British Journal of NursingVol. 22, No. 12 CommentSupporting adherence and improving quality of life in haemophilia careKate KhairKate KhairSearch for more papers by this authorKate KhairPublished Online:27 Sep 2013https://doi.org/10.12968/bjon.2013.22.12.692AboutSectionsView articleView Full TextPDF/EPUB ToolsAdd to favoritesDownload CitationsTrack CitationsPermissions ShareShare onFacebookTwitterLinked InEmail View article References Aledort L, Bullinger M, von Mackensen S, Wasserman J, Young NL, Globe D (2012) Why should we care about quality of life in persons with haemophilia? Haemophilia 18(3): e154-7 Crossref, Medline, Google Scholar Forrester C, Bielby H, Johns S, Efford J, Khair K (2013) Potential for development of haemophilia link nurse roles within UK hospitals. Haemophilia [Epub ahead of print] Crossref, Medline, Google Scholar Khair K (2006) Managing haemophilia at home. BJHH 1:10-11 Google Scholar Khair K, Lawrence K, Butler R, O'Shea E, Christie BE (2008) Assessment of treatment practice patterns for severe haemophilia: a global nurse perspective. Acta Haematol 119(2): 115-23 Crossref, Medline, Google Scholar Khair K, Gibson F, Meerabeau L (2012) The benefits of prophylaxis: views of adolescents with severe haemophilia. Haemophilia 18(3): e286-9 Crossref, Medline, Google Scholar Khair K, Meerabeau L, Gibson F (2013) Self-management and skills acquisition in boys with haemophilia. Health Expect [Epub ahead of print] Medline, Google Scholar Lindvall K, Colstrup L, Wollter IM et al. (2006) Compliance with treatment and understanding of own disease in patients with severe and moderate haemophilia. Haemophilia 12(1): 47-51 Crossref, Medline, Google Scholar Lindvall K, Colstrup L, Loogna K, Wollter IM, Gronhaug S (2010) Knowledge of disease and adherence in adult patients with haemophilia. Haemophilia 16(4): 592-96 Medline, Google Scholar Mulders G, De Wee EM, Vahedi Nikbakht-Van De Sande MCVM et al. (2012) E-learning improves knowledge and practical skills in haemophilia patients on home treatment: a randomized controlled trial. Haemophilia 18(5): 693-8 Crossref, Medline, Google Scholar Schrijvers LH, Uitslager N, Schuurmans MJ, Fischer K (2013) Barriers and motivators of adherence to prophylactic treatment in haemophilia: a systematic review. Haemophilia 19(3): 355-61 Crossref, Medline, Google Scholar Vidler V (1999) Teaching parents advanced clinical skills. Haemophilia 5(5): 349-53 Crossref, Medline, Google Scholar FiguresReferencesRelatedDetailsCited byThe patient gene therapy journey: Findings from qualitative interviews with trial participants at one UK haemophilia centre2 May 2021 | The Journal of Haemophilia Practice, Vol. 8, No. 1Adherence to prophylaxis in adolescents and young adults with severe haemophilia: a qualitative study with healthcare professionals28 January 2020 | Health Psychology and Behavioral Medicine, Vol. 8, No. 1Adherence to prophylactic haemophilic treatment in young patients transitioning to adult care: A qualitative review28 November 2018 | Haemophilia, Vol. 24, No. 6Adherence to prophylaxis in adolescents and young adults with severe haemophilia A, a qualitative study with patients24 September 2018 | Health Psychology and Behavioral Medicine, Vol. 6, No. 1Predictors of quality of life among adolescents and young adults with a bleeding disorder7 April 2017 | Health and Quality of Life Outcomes, Vol. 15, No. 1Shared topics on the experience of people with haemophilia living in the UK and the USA and the influence of individual and contextual variables: Results from the HERO qualitative study27 January 2017 | International Journal of Qualitative Studies on Health and Well-being, Vol. 10, No. 1Pregnancy complications and obstetric care in women with inherited bleeding disorders9 October 2013 | Haemophilia, Vol. 19Adherence to treatment in adolescents with haemophilia: a qualitative study21 April 2018 | The Journal of Haemophilia Practice, Vol. 1, No. 2 26 June 2013Volume 22Issue 12ISSN (print): 0966-0461ISSN (online): 2052-2819 Metrics History Published online 27 September 2013 Published in print 26 June 2013 Information© MA Healthcare LimitedPDF download