Life Assessment In Children Research Articles

Quality of life assessment in children with dental arch constriction and impaired nasal breathing

Relevance. Malocclusion often cause morphofunctional and aesthetic disturbances in the dentoalveolar system, and the lack of nasal breathing in children exacerbates existing deviations.Purpose. To assess morphofunctional parameters and quality of life indicators in children with impaired nasal breathing.Materials and methods. Photometric facial analysis, cephalometric and anthropometric calculations, anterior active rhinomanometry, and an oral health-related quality of life questionnaire for children (OHRQoL) were conducted.Results. In patients with impaired nasal breathing, social and family well-being parameters were reduced in the quality of life assessment.Conclusion. An orthodontist can determine the causes and degree of nasal breathing impairment by analyzing teleradiographs, orthopantomograms, and studying the quality of life in children. This aids in interdisciplinary planning for early diagnosis and treatment of children with maxillary constriction.

Diabetes-Related Quality of Life Assessment in Children following Total Pancreatectomy with Islet Autotransplantation

Total pancreatectomy with islet autotransplantation (TPIAT) can improve pain and reduce functional impairment associated with acute recurrent or chronic pancreatitis. However, long-term glucose monitoring and insulin therapy are often required, which can adversely affect the quality of life. We sought to evaluate diabetes-related quality of life (DR-QOL) in youth who underwent TPIAT and compare it to the youth with new-onset type 1 diabetes (T1D). The Pediatric Quality of Life Inventory™ 3.2 Diabetes Module (PedsQL™ DM) was used to assess DR-QOL in 46 youth (<20 years old) who underwent TPIAT. The PedsQL™ DM scores were analyzed for statistically significant changes and minimally important clinical differences (MCID) over time post-TPIAT. Scores at 12 months (n = 29) and 24 months (n = 16) were then compared to PedsQL™ DM scores from a historical cohort of demographically similar (age and sex) youth with a 12 months (n = 52) and 24 months (n = 58) after diagnosis of T1D. The diabetes symptoms summary score (mean 65 to 57 and p = 0.03 ) and the total score (mean 74 to 68 and p < 0.05 ) decreased (worsened) during the first 24 months post-TPIAT and met the MCID threshold, suggesting the decrease in these scores was clinically significant. Post-TPIAT PedsQL™ DM scores were not significantly different than youth new diagnosis of T1D after 24 months (all p > 0.2 ). In youth who underwent TPIAT, DR-QOL worsened over the first two years, mostly attributable to the diabetes symptoms score. Compared to children with T1D, post-TPIAT DR-QOL was similar two years after diabetes onset.

Quality of life assessment in children and their caregivers suffering from allergic rhinitis and/or asthma

INTRODUCTION: Asthma and allergic rhinitis (AR) are among the most prevalent diseases worldwide and they frequently persist throughout the life. These have significant effect on physical, financial, and mental wellbeing of patients and caregivers. There have been few attempts previously, assessing the quality of life (QOL) in affected families suffering from these diseases. However, the data from developing countries are scarce. QOL assessment in children and caregivers of patients suffering can help in symptomatic management and provide inputs for the better utilization of resources to achieve optimal treatment. MATERIALS AND METHODS: Patient and caregiver QOLs were ascertained using Mini Pediatric Asthma QOL Questionnaire and Pediatric Asthma Caregiver's QOL Questionnaire, respectively, in the study and correlated with disease severity and chronicity using the parametric and nonparametric statistical tools. RESULTS: There were 246 pairs of children diagnosed with asthma and/or AR and their caregivers attending the pediatric allergy and asthma clinic. Symptom score, emotional domain, and activity limitation in children did not validate a statistically significant difference in QOL in the various grades of AR/asthma/AR with asthma (P = 0.632) (P = 0.772) (P = 0.496) (P = 0.918) (P = 0.384) and (P = 0.561), respectively. In addition, there was no significant correlation between the severity of asthma and caregiver emotional disturbance (P = 0.594) or caregiver activity limitation (P = 0.446). CONCLUSIONS: QOL in children and caregivers where children are suffering from either AR or asthma, or both has not shown any significant difference as per the disease severity or chronicity in various domains. There was no significant difference in QOL noted as per the change in age group, gender of patients, or education status of caregivers.

Quality of Life in Children With Chronic Functional Constipation and Their Family Members

Background: Functional constipation (FC) is one of the most common complaints in childhood. The aim of this study was the evaluation of the quality of life in children with chronic FC and their family members. Methods: In this study, 100 children from 2-18 years of age (57 males, 43 females) with chronic FC were selected. The Child Health Questionnaire - Parent Form 50 questionnaire was used for quality of life assessment in children and their family members. Quality of life scores were compared with 100 healthy children from 2-18 years of age. The questionnaire consists of 15 domains, each of which ranges in score from zero to 100. A higher score represents a better quality of life. Results: Quality of life scores in all 15 domains were significantly lower in children with FC than in healthy children (P<0.001). Scores of physical functioning, behavior, and mental health were lower in children with FC and fecal incontinence compared to children with FC alone (P<0.05). Conclusion: FC impacts on quality of life of the affected children and their family members. Practitioners should be aware of its effects on quality of life to improve the disease course with early assessment and treatment.

Health-related quality of life assessment in children for economic evaluation

Health-related quality of life assessment in children for economic evaluation

Psychosocial assessment and quality of life assessment in children with congenital heart in a developing country

BackgroundFew studies have examined the clinical utility of a brief psychosocial screening questionnaire and assessing the health-related quality of life as part of routine care in a pediatric cardiology clinic.Subject and methodsA cross-sectional study was conducted over 6 months duration involving 224 patients with congenital heart diseases (CHD) aged 4–18 years and their parents to fulfill Pediatric Symptom Checklist (PSC) and Health related – Quality Of Life (HR-QOL) score. Statistical analysis of reliability of these scores among the studied population was carried using Cronbach’s alpha value.ResultsThe studied population with CHD, aged 4–18 years with a mean ± standard deviation of 99.48 ± 43.37 months. They were 54.5% males (n = 122) and 45.5% females (n = 102). Internalizing problems were identified by PSC in 12.95% of patients (n = 29), Cyanosis was found to be the only significant independent risk factor for developing internalizing defects (p < 0.001). Quality of school functioning was the most affected domain in HR-QOL. While, the quality of social functioning remained good in the majority of cases. Cronbach’s alpha value coefficient of PSC and HR-QOL scores were 0.846 and 0.900 respectively, reflecting good to excellent reliability of these scores within the studied population.ConclusionsChildren with CHD have increased need for psychosocial assessment for improvement of their quality of life.

Health-related quality of life assessment in children with overweight and obesity

The aim of the study is to study and evaluate the quality of life in obese children. The study was performed in two stages, using statistical and sociological methods and conducted: a study of the prevalence of overweight and obesity and assessment of the quality of life of obese children. The following results were obtained during the study: during the first stage of the study, obesity and overweight were found in 280 (58.4±3.4‰) and 440 (91.9±4.2‰) persons, respectively. When assessing the quality of life of 280 obese children on second stage, it was found that the corresponding average value (60.7±0.5%) was in the range from 39.3% to 90.6% and corresponded to the average level of variability (CV=12.9%). There was a signi­ficant difference in the quality-of-life average values in patients with complicated forms of the disease than without complications – 48.3±1.0% and 62.6±0.43% (p&lt;0.001), respectively. In a separate study of the limitations that affect the quality of life of obese children, it was found that the most significant were the limitations in the physical Rxy=(-6.83) and psychoemotional Rxy=(-4.42) areas, namely such factors as: restrictions in the performance of heavy physical activity (67.9±3%), when climbing stairs (56.1±3.2%), complaints of rapid fatigue (37.8±3.2%), feelings of anxiety (39.7±3.2%), depression (41.4±3.2%), irritability (36.3±3.1%) and low self-esteem (51.5±3.3%). As a result of the study, we came to the following conclusions: the use of the quality-of-life assessment methodology has made it possible to conduct a comprehensive study of the health status of obese children and adolescents. Data on quality-of-life relative value is recommended to be included into the child's development anamnesis (form No.112/o, which is designed to keep records of the development and state of children’s health and medical care from birth to 17 years, including in children's clinics, primary health care centers, orphanages, outpatient clinics) or into the electronic database to improve dynamic mo­nitoring. Keywords: quality of life, physical factors, psychoemotional factors, limitations, comprehensive assessment.

Methods for quality of life assessment in children with orphanic diseases

Orphan (rare) diseases include congenital or acquired diseases, the frequency of occurrence of which does not exceed a certain number established by the laws of various countries. Despite its rarity, the orphan diseases make a significant contribution to the structure of population disability and most of them have no specific treatment. One of the main clinical challenges in these patients is to ensure their high quality of life (QOL). The review describes basic non-specific and specific questionnaires for assessing QOL in children with orphan diseases. An ideal questionnaire for assessing QOL in children with orphan disease should be sufficiently reliable, valid, sensitive and specific, fill out by a child or adolescents on their own, include questions covering as much as possible all areas of life and health aspects - especially those associated with the main decease. The questionnaire should not be too huge and complicated for the patient. From the side of the researcher, the simplicity of the tool in calculating and the ability to use the results for subsequent analysis are important.

120-OR: Diabetes-Related Quality of Life Assessment in Children following Total Pancreatectomy with Islet Autotransplantation

Total pancreatectomy with islet autotransplantation (TPIAT) can effectively improve pain and functional impairment associated with chronic pancreatitis (CP) in children. However, children undergoing this procedure usually develop post-pancreatectomy diabetes and require chronic insulin therapy. It can be difficult for providers and patients to conceptualize trading the symptoms of CP for the burden of diabetes. Therefore, we sought to evaluate diabetes-related quality of life (QOL) over time in children who underwent TPIAT, and compare QOL scores post-TPIAT with children who have type 1 diabetes (T1D). The Pediatric Quality of Life Inventory (PedsQL) 3.2 Diabetes Module was used to assess diabetes-related QOL. PedsQL scores were evaluated in 46 children (&amp;lt;20 years old) who underwent TPIAT and completed at least one survey. PedsQL data was collected at 3, 6, 9, 12, 18, and 24 months post-TPIAT. Total and Subscale scores were analyzed for change over time. The TPIAT cohort PedsQL scores at 24 months (n=16) were then compared to PedsQL scores from a historical cohort of demographically similar (age, race, sex) patients 24 months after new onset T1D (n=58). Mean age at TPIAT was 12.6 ± 4.7 years and 67% were female. Mean age at T1D diagnosis was 11.2 ± 3.2 years and 69% were female. The Diabetes Symptoms subscale (p=0.03) and the Total Score (p=0.049) decreased (worsened) over 24 months post-TPIAT (Diabetes subscale: median 68 to 56; Total Score: median 75 to 68). The other subscales did not significantly change over that time. At 24 months after diabetes onset, no PedsQL subscales were different between the TPIAT cohort and T1D cohort (all p&amp;gt;0.2). The Total PedsQL score, mostly attributable to the Diabetes Symptoms subscale, decreased over time in patients who underwent TPIAT. Additionally, diabetes-related QOL at 24 months was not significantly different from children with T1D. This data may be used to help counsel families who are considering TPIAT for treatment of CP. Disclosure J.M. Redel: None. L. Hornung: None. D.A. Elder: None. J.D. Nathan: None. M. Abu-El-Haija: None. Funding Cincinnati Children’s Hospital

Health-Related Quality of Life Assessment in Children and their Families: Aspects of Importance to the Pediatric Surgeon

With the growing amount of chronic and rare diseases in childhood that often require lifelong treatment, improvement of health-related quality of life is a major goal in therapy. Therefore, the assessment of health-related quality of life from the patient's perspective as a relevant outcome parameter in clinical practice gained increased recognition. Health-related quality of life measures are still rarely applied in the pediatric practice context, although progress has been made in the development of instruments that are now ready for implementation. Inclusion of measures in research and practice is needed to accumulate and critically appraise knowledge about health-related quality of life to broaden the understanding of the child's health status, impacting on the whole family. From the perspective of a pediatric surgeon, knowledge about health-related quality of life of the children and their parents is important since it might influence treatment decisions and facilitates patient-physician communication. This article will review the concept of health-related quality of life, its methodological challenges and the application, and the challenges of health-related quality of life instruments in pediatric practice and health services research.

Quality of life assessment in children before and after a successful ablation for supraventricular tachycardia

Young patients suffering from rhythm disorders have a negative impact in their quality of life. In recent years, ablation has become the first-line therapy for supraventricular arrhythmias in children. In the light of the current expertise and advancement in the field, we decided to evaluate the quality of life in young patients with supraventricular arrhythmias before and after a percutaneous ablation procedure. The prospective cohort consisted of patients <18 years with structurally normal hearts and non-pre-excited supraventricular arrhythmias, who had an ablation in our centre from 2013 to 2018. The cohort was evaluated with the PedsQL™ 4.0 Generic Core Scales self-questionnaire prior to and post-ablation. The final cohort included 88 patients consisted of 52 males (59%), with a mean age at ablation of 12.5 ± 3.3 years. Forty-two patients (48%) had a retrograde-only accessory pathway mediating the tachycardia, 38 (43%) had atrio-ventricular nodal re-entrant tachycardia, 7 (8%) had ectopic atrial tachycardia, and 1 (1%) had atrial flutter. The main reason for an ablation was the patient's choice in 53%. There were no severe complications. Comparison between the baseline and post-ablation assessments showed that patients reported significant improvement in the scores for physical health, emotional and social functioning, as well as in the total scores. The present study demonstrates that the successful treatment of supraventricular arrhythmias by means of an ablation results in a significant improvement in the quality of self-reported life scores in young patients.

Longitudinal Health-Related Quality of Life Assessment in Children with Congenital Heart Disease

Objective: Health-related quality of life (HRQoL) has become an important outcome measure for patients with congenital heart disease (CHD). The aim of this study was to evaluate the natural course of HRQoL from longitudinal... | Find, read and cite all the research you need on Tech Science Press

Quality of Life Assessment of Children With Congenital Heart Disease Aged 5 to 7 Years

Quality of Life Assessment of Children With Congenital Heart Disease Aged 5 to 7 Years

THE EFFECTIVENESS OF A COGNITIVE HEALTHY PROGRAM FOR REHABILITATION OF THOSE ARE DEALING WITH CHILDREN WITH DIABETES IN PRIMARY SCHOOLS AND ITS RELATION TO SELF-ESTEEM IN TERMS OF THE QUALITY OF LIFE VARIABLE

The present study aims to provide a healthy knowledge-based rehabilitation program for dealing with children's diabetes patients in primary schools (in Cairo) and its Relation to Self-esteem in Terms of the Quality of Life variable through: Raising the level of health knowledge to Dealing with children with diabetes (Type I) in primary schools, which will be applied to them the program - The impact of Health knowledge program directed to Dealing with children in the school environment in self-esteem in children with diabetes (Type I). - The impact of health knowledge program directed to clients with children in the school environment in raising the quality of life in children with diabetes (Type I). - The continuation of the impact of health knowledge program directed to Dealing with children in the school environment to raise the self-esteem and quality of life. This study is one of the experimental studies which are based on the use of experimentation strategy, which includes the choice of the relationship between two variables, one independent have been conducted on a sample of 36 students of both sexes (11 Females and 25 males) who have diabetes and between the ages of ( 8-12 ) years old and enrolled in primary schools in Cairo and children enrolled in Diabetes unit, Ain Shams University, and their teachers (70 teachers), children were divided into (18) Children the experimental group and 18 to the control group, as the teachers were divided into (35) teacher experimental group and (35) teachers of the control group, has been collecting data in the period From the beginning of the month of October (2013) to the end of December (2013), The study used a number of tools to validate assumptions, and tools are: a. The extent of health awareness scale for dealers with children with Type I diabetes in the school environment. B. Quality of life scale for children with diabetes (Type I). T. List of self-esteem for Cooper-Smith. After conducting statistical treatments was reached following results: • Increasing the level of Health knowledge program for Dealing with children in primary schools for Juvenile Diabetes, and a high degree of reliance and quality of life assessment in children and this emphasizes the possibility of using cognitive health program in self-improvement and quality of life assessment in children with diabetes from the (type I) in primary schools.

Quality of life assessment for children with sickle cell disease (SCD) in Mecca region

Quality of life assessment for children with sickle cell disease (SCD) in Mecca region

Cross-cultural Measurement Equivalence of the KINDL Questionnaire for Quality of Life Assessment in Children and Adolescents.

This cross-cultural study aimed to assess whether Iranian and Serbian children, and also their parents, perceived the meaning of the items in the KINDL quality of life questionnaire consistently. The sample included 1086 Iranian and 756 Serbian children and adolescents, alongside 1061 and 618 of their parents, respectively. The ordinal logistic regression was used to assess differential item functioning (DIF) of the self and proxy-reports of the two versions of the KINDL, including Kid-KINDL and Kiddo-KINDL, across Iranian and Serbian samples. Statistically significant DIF was flagged for 14 out of 24 (58%) and 20 out of 24 (83%) items in the self-report of the Kid-KINDL and Kiddo-KINDL, respectively. Moreover, 20 out of 24 (83%) in the proxy reports of the both Kid-KINDL and Kiddo-KINDL, showed DIF across two samples. Accordingly, considerable caution is warranted when using the KINDL for cross-cultural comparisons.

Health-related quality of life assessment in children followed in a cardiomyopathy clinic.

As our ability to diagnosis cardiomyopathy matures and genetic testing becomes more widespread, there has been an increase in the number of children followed for cardiomyopathy. The purpose of this study was to compare health-related quality of life (HRQoL) between children with cardiomyopathy and healthy controls and with children seen in clinic who are at risk for the development of cardiomyopathy. Patient and parent-proxy perspectives were obtained using the Pediatric Quality of Life Inventory (PedsQL(TM)) 4.0 Core Scales (ages 2-18years) and the disease-specific Cardiac Module. Cardiomyopathy physicians' perceptions of the impact of cardiomyopathy on the functional status of the patients were collected. In addition, data regarding disease-specific medical and socioeconomic information were collected from chart review and parental report. The questionnaires were completed by 100 parent-proxies and 71 children. The PedsQL(TM) scores reported by children and their parent-proxies were compared to scores reported by pediatric norms. Compared to healthy controls, patients followed in a pediatric cardiomyopathy clinic scored lower in Total score when compared to pediatric norms (80.7 vs 86.4, p=0.002). Interestingly, children with a family history of cardiomyopathy who are at risk for developing the disease scored similar to those children with a diagnosis of cardiomyopathy. Parental and patients perceptions were discrepant when compared, which may deter appropriate referral to behavioral health services. These results should encourage cardiomyopathy clinics to screen all patients for HRQoL impairments and to have behavioral services available to assist these children.

Quality of life assessment in children commencing home INR self-testing

IntroductionManagement of oral anticoagulant therapy (OAT) in children is complex and frequent testing of the International Normalised Ratio (INR) is a significant burden. This study evaluates the impact of a home INR self-testing (home ST) program on the quality of life (QoL) of children and their families. The aim of the study was to determine if participation in a home ST program improves QoL for children requiring long-term OAT and their families. Materials and MethodsChildren aged eight to 18years requiring long-term OAT and parents of children participated. Quantitative methods comprised three validated QoL questionnaires; the anticoagulation specific PAC QL©, the PedsQL™ and the PedsQL FIM™. Questionnaires were completed before commencing home ST and 6–12months later. Qualitative methods consisted of open-ended questions which participants answered when completing the questionnaires for the second time. Results of INRs tested at home were collected. ResultsFifty-five parents and 35 children participated. The percentage of time the children’s INRs were in their target therapeutic range was 71.3. Parents reported statistically significant improvements in QoL for themselves (mean increase 6.9), their family (mean increase 8.6) and their child (mean increase 11.1) following the commencement of home ST (difference p≤0.003 on all questionnaires). The children did not report a statically significant improvement in QoL. ConclusionParents reported significant improvement for their child’s QoL, their QoL and the families’ function following commencement of home ST. Children did not report a significant improvement in their QoL, but clearly identified satisfaction with home ST.

Health Related Quality of Life for Monosymptomatic Enuretic Children and Their Mothers

There have been few reports addressing how nocturnal enuresis affects the health related quality of life of patients and their mothers. Thus, we evaluated the health related quality of life of enuretic children and their mothers. The health related quality of life of 139 patients with nocturnal enuresis and that of their mothers were evaluated before and after treatment. The children's health related quality of life was evaluated with the Kid-KINDL® protocol. The mothers' health related quality of life was evaluated using the SF-36®, the SDS (Self-Rating Depression Scale) for rating depression and the STAI (State-Trait Anxiety Inventory) for assessing anxiety. In the health related quality of life of enuretic children, the family domain score was significantly lower than that of controls (p = 0.02). In the health related quality of life of the mothers as shown by SF-36, the vitality domain score was significantly lower compared to controls (p = 0.01). The evaluation of the STAI score demonstrated a higher state anxiety score (p = 0.003), which represents current suffering from anxiety, and a similar trait anxiety score (p = 0.22), which represents a similar level of underlying tendency to anxiety. There was no significant difference between the mothers of enuretic children and the controls in the SDS evaluation. After treatment for enuresis the health related quality of life score was improved not only for the enuretic children as assessed by the Kid-KINDL protocol, but also for the mothers of enuretic children as assessed by the SF-36 and STAI. Similar to other pediatric chronic diseases, nocturnal enuresis is a condition that negatively affects the health related quality of life of children and their mothers. Impaired health related quality of life can be improved after the successful treatment of nocturnal enuresis.

Improving quality of life assessment in children with systemic lupus erythematosus

Systemic lupus erythematosus in children is a multisystem disease with extensive organ involvement characterized by its chronic, fluctuating and unpredictable course. The physical, emotional and social effects of systemic lupus erythematosus significantly impact the health-related quality of life (HRQOL) of patients. In the last several years, the need for addressing HRQOL in children with systemic lupus erythematosus has been recognized and there has been significant progress. The current tools offer significantly greater advantages compared with the older scales used to measure HRQOL in these children. The relationship between HRQOL and disease activity and damage has been examined. Research is underway to examine HRQOL globally across different countries and cultures.