This study addresses a participatory design project involving a researcher in the field of design and dementia, undergraduate design students, people living with moderate to late-stage dementia from a Day Centre run by Alzheimer Portugal and care workers. The project was held during four months as part of the research REMIND, and is grounded on the concept of personhood, emphasizing the importance of considering biographical features, values, interests, and culture of people with and for whom design projects are being developed. Considering the profile of the Centre’s users, the stage, and manifestations of dementia in each one, it was necessary to combine qualitative methods, which were systematically adapted according to each situation. Methods included: sensory ethnography, participatory observation, walking interviews, ethnographic field notes and interviewing. The strategies adopted in the participatory design process were designed according to the users’ aspirations and interests, prioritizing playfulness, enjoyment, and wellbeing in the moment. Sensory and cognitive stimulation games were designed with these people living with dementia and made available at the Centre for their use. The results of this project provide a basis for reflection on the ongoing research and inform future practices in this area.
Read full abstract