Abstract

BackgroundVisual impairment is associated with important limitations in functioning. The International Classification of Functioning, Disability and Health (ICF) adopted by the World Health Organisation (WHO) relies on a globally accepted framework for classifying problems in functioning and the influence of contextual factors. Its comprehensive perspective, including biological, individual and social aspects of health, enables the ICF to describe the whole health experience of persons with visual impairment. The objectives of this study are (1) to analyze whether the ICF can be used to comprehensively describe the problems in functioning of persons with visual impairment and the environmental factors that influence their lives and (2) to select the ICF categories that best capture self-perceived health of persons with visual impairment.MethodsData from 105 persons with visual impairment were collected, including socio-demographic data, vision-related data, the Extended ICF Checklist and the visual analogue scale of the EuroQoL-5D, to assess self-perceived health. Descriptive statistics and a Group Lasso regression were performed. The main outcome measures were functioning defined as impairments in Body functions and Body structures, limitations in Activities and restrictions in Participation, influencing Environmental factors and self-perceived health.ResultsIn total, 120 ICF categories covering a broad range of Body functions, Body structures, aspects of Activities and Participation and Environmental factors were identified. Thirteen ICF categories that best capture self-perceived health were selected based on the Group Lasso regression. While Activities-and-Participation categories were selected most frequently, the greatest impact on self-perceived health was found in Body-functions categories. The ICF can be used as a framework to comprehensively describe the problems of persons with visual impairment and the Environmental factors which influence their lives.ConclusionsThere are plenty of ICF categories, Environmental-factors categories in particular, which are relevant to persons with visual impairment, but have hardly ever been taken into consideration in literature and visual impairment-specific patient-reported outcome measures.

Highlights

  • Visual impairment is associated with important limitations in functioning

  • Psychological distress, difficulties in activities of daily living (ADL) and low health-related quality of life have consistently been reported in persons with Visual impairment (VI) (PVI) [4,5,6,7,8,9,10]

  • For the comparison of study outcomes calculation of effect sizes or structural equation modelling, as well as mapping the outcome measures used in these studies to the International Classification of Functioning, Disability and Health (ICF) [29] can be applied

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Summary

Introduction

Visual impairment is associated with important limitations in functioning. The International Classification of Functioning, Disability and Health (ICF) adopted by the World Health Organisation (WHO) relies on a globally accepted framework for classifying problems in functioning and the influence of contextual factors. The objectives of this study are (1) to analyze whether the ICF can be used to comprehensively describe the problems in functioning of persons with visual impairment and the environmental factors that influence their lives and (2) to select the ICF categories that best capture self-perceived health of persons with visual impairment. Psychological distress, difficulties in activities of daily living (ADL) and low health-related quality of life have consistently been reported in persons with VI (PVI) [4,5,6,7,8,9,10]. To assess these limitations comprehensively the patient perspective has to be taken into account. Selected personal and environmental factors (e.g., age, gender, use of assistive devices) have often been assessed as potential confounders in intervention studies focusing on rehabilitation in PVI or in cohort studies [33]

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