. Children included were between 6 and 18 years of age. The staff of the camp includes child neurologists, a psychologist, neurology nurses and trained volunteers. Educational activities are designed to improve children’s knowledge of epilepsy, importance of taking medication, academic choices, suggested employment, and regulations regarding driving laws. These issues were discussed in groups or in single sessions, depending on the case. Other activities included supervised swimming, team sports, fun activities and games, arts and crafts and entertainment such as disco or movie night. Each of the participants filled out three questionnaires 1. General data questionnaire and pre-camp knowledge test; 2. Camp satisfaction questionnaire and post-camp knowledge test; 3. Questionnaire on adaptation to epilepsy in young people. Results: The analyses of surveys and tests showed that only 75% of children in camp knew that they had epilepsy. In 10% of children, friends and distant family members did not know about epilepsy. Comparing the knowledge test before and after the camp, the average percentage of correctly solved tasks on the first test is 65%, and on the second 87%. The answers in the questionnaire on adaptation to life with epilepsy are indicators of strong stigma in children with epilepsy. Conclusions: The main accomplishment of the camp was for children to gain confidence that they can reach their full potential in life and to feel equal to their peers in every aspect of life.

A multicenter cross-sectional survey of the knowledge, attitude, and behaviour of nurses regarding dysphagia after anterior cervical spine surgery: a prospective multicentre study

BackgroundThe incidence of dysphagia after anterior cervical spine surgery is high, which directly affects the quality of life of patients after surgery. The knowledge, attitude, and behavior of nurses can affect the identification and management of patients after anterior cervical spine surgery. Therefore, we need a survey to understand the current status of nurses’ knowledge, attitude, and behavior towards dysphagia after anterior cervical spine surgery.ObjectiveTo investigate the knowledge, attitude, and behaviour of orthopaedic nurses towards patients with dysphagia after anterior cervical spine surgery and provide recommendations for management and intervention.MethodAn online cross-sectional survey was conducted between March and June 2023, which among 894 orthopaedic nurses from 36 tertiary hospitals in Chongqing using a questionnaire. The questionnaire included general information and knowledge, attitudes, and behaviours related to the management of dysphagia after anterior cervical surgery.ResultsThe orthopaedic nurses’ mean score for dysphagia-related knowledge was 16.1 ± 3.640 (out of a total score of 30). The orthopaedic nurses’ mean score for dysphagia-related attitude was 32.5 ± 4.623 (out of a total score of 40). The orthopaedic nurses’ mean score for dysphagia-related behaviour was 43.6 ± 11.513 (out of a total score of 60). The results of statistical analysis showed that the dysphagia after anterior cervical spine surgery -related knowledge scores differed significantly among the nurses according to, education level, and training (P < 0.05). Correlation analysis showed that there was a positive correlation between the knowledge, attitude, and behaviour scores of neurological nurses and swallowing disorders after anterior cervical surgery (P < 0.05).ConclusionTargeted knowledge and skills training should be carried out to improve the rules and regulations for dysphagia after anterior cervical spine surgery. Multidisciplinary team cooperation is needed, and dietary service processes and management standards should be improved to improve the management ability of orthopaedic nurses for dysphagia after anterior cervical spine surgery.

Development, Reliability and Validity of the Medication Literacy Scale for Parents of Children with Epilepsy.

This study aimed to develop a medication literacy scale for parents of children with epilepsy (MLSPCE) and to test the reliability and validity of the scale. The pilot scale was formulated based on the concept of medication literacy, the knowledge-attitude-practice model, and relevant literature reviews. It was formed through two rounds of expert consultations using the Delphi method. A survey of 657 parents of children with epilepsy, who were admitted to the neurology department or examined in the neuro-electrophysiological outpatient department of Guangzhou Women and Children Medical Center, using the pilot scale was conducted from October 2021 to January 2022 to test the reliability and validity of the scale questionnaire. The content validity of the scale questionnaire was assessed by consulting 20 neurology nursing, neurology clinician, and nursing education experts. Numbers, percentages, t-test, correlation analysis, Cronbach's alpha reliability coefficient and factor analysis were used for data analysis. The MLSPCE included 34 items in four dimensions. Ten factors were drawn from the explorative factor analysis, with a cumulative variance contribution rate of 62.32%. The content validity index of each item on the 34-item scale was between 0.81 and 1.0, and the scale-content validity index/ average was 0.97. The correlation coefficient between each item and its dimension was between 0.399 and 0.760, the correlation coefficients between dimensions were between 0.150 and 0.382, and the correlation coefficients between each dimension and the total scale were between 0.390 and 0.845. Differences for all comparisons were statistically significant (P < 0.05). Cronbach's alpha coefficient for the total scale was 0.864, and the split-half reliability of the total scale was 0.923. All the statistical procedures performed in the validity and reliability stages of the study showed that MLSPCE is a valid and reliable tool for measuring medication literacy among Chinese parents of children with epilepsy.

Consensus recommendations on holistic care in hereditary ATTR amyloidosis: an international Delphi survey of patient advocates and multidisciplinary healthcare professionals

BackgroundHereditary transthyretin-mediated amyloidosis is a rare, progressive and potentially life-limiting multisystem disease, affecting every aspect of a patient’s life.ObjectivesThis online international Delphi survey aimed to evolve clinical−patient-led practical guidance, to...

Improving Neurology Inpatient Fall Rate: Effect of a Collaborative Interdisciplinary Quality Improvement Initiative

ObjectiveTo reduce unwitnessed inpatient falls on the neurology services floor at an academic medical center by 20% over 15 months. Patients and MethodsA 9-item preintervention survey was administered to neurology nurses, resident physicians, and support staff. Based on survey data, interventions targeting fall prevention were implemented. Providers were educated during monthly in-person training sessions regarding the use of patient bed/chair alarms. Safety checklists were posted inside each patient’s room reminding staff to ensure that bed/chair alarms were on, call lights and personal items were within reach, and patients’ restroom needs were addressed. Preimplementation (January 1, 2020, to March 31, 2021) and postimplementation (April 1, 2021, to June 31, 2022) rates of falls in the neurology inpatient unit were recorded. Adult patients hospitalized in 4 other medical inpatient units not receiving the intervention served as a control group. ResultsRates of falls, unwitnessed falls, and falls with injury all decreased after intervention in the neurology unit, with rates of unwitnessed falls decreasing by 44% (2.74 unwitnessed falls per 1000 patient-days before intervention to 1.53 unwitnessed falls per 1000 patient-days after intervention; P=.04). Preintervention survey data revealed a need for education and reminders on inpatient fall prevention best practices given a lack of knowledge on how to operate fall prevention devices, driving the implemented intervention. All staff reported significant improvement in operating patient bed/chair alarms after intervention (P<.001). ConclusionA collaborative, multidisciplinary approach focusing on provider fall prevention education and staff checklists is a potential technique to reduce neurology inpatient fall rates.

Status of knowledge, attitude and practice of poststroke dysphagia in neurological nurses in China: A cross-sectional study.

To explore the status and related factors of knowledge, attitude, and practice (KAP) of poststroke dysphagia among neurological nurses in China. Neurological nurses from 40 tertiary hospitals in Southwest China were invited to complete a survey on the knowledge, attitude, and practice of the nursing of poststroke dysphagia. We used a questionnaire to collect the participants' information including the basic characteristics and the KAP Questionnaire on poststroke dysphagia in the neurological ward. A sample of 707 participants completed the survey. The knowledge, attitude, and practice scores for the nursing of poststroke dysphagia were 12.00±4.09, 71.99±11.00, 52.22±9.08, respectively. The total score of knowledge towards the nursing of poststroke dysphagia was significantly different among nurses with different ages, working time of nursing, working time of nursing in neurology, the highest level of education, professional title, position, the method of training, the number of dysphagia-related nursing trainings, the total length of dysphagia nursing training, and the nursing basis of patients with dysphagia. The total score of attitudes towards the nursing of poststroke dysphagia was significantly different among nurses with the way they were trained, and the nursing basis for patients with dysphagia. The total score of practice towards poststroke dysphagia was significantly different among nurses with the number of dysphagia-related nursing trainings, the total length of dysphagia nursing training, the training method, and the basis of nursing patients with dysphagia. Neurological nurses' knowledge score in poststroke dysphagia is relatively low, and the knowledge level needs improvement. The attitude and practice score of neurological nurses in dysphagia after stroke was much better than the knowledge score. Managers and nursing researchers should develop and offer effective training for neurological nurses to improve their knowledge, attitude and practice towards poststroke dysphagia, and then improve patients' health outcomes.

Post-COVID-19 Myoclonus-Ataxia Syndrome-Is there Really a Need for Intravenous Immunoglobulin Treatment in all Cases?

Movement Disorders Clinical PracticeVolume 10, Issue 4 p. 724-725 LETTERS: PUBLISHED ARTICLES Post-COVID-19 Myoclonus-Ataxia Syndrome—Is there Really a Need for Intravenous Immunoglobulin Treatment in all Cases? Filip Przytuła MD, Corresponding Author Filip Przytuła MD [email protected] Department of Neurology and Stroke, St. Adalbert Hospital, Gdańsk, Poland Correspondence to: Professor Jarosław Sławek and MD Filip Przytuła, Department of Neurology and Stroke, St. Adalbert Hospital, Al. Jana Pawła II 50, 80-462 Gdańsk, Poland; E-mail: [email protected] and [email protected]Search for more papers by this authorJarosław Sławek MD, PhD, Corresponding Author Jarosław Sławek MD, PhD [email protected] Department of Neurology and Stroke, St. Adalbert Hospital, Gdańsk, Poland Department of Psychiatric and Neurological Nursing, Division of Health Sciences, Medical University of Gdańsk, Gdańsk, Poland Correspondence to: Professor Jarosław Sławek and MD Filip Przytuła, Department of Neurology and Stroke, St. Adalbert Hospital, Al. Jana Pawła II 50, 80-462 Gdańsk, Poland; E-mail: [email protected] and [email protected]Search for more papers by this author Filip Przytuła MD, Corresponding Author Filip Przytuła MD [email protected] Department of Neurology and Stroke, St. Adalbert Hospital, Gdańsk, Poland Correspondence to: Professor Jarosław Sławek and MD Filip Przytuła, Department of Neurology and Stroke, St. Adalbert Hospital, Al. Jana Pawła II 50, 80-462 Gdańsk, Poland; E-mail: [email protected] and [email protected]Search for more papers by this authorJarosław Sławek MD, PhD, Corresponding Author Jarosław Sławek MD, PhD [email protected] Department of Neurology and Stroke, St. Adalbert Hospital, Gdańsk, Poland Department of Psychiatric and Neurological Nursing, Division of Health Sciences, Medical University of Gdańsk, Gdańsk, Poland Correspondence to: Professor Jarosław Sławek and MD Filip Przytuła, Department of Neurology and Stroke, St. Adalbert Hospital, Al. Jana Pawła II 50, 80-462 Gdańsk, Poland; E-mail: [email protected] and [email protected]Search for more papers by this author First published: 10 February 2023 https://doi.org/10.1002/mdc3.13695Citations: 1Read the full textAboutPDF ToolsRequest permissionExport citationAdd to favoritesTrack citation ShareShare Give accessShare full text accessShare full-text accessPlease review our Terms and Conditions of Use and check box below to share full-text version of article.I have read and accept the Wiley Online Library Terms and Conditions of UseShareable LinkUse the link below to share a full-text version of this article with your friends and colleagues. Learn more.Copy URL No abstract is available for this article.Citing Literature Volume10, Issue4April 2023Pages 724-725 This article also appears in:Special Collection: COVID-19 Resources RelatedInformation

II Encuentro entre Asociaciones y Pacientes Neurológicos de la Sociedad Española de Enfermería Neurológica

Empowerment is known as enabling the patient to manage their self-care. In this process patients acquire knowledge, attitudes, and skills regarding their disease in a facilitative environment. Neurology nurses are fundamental in educating and motivating this population. Nevertheless, collaboration between professionals and patients is the key to patient empowerment and coping. This is why SEDENE held the second meeting between neurological patients and associations in the context of the XXIXNational and VInternational Congress of SEDENE in the city of Granada in 2022. The nurse Pedro Soriano and patients’ associations of multiple sclerosis (AGDEM), epilepsy (APICE), Parkinson's disease (Parkinson Granada), stroke (NEUROAFEIC), headache (AEMICE), and ALS (AGRAELA) collaborated. Soriano spoke about helping relationships where patients can express emotions, feelings, and healthcare professionals are able to create an environment of trust to develop patient empowerment. Concerning patient coping skills, they talk about their fears regarding the diagnosis process, resilience, and strategies to improve their abilities in a special visit. The social and work circumstances that are affected in these patients’ lives were discussed, and their difficulties trying to balance their symptoms and their jobs or exams. They explained to us how changes in roles due to their disease affect social integration and family relationships. They reiterated how they had lost their personal identity with the diagnosis of their disease and its progression. Neurology nurses are a point of reference in their care, essential in interdisciplinary teams, and they highlight inequalities in care according to communities and areas. We would therefore like to thank all the attendees for their testimonies and participation, and hope that these activities will influence nursing practice in the care of neurological patients.

Second meeting between neurological patients and associations from the Spanish Society of Neurology Nursing

Empowerment is known as enabling the patient to manage their self-care. In this process patients acquire knowledge, attitudes, and skills regarding their disease in a facilitative environment. Neurology nurses are fundamental in educating and motivating this population. Nevertheless, collaboration between professionals and patients is the key to patient empowerment and coping. This is why SEDENE held the second meeting between neurological patients and associations in the context of the XXIX National and V International Congress of SEDENE in the city of Granada in 2022. The nurse Pedro Soriano and patients’ associations of multiple sclerosis (AGDEM), epilepsy (APICE), Parkinson’s disease (Parkinson Granada), stroke (NEUROAFEIC), headache (AEMICE), and ALS (AGRAELA) collaborated. Soriano spoke about helping relationships where patients can express emotions, feelings, and healthcare professionals are able to create an environment of trust to develop patient empowerment. Concerning patient coping skills, they talk about their fears regarding the diagnosis process, resilience, and strategies to improve their abilities in a special visit. The social and work circumstances that are affected in these patients’ lives were discussed, and their difficulties trying to balance their symptoms and their jobs or exams. They explained to us how changes in roles due to their disease affect social integration and family relationships. They reiterated how they had lost their personal identity with the diagnosis of their disease and its progression. Neurology nurses are a point of reference in their care, essential in interdisciplinary teams, and they highlight inequalities in care according to communities and areas. We would therefore like to thank all the attendees for their testimonies and participation, and hope that these activities will influence nursing practice in the care of neurological patients.

Summary of the XXIX Annual Congress and V International Congress of the Spanish Neurological Nursing Society

Summary of the XXIX Annual Congress and V International Congress of the Spanish Neurological Nursing Society

Analysis on the Construction of Humanistic Care in Neurological Nursing

Analysis on the Construction of Humanistic Care in Neurological Nursing

Effect of the Stroke Rehabilitation Nursing Intervention in Neurology Nursing

Effect of the Stroke Rehabilitation Nursing Intervention in Neurology Nursing

Application Effect of Detail and Comfort Nursing in Neurology Nursing

Application Effect of Detail and Comfort Nursing in Neurology Nursing

Multiple sclerosis, disease modifying therapies and pregnancy

Multiple sclerosis (MS) affects women more commonly than men and is often diagnosed between 25 and 37 years of age. Therefore, at the time of diagnosis, many people have not finished trying for a family, and the person with MS often faces questions regarding their disease and the use of treatments when pregnant and breastfeeding. This review provides practical advice and guidance for MS and neurology nurses to help them support people with MS and their families throughout their family planning and pregnancy journeys.

Exploration of Clinical Effect of Rehabilitation Nursing in Neurology Nursing of Stroke Patients

Exploration of Clinical Effect of Rehabilitation Nursing in Neurology Nursing of Stroke Patients

Observation of the Quality Effect of Fine Nursing Management Applied in Neurology Nursing

Observation of the Quality Effect of Fine Nursing Management Applied in Neurology Nursing

Analysis of Rehabilitation Effect of Neurology Nursing on Stroke Patients with Diabetes Mellitus and Its Influence on Quality of Life and Negative Emotion Score.

Objective To explore and analyze the rehabilitation effect of neurology nursing on stroke patients with diabetes mellitus (DM) and its influence on quality of life and negative emotion score. Methods In this experiment, 110 stroke patients with DM diagnosed and treated in our hospital from 2018 to 2020 were randomly selected and assigned to the study group (SG) and the control group (CG) according to different nursing methods, with 55 cases in each group. In SG, they were given neurology nursing. In CG, they were given routine nursing. The rehabilitation efficacy, quality of life, and negative emotion scores were compared between the two groups. Results Compared with the CG, the levels of fasting blood glucose, 2 h postprandial blood glucose, and urinary microalbumin in SG were obviously better after treatment. In SG, the proportion of patients with basic recovery and significant improvement after treatment was higher, and the proportion of patients without treatment effect was significantly lower. Overall, the nursing effect of the SG after treatment was better than that of the CG. There was no striking difference in the quality of life and Morisky scores between the two groups before nursing intervention (P > 0.05), but the quality of life and Morisky scores of patients in SG were obviously higher than those in CG after nursing intervention. After nursing intervention, SAS and SDS scores of patients in SG were obviously lower than those of patients in CG, and patients in SG were less affected by negative emotions. Questionnaires were used to investigate the satisfaction of patients in both groups, and the results showed that the satisfaction of patients in SG was higher (all P < 0.05). Conclusion Neurology nursing has better clinical efficacy for stroke patients with DM and has obvious rehabilitation effect. The quality of life and negative emotion score of patients are better, which is worthy of extensive clinical promotion and application.