Core Category Research Articles

Patient video cases in large-group medical student teaching: A qualitative study of learner and educator perspectives.

Patient video cases (PVCs) are short video recordings of real patients during clinical encounters or instructed activities. Although widely used in healthcare professionals' education, their use in large group teaching (LGT) remains relatively unexplored. This study aims to explore the perceptions of medical students and academic staff regarding the use of PVCs to support LGT. A purposive sample of medical students and academic staff from Leicester Medical School was obtained. Data were collected through focus groups (students) and semi-structured interviews (staff) in which two sensitising PVCs were used as a stimulus to discussion. Data analysis was undertaken using grounded theory through a process of open, axial, and selective coding, leading to core categories and themes. Sixteen medical students and four academic staff members participated. Four overarching themes were identified covering the benefits of using PVCs, ways in which they are used in LGT, the challenges faced by and how to optimise PVCs for LGT. This final theme covered design, choice of clip and how it is then used by the educator within the teaching session. Key considerations were the need to align the PVC with other content and to consider the student experience. Our findings support the use of well-chosen and well-designed PVCs within LGT and offer practical insights to use them effectively. PVCs are a potentially powerful tool within medical undergraduate LGT (a widely used instructional method) and further research into its use is needed.

발달장애 자녀를 둔 부부의 동반 대처 경험 연구

This study was conducted for the purpose of examining how the emotional interactions of parents of children with developmental disabilities change the couple's intimacy and parenting coping skills. For the study, 20 participants from 10 pairs of parents with children with developmental disabilities were recruited and conducted in-depth interviews, and the collected data was analyzed following the grounded theory of Corbin and Strauss. As a result, 92 concepts, 25 subcategories, and 9 categories were discovered, which were integrated into the core category of “Living as a dyadic parenting team and supporting the family.” The entire process follows the following steps: “Confusion → Individual coping → Transition → Cooperation-adjustment → Maintenance.” However, this process shows a cyclical development where progress and regression intersect. Research suggests that there are four different types of adaptation. They are the “mutual care type,” “combat-comrade type,” “player replacement type,” and “return after neglect type.”

Experience of Clinical Adaptation among Nurses in Intensive Care Unit

Purpose : This study aimed to explore and describe intensive care unit (ICU) nurses’ experience of clinical adaptation.Methods : The participants were 14 ICU nurses with more than two years of working experience in the ICU. Data were collected through in-depth individual interviews conducted between July and October 2021. Theoretical sampling was used to the point of theoretical saturation. Data were analyzed using the Strauss and Corbin method.Results : A total of 79 concepts, 37 subcategories, and 16 categories were identified through open coding. Axial coding based on the paradigm model revealed that the central phenomenon was “The harsh adversity faced in the nursing field where life and death are determined” and the core category was “Enduring the adversity of caring for critically ill patients and achieving self-realization.” ICU nurses’ clinical adaptation process was explained in five phases: “confrontation period,” “turbulent period,” “seeking period,” “struggling period,” and “stabilized period.” The five phases that affect interventional conditions were “Support from reliable people,” “Recognition of administrative and financial support.”Conclusion : This study provided novel insights for a comprehensive understanding of ICU nurses’ clinical adaptation processes. Furthermore, the findings are expected to be used as basic data to develop multifaceted strategies to help ICU nurses’ adaptation to critical care.

Recovery experience of older adults with COVID-19: A grounded-theory study

Purpose: This study aimed to understand the lives of recovered COVID-19 patients from the viewpoints of people over the age of 60. Methods: The participants were 15 recovered patients aged over 60 who had been infected with COVID-19. Data were collected individually through in-depth interviews from September 12, 2022 to February 27, 2023. Contents of the transcribed interviews were analyzed using Corbin and Strauss’s grounded theory approach. Results: Analysis of the psychological recovery experience for older adults with COVID-19-resulted in six themes, 14 sub-themes, and 41 codes. The core category revealed was turning crisis into opportunities throughout making meaning of living in the time of COVID-19. The causal conditions included feeling disrupted due to unknowns during a crisis. The contextual conditions were a lack of support system for COVID-19 groups. The central phenomenon was a life shattered amidst COVID-19-related helplessness. The intervening conditions were rebound for changes for transformation. As a result, the action/interactional strategies were employed to find a breakthrough. In consequence, enhancement of resilience was achieved after overcoming obstacles. Conclusion: The findings provide important recommendations for healthcare professionals regarding older patients who have had COVID-19. We encourage healthcare providers to improve patient care by gaining a deeper understanding of their recovery experiences.

Ahmad Moftizadeh and the Idea of the Islamic Government: A Discursive Tradition Analysis in the Field of Political Islam

This article explores the idea of political Islam as a discursive tradition within the context of Iranian Kurdistan. It challenges the prevailing essentialist and universalist approaches commonly used in the analysis of political Islam, advocating for a more adaptable and comprehensive interpretation. By conceptualizing political Islam as a discursive tradition, this study sheds light on the complex interconnections, configurations, and historical contingencies influencing Islamist discourses and movements. The paper argues that political Islam should be examined in relation to other phenomena and discourses, acknowledging its dynamic nature within specific temporal and spatial contexts. Focusing on an influential yet underexplored Islamist discursive tradition in Iranian Kurdistan during the 1970s and 1980s, the research acknowledges the hybrid nature of Islamist discourses, drawing from diverse traditions to fulfill particular objectives. In particular, it explores the perspectives of Ahmad Moftizadeh, a Sunni Kurdish Islamist and the founder of the Maktab Quran (MQ). This study investigates Moftizadeh’s views on the Islamic government, positioning it within the framework of discursive tradition. It analyzes his core categories and inquiries within Islamist thought, notably emphasizing Moftizadeh’s alignment of the Islamic government with the Islamic tradition of the Shura, highlighting its central role in the Islamist discursive tradition.

Users' Experience of Public Cancer Screening Services: Qualitative Research Findings and Implications for Public Health System.

Following the One Health approach, designing multidimensional strategies to orient healthcare in promoting health and preventive processes has become paramount. In particular, in the prevention domain, cancer screening attendance is still unsatisfactory in many populations and requires specific consideration. To this end, following a research-intervention logic, this study aims to investigate the experiences and meanings that users of public cancer screening services associate with prevention, particularly participation in the screenings. The experiences of 103 users (96 females; Mage = 54.0; SD = 1.24) of public cancer screening programs in the Campania region (Italy) were collected through interviews. The data collected were analysed following the Grounded Theory Methodology, supported by the software Atlas.ti 8.0. The text material was organised into eight macro-categories: Health and Body; Relationship with Cancer and Diseases; Health Facilities and Health Providers; The Affective Determinants of Cancer Screening Participation; Partners and Children; Physical Sensations and Emotions in the Course of Action; Protective Actions; Promotion and Dissemination. The core category was named Family and Familiarity. Respondents perceived prevention as an act of care for the family and themselves. Our findings support a shift from the idea of taking care of personal health as an individual matter toward considering it as a community issue, according to which resistance to act is overcome for and through the presence of loved ones. The results of this study contribute to a deeper understanding of the perspectives of southern Italian users on participation in cancer screening, and provide important insights to guide future actions to promote these public programmes based primarily on the emerging theme of family and familiarity related to screening programs.

The bricolage mode of emergency medical teams in China: deficient and in urgent need of transformation-A qualitative study.

Emergency medical rescue plays a vital role in alleviating the harm of all kinds of emergencies to people's physical and mental health and life safety. The current emergency medical teams (EMTs) formation model is not unified. We focused on the disadvantages of the bricolage mode of China EMTs and put forward empirical-based countermeasures to improve the emergency management ability of EMTs. From March to September 2022, 23 leaders of EMTs in North China (Tianjin) were selected by objective sampling method to conduct one-to-half structured in-depth interviews. Nvivo12.0 software was used for three-level coding. The disadvantages of the bricolage model of EMT were analyzed. Based on the three-level coding, 150 initial concepts, 36 sub-coding, 17 main coding, six categories, and two core categories were sorted out. Management structure, internal stability, and support are recognized as the crucial elements armed with the EMTs. The bricolage EMTs have disadvantages such as a chaotic management structure, weak internal stability, and inadequate support. It is necessary to construct full-time EMTs that incorporate a standardized personnel admission mechanism, full-time training and exercise mechanism, diversified incentive mechanism, and multi-agent cooperation mechanism, etc.

Designing a biogas development model for Iranian villages (The application of grounded theory)

Energy sustainability, especially in agriculture, has been considered due to population growth and the lack of fossil fuel resources for future generations. Extending renewable energies, including biogas, is essential for sustainable development. This qualitative research was designed and implemented to determine how to extend biogas in rural areas in Iran. The study used grounded theory to guide data collection and analysis and model presentation. The sample included experts from the Ministry of Agriculture and Renewable Energy Organization of Iran selected by purposive sampling. Data were collected by field observations and interviews and analyzed by the coding process (open, axial, and selective coding), as a result of which ten core categories were extracted. They were presented as intervening conditions, contextual conditions, and strategies and used to develop a paradigmatic model for promoting biogas use in Iran's rural areas. Finally, based on the results, suggestions are presented to accelerate the process.

Research on the death psychology among Chinese during and after the COVID-19 pandemic.

Under the threat of the novel coronavirus, people are compelled to contemplate some ultimate existential questions, such as life and death. This study collected texts related to the death psychology from Sina Weibo, and after data cleaning, a total of 3868 Weibo texts were included. Study 1 employed grounded theory from qualitative research to explore the core categories and evolutionary mechanisms of people's psychology when facing death threats in the context of the pandemic. Study 2 utilized big data mining techniques such as topic mining and semantic network analysis to validate the effectiveness of the death psychology theory developed in qualitative research. The findings demonstrate that within the "Emotion-Cognition-Behavior-Value" framework, the implications of death threats manifest in four aspects: death anxiety, death cognition, coping efficacy, and sense of meaning. As time progresses, the study of death psychology can be segmented into four distinct phases: the tranquil phase prior to lifting pandemic restrictions, the threat phase at lifting pandemic restrictions onset, the coping phase mid-lifting pandemic restrictions, and the reformative phase post-lifting pandemic restrictions. The calculated outcomes of topic mining and semantic network analysis corroborate the coding results and theories derived from the grounded theory. This reaffirms that data mining technology can be a potent tool for validating grounded theory.

Central aspects when implementing an electronic monitoring system for assessing hand hygiene in clinical settings: A grounded theory study.

New technologies, such as electronic monitoring systems, have been developed to promote increased adherence to hand hygiene among healthcare workers. However, challenges when implementing these technologies in clinical settings have been identified. The aim of this study was to explore healthcare workers' experiences when implementing an electronic monitoring system to assess hand hygiene in a clinical setting. Interviews with healthcare workers (registered nurses, nurse assistants and leaders) involved in the implementation process of an electronic monitoring system (n = 17) were conducted and data were analyzed according to the grounded theory methodology formulated by Strauss and Corbin. Healthcare workers' experiences were expressed in terms of leading and facilitating, participating and contributing, and knowing and confirming. These three aspects were merged together to form the core category of collaborating for progress. Leaders were positive and committed to the implementation of the electronic monitoring system, endeavouring to enable facilitation and support for their co-workers (registered nurses and nurse assistants). At the same time, co-workers were positive about the support they received and contributed by raising questions and demands for the product to be used in clinical settings. Moreover, leaders and co-workers were aware of the objective of implementing the electronic monitoring system. We identified dynamic collective work between leaders and co-workers during the implementation of the electronic monitoring system. Leadership, participation and knowledge were central aspects of enhancing a collaborative process. We strongly recommend involving both ward leaders and users of new technologies to promote successful implementation.

Negative faculty role modelling – is it a reflection of deteriorating societal values?

Background Negative faculty role modelling is an area of growing concern especially due to its implications on medical professionalism. The study aims to explore the impacts of negative role modelling on professionalism of medical students in the context of Pakistan. Methods This qualitative study is part of a larger study exploring impacts of role modelling on professionalism of students. It is based on Constructivist Grounded Theory involving six semi-structured interviews with clinical faculty and three focus group discussions with 22 students. Initial, focused, selective coding and thematic analysis was used to find the core category. Results Three overarching categories were developed: traits observed with negative role models; impact of negative role modelling; factors promoting negative role modelling. Subcategories of impacts included negative impact on professionalism, emotional impact, and its paradoxical positive impact. Negative role modelling, a manifestation of declining professionalism, was attributed to deteriorating societal values; further compounded by the lack of required mechanisms by institutions and the regulatory authority at their respective levels. Conclusions In the absence of a strong moral platform at societal level, the burden of responsibility rests with the faculty and more importantly with institutions and regulatory bodies to discourage negative role modelling and educate students to recognize, reflect on and avoid negative behaviours and adopt strong professional values.

The contribution of the nursing profession to the establishment of social justice: A grounded theory study.

Social inequities in the healthcare system threaten global health. Efforts to establish equity in healthcare is a key goal of healthcare systems worldwide. Social justice is a basic value of the nursing profession that always merits attention. This study aimed to identify and explain the processes of the nursing profession's participation in establishing social justice in healthcare system. This qualitative study was conducted using the grounded theory method. Data were collected through in-depth, semi-structured, individual interviews with 26 participants, 23 of whom were members of the nursing profession. Sampling started purposefully and, then, continued with theoretical sampling. Field notes were also taken for data collection. Data analysis was performed using Corbin and Strauss' 2015 method. The research was approved by the Ethics Committee of Urmia University of Medical Sciences in Iran. The "Professional Dynamics in the Path of Justice" was the study's core category. This theory is the result of nine main categories: "inefficient professional authority," "social justice, a neglected component in education," "clinical concerns, barriers to nurses' presence in society," "individual input reserves to facilitate social justice," "inadequate maturity of the profession in the path of equity in health," "promoting justice in clinical practice," "a tendency to community-oriented profession," "use of personal approaches for justice promotion," and "emerging justice-expanding nursing." These categories cover the underlying factors, strategies, and outcomes of the nursing profession's participation in establishing social justice process in healthcare. The theory of professional dynamics in the path of justice can be used as a practical guide to describe the role of nurses in establishing social justice. Further studies with a quantitative approach to applying this theory are recommended.

A qualitative interview study on colorectal cancer screening in China.

The effectiveness of triage screening for colorectal cancer (CRC) is not fully achieved in Chinese populations, mainly due to low compliance to colonoscopy follow-up. This study aimed to collect viewpoints of experts in China on ongoing screening programs and emerging screening tests for CRC, which may help to improve effectiveness of CRC screening in the country. We conducted 15 semi-structured interviews with experts involving CRC screening in China during October to November of 2020. Interview topics included personal characteristics, work context, opinions on ongoing screening programs, challenges and opportunities in optimization of screening strategies, and prospects for CRC screening in near future. To analyze the data, we used a generic qualitative research approach inspired by grounded theory, including open, axial, and selective coding. This analysis revealed a total of 83 initial categories, 37 subcategories and 10 main categories, which included 4 core categories of current modality for CRC screening, factors influencing screening effectiveness, optimization of CRC screening modality, and prospects for development of CRC screening. The results provide insight into the factors underlying the challenges of the ongoing CRC screening programs in China: the most important concern is the low compliance to colonoscopy, followed by the low specificity of the currently-used initial tests. The experts proposed to use quantitative instead of qualitative fecal immunochemical test (FIT), and optimize risk assessment tools to improve specificity of initial tests. Regarding the emerging screening tests, 9 of 15 experts did not think that the novel techniques are good enough to replace the current tests, but can be used complementarily in opportunistic screening for CRC. The viewpoints of Chinese experts suggested that use quantitative FIT or optimize risk assessment tools may help to identify high-risk individuals of CRC more accurately, improve adherence to colonoscopy, and thus fully achieve the effectiveness of screening.

워케이션 참여자의 관광경험 고찰

This study aims to examine the concept of workation and develop a theory accordingly. Grounded theory was employed as the research methodology, and theoretical sampling was used as the sampling method. Participants in this study included Koreans who had engaged in workation activities within the past year, selected based on their level of involvement in both work and tourism activities. Data were collected from 16 individuals through two rounds of interviews conducted between September 2nd and October 13th, 2022. The analysis yielded a total of 93 concepts, 24 subcategories, and 9 categories. Workation was found to be a convergence concept that encompasses tourism, work, and daily life. Attributes that differentiate it from existing tourism include proactive, impromptu, independent, local, and daily tourism experiences.The core category emerged as 'tourism + work + everyday long-term tourism experience as a new stimulus,' leading to the formulation of the 'TWD (Tourism + Work + Daily) long-term stay theory. This study differentiates itself from prior research by departing from a binary categorization of workation as either work or tourism. Instead, it explores the concept of workation within the context of a blend of tourism, work, and daily life. Furthermore, this study holds academic significance in its revelation of the distinct characteristics of the tourism experiences associated with workation, setting them apart from conventional tourism experiences, and subsequently proposing a theory to capture these distinctions. From a political and practical perspective, this research offers valuable insights into leveraging workation to stimulate regional tourism, as evidenced by the contents of the interviews. This study is expected to make a valuable contribution to the innovative growth of the tourism industry by proactively addressing emerging social phenomena and discussing workation as a new and local tourism trend.

Pins Gene Table v2.0: An Online Genome Database of 37 Pythium insidiosum Strains for Gene Content Exploration and Phylogenomic Analysis.

Unlike most pathogenic oomycetes, Pythium insidiosum infects humans and animals instead of plants. P. insidiosum has three clinically relevant genotypes/clades that cause a severe disease called pythiosis. To develop strategies for infection control, it is necessary to understand the biology and pathogenesis of this pathogen. Investigating the evolutionary mechanisms behind the host-specific adaptation is vital, and comparative genomic analysis can help with this. To facilitate genomic analysis, an online bioinformatics tool called P. insidiosum (Pins) Gene Table v2.0 was developed. This tool includes genomic data from 37 genetically diverse P. insidiosum strains and four related species. The database contains 732,686 genes, grouped into 80,061 unique clusters and further divided into core and variable categories at genus, species, and genotype levels. A high-resolution phylogenomic relationship among P. insidiosum strains and other oomycetes was projected through hierarchical clustering and core gene analyses. 3156 P. insidiosum-specific genes were shared among all genotypes and may be responsible for causing disease in humans and animals. After comparing these species-specific genes to the MvirDB database, 112 had significant matches with 66 known virulence proteins, some of which might be involved in vascular occlusion, which is a pathological feature of pythiosis. The correlation of genotypes, geographic origins, and affected hosts of P. insidiosum suggests that clade-I strains are more specific to animals, while clade-II/III strains are more specific to humans. The clade-specific genes might link to host preference. In summary, Pins Gene Table v2.0 is a comprehensive genome database accessible to users with minimal bioinformatics experience for the analysis of P. insidiosum genomes.

Defining a balance by compromising with fear: A grounded theory study on returning to eating after a total gastrectomy.

Gastric cancer patients undergoing total gastrectomy face nutrition-related complications and worsening quality of life after surgery. In this context, gastrectomized cancer patients are required to cope with new conditions. Little is known about their accommodating feeding to the new life condition as a negotiated process among stakeholders in real contexts. This study aimed to investigate the shaping of this process as influenced by the perspectives of patients, health-care professionals (HPs), and caregivers (CGs). A constructivist grounded theory study, through semi-structured interviews and interpretative coding, was designed to answer the following research question: "what is the process of returning to eating and feeding after a gastrectomy?" The final sample included 18 participants. "Defining a balance by compromising with fear" is the core category explaining returning to eating as a process negotiated by all actors involved, with patients trying to find a feeding balance through a multi-layer compromise: with the information received by HPs, the proprioception drastically altered by gastric resection, new dietary habits to accept, and complex and often minimized conviviality. This process involves 4 main conceptual phases: relying on the doctors' advice, perceptive realignment, rearranging food intake, and food-regulated social interaction. Those categories are also shaped by the fear of being unwell from eating and the constant fear of tumor relapse. Multiple actors can meet patients' and their CGs' nutritional, care, and psychosocial needs. A multidisciplinary approach involving nutritionists, psychologists, occupational therapists, social workers, and anthropologists can be key to effectively managing these patients' survivorship care. We suggest training all the professionals on the first level of nutritional counseling.

The process of social death in patients with hip fracture

People with chronic disability and uncontrollable long-term complications following hip fracture have characterist.ics that may predispose them to social death. Continuous physical disability can have negative physical, psychological, and social consequences in these patients. To design care interventions for preventing and controlling social death, it is essential to identify the dimensions and characteristics of this process. Therefore, the present study aimed to explain the process of social death in hip fracture patients. In this study, which was conducted using a grounded theory approach, 20 patients were selected with maximum diversity and 9 professional and non-professional caregivers also through purposive sampling followed by theoretical sampling. Data were collected through semi-structured in-depth interviews, field notes, and observations. Data were analyzed using the approach proposed by Corbin and Strauss in stages including data analysis for concepts and their dimensions and characteristics, the context, process extraction, and integration of the categories. One core category and 16 main categories, which consisted of 55 subcategories and 212 primary concepts, were extracted. The results showed that the core process of social death in hip fracture is an intentional self-destruction for getting liberated from the conditions of the illness and the disrupted social life after the fracture, which ultimately leads to outcomes such as isolation-seeking and death ideations in these patients. The core category of liberating self-destruction reflects the close relationship between the context, process, and outcomes of social death. The process of social death is social, multidimensional, and complex. So far, no explanatory theory has been presented for this group of patients. Therefore, the results of this study can play an important role in designing helpful interventions for preventing, modifying, and changing the phenomenon of social death.

Romantic Love is Not Only “Romantic”: A Grounded Theory Study on Love in Romantic Relationships

With romantic love having long been studied with a focus on the romantic component and how it is expressed, little is known about what love is as a feeling in romantic relationships from the recipient’s perspective. This study aimed to understand love as a feeling in romantic relationships by analyzing open-ended responses about what makes people feel loved by their romantic partner in a college sample of 462 undergraduates (age: M = 18.93, SD = 2.86; 77.92% female) and a community sample of 75 adults (age: M = 32.36, SD = 16.53; 93.18% female) using grounded theory methodology. Findings indicated that Positive responsiveness (to needs), Authentic connection, and A sense of stability were three core elements of love in romantic relationships. By comparing these three core categories (and their underlying categories and concepts) across both samples and demographic characteristics (i.e., gender, race, and household income), this study also provided preliminary evidence on the generalizability of this three-component framework: (1) all (core) categories were overlapping across two samples, and all concepts generated in the small community sample were a subset of those generated in the large college sample; (2) all categories and core categories were overlapping across gender, race, and household income, with “positive responsiveness” being the most common component across demographics consistently. This three-component framework of romantic love is consistent with love’s multifaceted nature, serves as an initial step toward integrating existing theoretical frameworks about love, and, if replicated, would inform relationship-focused interventions.

Family caregivers’ preferences for support when caring for a family member with cancer in late palliative phase who wish to die at home – a grounded theory study

BackgroundFamily caregivers are essential in end-of-life care for cancer patients who wish to die at home. The knowledge is still limited regarding family caregivers needs and preferences for support and whether the preferences change during the patient’s illness trajectory. Therefore, the aim was to explore family caregivers’ preferences for support from home care services over time when caring for a family member with cancer at the end of life who wished to die at home.MethodsA qualitative method was applied according to Grounded Theory. Data was collected longitudinally over the illness trajectory by means of repeated individual interviews (n = 22) with adult family caregivers (n = 11). Sampling, data collection and data analysis were undertaken simultaneously in line with the constant comparative method.ResultsThe findings are captured in the core category “hold out in duty and love”. The categories “having control and readiness for action” and “being involved in care” describe the family caregivers’ preferences for being prepared and able to handle procedures, medical treatment and care, and to be involved by the healthcare personnel in the patient’s care and decision making. The categories “being seen and confirmed” and “having a respite” describe family caregivers’ preferences for support according to their own needs to be able to persevere in the situation.ConclusionDespite deterioration in the patient’s illness and the increasing responsibility family caregiver struggle to hold out and focus on being in the present. Over time together with deterioration in the patient’s illness and changes in the situation, they expressed a need for more intense and extensive support from the home care services. To meet the family caregivers’ preferences for support a systematic implementation of a person-centred care model and multicomponent psycho- educational interventions performed by nurses can be proposed. Moreover, we suggest developing a tool based on the conceptual model generated in this study to identify and map family caregivers’ needs and preferences for support. Such a tool can facilitate communication and ensure person-centred interventions.

Research collaboration with older people as a matter of scientific quality and ethics: a focus group study with researchers in ageing and health

BackgroundSociety is placing increasing demands on collaboration with actors outside the academia to be involved in the research process, and the responsibility for turning this into reality lies with the researchers. As research collaboration is a way to increase the societal relevance of research and since older people have the right to be actively involved in research that concerns them, this study is addressed to researchers who work with and for older people. The purpose of this article is to explore researchers’ experiences of research collaboration with the heterogeneous group of older people, from healthy to frail.MethodsThe focus group method was applied based on a qualitative approach that is based on a social constructivist research tradition. It differs from other qualitative methods, such as interviews, in that it encourages interaction between research participants and contributes to shedding light on a collective understanding of the world. A total of 14 researchers participated in four focus groups (three to five participants/group).ResultsThe results provided support for the overall theme: “Good scientific quality and ethics are balanced against the needs and abilities of older people”. This means a balance between the researcher and the older people collaborating with them to receive the best possible scientific quality. This is highlighted in the core category “Positioning for research collaboration” with the subcategories “Involvement or not”, “Traditional or innovative thinking” and “Selectivity or representativeness”, and the core category “Research collaboration – an ethical issue of power” with the subcategories “Research collaboration a risk for freedom of research”, “Research collaboration a risk of abuse of power” and “Discriminatory academic power structures create ethical issues”.ConclusionsAddressing the balancing act of collaborating with older people in research, the findings contribute with an understanding of the importance of researchers’ awareness of social and academic structures to minimise the risk of epistemic injustices in research on ageing and health. We want to highlight the researchers’ voice and clarify the role that researchers have in terms of the opportunities for older people to become part of the collective understanding of ageing and health and make their voices heard.