Abstract
Caregivers often use the internet to access information related to stroke care to improve preparedness, thereby reducing uncertainty and enhancing the quality of care. Social media communities used by caregivers of people affected by stroke were identified using popular keywords searched for using Google. Communities were filtered based on their ability to provide support to caregivers. Data from the included communities were extracted and analysed to determine the content and level of interaction. There was a significant rise in the use of social media by caregivers of people affected by stroke. The most popular social media communities were charitable and governmental organizations with the highest user interaction-this was for topics related to stroke prevention, signs and symptoms, and caregiver self-care delivered through video-based resources. Findings show the ability of social media to support stroke caregiver needs and practices that should be considered to increase their interaction and support.
Highlights
Stroke is the leading cause of dependency and disability worldwide [1], resulting in family caregivers providing substantial care to people with stroke [2]
There was a significant rise in the use of social media by caregivers of people affected by stroke
The most popular social media communities were charitable and governmental organizations with the highest user interaction–this was for topics related to stroke prevention, signs and symptoms, and caregiver self-care delivered through video-based resources
Summary
Stroke is the leading cause of dependency and disability worldwide [1], resulting in family caregivers providing substantial care to people with stroke [2]. Generally known as informal caregivers [3] are responsible for assisting with daily activities, including mobilization, toileting, bathing, transportation, and navigating the health care system [4]. Despite their key role in care, many caregivers feel unprepared [5], leading to psychological, social, physical, and financial strains [6]. (or informal) caregivers have varying needs for education and support during the stroke care trajectory [7]. Caregivers often use the internet to access information related to stroke care to improve preparedness, thereby reducing uncertainty and enhancing the quality of care.
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