Family caregivers' experiences and perspectives regarding the implementation of advance care planning among older adults: A systematic review and meta-synthesis.

When cancer progresses, changes of treatment are proposed and discussed with patients and their family caregivers (P&Cs). However, there has been insufficient research on these consultations. The objective of this study was to explore how decision-making in cancer progression consultations relates to shared decision-making (SDM) from the perspective of healthcare professionals (HCPS) and P&Cs. A qualitative study was conducted based on 35 semi-structured interviews with HCPs (n = 20) and P&Cs (n = 10 patients and n = 5 family caregivers). Five themes emerged: (1) overview of the decision-making process; (2) a key consultation: discussing progression and treatment options; (3) the central role of the relationship between healthcare professional, patient, and family caregiver; (4) the perception of choice in cancer progression consultations; and (5) participants' perceptions of the elements needed for decision-making. The findings revealed an imbalance in decision-making roles, with physicians primarily making treatment decisions in interdisciplinary meetings, before presenting them to P&Cs in consultation. While cancer progression consultations meet the conditions for SDM, adjustments are needed to enhance the involvement of P&Cs, who often feel passive. Strengthening communication strategies and more actively integrating P&Cs could foster a more balanced, patient-centered approach. Strengthening team cohesion and optimizing interdisciplinary collaboration, systematically involving nurses, and expanding SDM training to include HCPs can foster patient-centered care, enhance communication, and improve decision-making efficiency. An approach that actively integrates patients' values and caregivers' experiential knowledge, combined with a discussion of treatment options, can improve participation without prolonging consultation time.

Family caregivers and safety events in hospitalized people living with dementia.

Constructing a theoretical model based on grounded theory to evaluate the downstream effects of home caregiver burden in hemodialysis patients.

An exploratory descriptive qualitative study examining the experiences and perceptions of family caregivers engaging in structured home-based reminiscence activities with persons with dementia.

Pilot study: Training bilingual Hmong caregivers using the pain assessment information visualization tool for effective communication in healthcare.

The narrative construction of good death in China: A qualitative study of family members' roles.

In home-care for older adults, several vulnerable groups come together: the older adult with care needs, family relatives who look after the older adults and, increasingly, migrant live-in careworkers who live with the older adult. Community engagement is recommended in order to reach and protect people in vulnerable situations, especially for crisis preparedness and prevention activities. This article aims at showing how a participatory approach and community involvement can lead to defining challenges and finding solutions for improving home-care for older adults in Austria. A network meeting was organized that brought family caregivers as well as live-in carers and Community Nurses together. The network meeting showed that it was possible to bring almost all affected and vulnerable groups in home-care together. The presence of Community Nurses and researchers also made it clear to the affected groups that their matters were of wider public importance.

Geriatric transition care between acute hospital and residential healthcare settings: scoping review of current models and proposed conceptual framework.

Clinicians' perspectives of pain in older adults with heart failure.

A life review depression intervention conducted in assisted living facilities during the COVID-19 pandemic: did it work?

To explore the critical attributes of the concept of caregiver information needs in the context of dementia. Informal caregivers of patients with dementia need information in the postdiagnosis period; however, due to a lack of high-quality and available information, education, and support services, it is not really known what information needs are required specifically for caregivers to be successful. The eight-step concept analysis method of Walker and Avant was used to analyze this concept. Uses of the concept, defining attributes, antecedents, consequences, and empirical referents are presented. Case samples are provided to assist in understanding the defining attributes. Caregiver information needs in the context of dementia are defined as the dynamicity of facts that apply to the disease process of dementia and that replace the lack of something requisite with adequate and useable knowledge. Identified attributes were lack of something requisite and dynamicity. Access to knowledgeable providers, motivation to be a caregiver, and the ability to coordinate care are the antecedents to caregiver information needs. Consequences included caregiver burnout, quality of life, internal locus of control, and maintaining patients in their homes. Family caregivers need early, continuous, and stage-specific information that is usable to aid in their care abilities. Education and the timing of information must be tailored to meet families' unique needs rather than a "one size fits all" approach. This, coupled with continuity of care, can empower caregivers and persons with dementia to advocate for their changing needs. No patient or public contribution.

Leveraging mobile health to enhance post-discharge stroke care: effects on perceived knowledge and support among family caregivers in Nigeria

Helping caregivers of older adults with cancer manage patient care: A qualitative analysis of healthcare professional perspectives.

Unseen support: The needs of Alzheimer's disease and related dementias' secondary family caregivers and a way forward.

This study aimed to explore the lived experiences and responses of nurses who contracted COVID-19 infection at work, with a comparison of gender-based experiences. A qualitative-descriptive approach was employed, with purposive sampling of participants from four hospitals in Jordan with specialised COVID-19 units. Seventeen registered nurses were interviewed after full recovery from the disease and returning to work. The analysis revealed disparities in the experience of nurses by gender, with three themes: (a) struggling with mixed emotions, (b) becoming vulnerable and demanding and (c) COVID-19 positively affecting practice. The participants described their struggle with mixed feelings, such as fear and guilt, after the confirmation of being infected with COVID-19. Female nurses more often linked these emotions to family caregiving roles, whilst male nurses more frequently framed their distress around professional identity and responsibility. Furthermore, gendered changes were related in their personalities after being infected with COVID-19, as they became vulnerable and asked people to care for them. Lastly, nurses returning to work after recovering from COVID-19 reported greater compassion and empathy reflected in their patient care. Policymakers should recognise changes that may affect nurses due to illness and provide adequate psychological counselling and physical support to help them overcome these challenging experiences.

Support use in caregivers of persons with dementia of East Asian backgrounds: An integrative review.

A cross-sectional study of caregiving tasks and mental health outcomes among diverse family dementia caregivers.

ObjectiveMost family caregivers have never heard of palliative care, making it challenging for clinicians to introduce the subspecialty. The purpose of this study was to explore family caregivers' palliative care knowledge, exposure, and preferred messaging for an introduction to palliative care.MethodsSemi-structured phone interviews with family caregivers of patients eligible to receive palliative care were conducted.ResultsKnowledge of palliative care was significantly associated with having heard about and being offered palliative care. Caregiver exposure to palliative care was associated with age and race, with older, White caregivers significantly more likely to have heard about palliative care compared to Hispanic caregivers. Caregivers positively endorsed all message strategies designed for introducing palliative care.ConclusionsAll five introductory messaging strategies in this study were positively received by participants, providing initial direction for clinicians on how to tailor introductory messaging about palliative care.

With the rapid ageing of the global population, the number of persons with dementia (PwDs) is increasing, placing substantial psychological and physical burdens on family caregivers. Acceptance and commitment therapy (ACT), a mindfulness and values-based psychological intervention, has shown potential in improving mental health outcomes across various populations. However, its effectiveness, specifically for dementia family caregivers, remains to be systematically evaluated. This review aims to evaluate the effects of ACT on psychological outcomes (eg, depression, anxiety, psychological flexibility), caregiver burden and health-related quality of life (HRQoL) among family caregivers of PwDs. A comprehensive search of English and Chinese databases, including PubMed, Embase, Web of Science, Cochrane Library, CINAHL, PsycInfo, CNKI, CBM and Wanfang Data, will be conducted from inception to July 2025. Randomised controlled trials involving family caregivers (aged ≥18) of PwDs will be included in which ACT is delivered either alone or as a core component. Outcomes include psychological outcomes (eg, depression, anxiety, psychological flexibility), caregiver burden and HRQoL. Two reviewers will independently screen studies, extract data and assess risk of bias using the Cochrane RoB 1.0 tool. Meta-analysis will be performed using RevMan V.5.4, with mean difference or standardised mean difference calculated for continuous outcomes. Random or fixed-effects models will be applied depending on heterogeneity. Subgroup analysis and evaluation of publication bias will also be conducted where applicable. Ethical approval is not required because only published data will be used. Results will be disseminated through peer-reviewed publications and conference presentations. CRD420251127238.