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Understanding Cancer Information Repertoires of Relatives and Patients

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Abstract
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When seeking cancer information, individuals combine various sources. To better understand multiple source use on the part of cancer patients and relatives, we examined their cancer information repertoires (CIRs) by applying the concept of media repertoires to cancer-information-seeking behaviour (CISB). We also aimed to characterise them using factors that influence CISB that have been identified in the literature. A cross-sectional online survey was conducted with 1,084 German cancer patients and their relatives via an online access panel. Based on a hierarchical cluster analysis, we identified five CIRs: expert-focused responsibility delegators, occasional online seekers, communicative allrounders, non-seekers, and safety-focused seekers. The data show that these types differed in terms of age, gender, cancer diagnosis, familial cancer risk, perceived severity, and information interest. The findings demonstrate that different subgroups prefer different combinations of sources, ranging from broad engagement to limited or targeted use. These insights are highly relevant to the design of tailored communication strategies. To effectively reach diverse audiences, cancer information efforts should combine multiple sources, including health professionals, high-quality online services, and informal networks such as family and friends.

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  • Research Article
  • Cite Count Icon 62
  • 10.1080/10810730.2016.1184358
Cancer Information Seeking and Cancer-Related Health Outcomes: A Scoping Review of the Health Information National Trends Survey Literature
  • Jul 28, 2016
  • Journal of Health Communication
  • Lisa T Wigfall + 1 more

Cancer is a leading cause of death among adults in the United States. Only 54% of U.S. adults reported seeking cancer information in 2014. Cancer information seeking has been positively associated with cancer-related health outcomes such as screening adherence. We conducted a scoping review of studies that used data from the Health Information National Trends Survey (HINTS) in order to examine cancer information seeking in depth and the relationship between cancer information seeking and cancer-related health outcomes. We searched five databases and the HINTS website. The search yielded a total of 274 article titles. After review of 114 de-duplicated titles, 66 abstracts, and 50 articles, 22 studies met inclusion criteria. Cancer information seeking was the outcome in only four studies. The other 18 studies focused on a cancer-related health outcome. Cancer beliefs, health knowledge, and information seeking experience were positive predictors of cancer information seeking. Cancer-related awareness, knowledge, beliefs, preventive behaviors, and screening adherence were higher among cancer information seekers. Results from this review can inform other research study designs and primary data collection focused on specific cancer sites or aimed at populations not represented or underrepresented in the HINTS data (e.g., minority populations, those with lower socioeconomic status).

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  • Research Article
  • Cite Count Icon 28
  • 10.2196/jmir.2007
Socioeconomic and geographic disparities in health information seeking and Internet use in Puerto Rico.
  • Jul 19, 2012
  • Journal of medical Internet research
  • Lila J Finney Rutten + 7 more

BackgroundGeographically isolated Hispanic populations, such as those living in Puerto Rico, may face unique barriers to health information access. However, little is known about health information access and health information-seeking behaviors of this population.ObjectiveTo examine differences in health and cancer information seeking among survey respondents who ever used the Internet and those who did not, and to explore sociodemographic and geographic trends.MethodsData for our analyses were from a special implementation of the Health Information National Trends Survey conducted in Puerto Rico in 2009. We collected data through random digit dialing, computer-assisted telephone interviews (N = 639). The sample was drawn from the eight geographic regions of the Puerto Rico Department of Health. To account for complex survey design and perform weighted analyses to obtain population estimates, we analyzed the data using SUDAAN. Frequencies, cross-tabulation with chi-square, and logistic regression analyses were conducted. Geographic information system maps were developed to examine geographic distributions of Internet use and information seeking.ResultsOf 639 participants, 142 (weighted percentage 32.7%) indicated that they had ever gone online to access the Internet or World Wide Web; this proportion was substantially lower than that of US mainland Hispanics who reported using the Internet (49%). While 101 of 142 (weighted percentage 59.6%) respondents who used the Web had ever sought health information, only 118 of 497 (weighted percentage 20.0%) of those who did not use the Web had sought health information. The pattern was similar for cancer information: 76 of 142 respondents (weighted percentage 47.2%) who used the Web had ever sought cancer information compared with 105 of 497 (weighted percentage 18.8%) of those who had not used the Web. These results were slightly lower but generally consistent with US mainland Hispanics’ health (50.9%) and cancer (26.4%) information seeking. Results of separate logistic regression models controlling for sociodemographic characteristics demonstrated that, compared with individuals who did not seek health or cancer information, those who did were over 5 times as likely to have used the Internet (odds ratio 5.11, P < .001). Those who sought cancer information were over twice as likely to have used the Internet (odds ratio 2.5, P < .05). The frequency of Internet use and health and cancer information seeking was higher in the San Juan metro region than in more rural areas.ConclusionsOur results contribute to the evidence base for health and cancer communication planning for Puerto Rico, and suggest that health education and outreach efforts should explore the use of available and trusted methods of dissemination such as radio and television, as well as community-based health care providers and organizations, to supplement and encourage use of the Internet as a source of health information.

  • Research Article
  • Cite Count Icon 7
  • 10.2196/45198
Intentions of Patients With Cancer and Their Relatives to Use a Live Chat on Familial Cancer Risk: Results From a Cross-Sectional Web-Based Survey
  • Aug 28, 2023
  • Journal of Medical Internet Research
  • Paula Memenga + 8 more

BackgroundAn important prerequisite for actively engaging in cancer prevention and early detection measures, which is particularly recommended in cases of familial cancer risk, is the acquisition of information. Although a lot of cancer information is available, not all social groups are equally well reached because information needs and communicative accessibility differ. Previous research has shown that a live chat service provided by health professionals could be an appropriate, low-threshold format to meet individual information needs on sensitive health topics such as familial cancer risk. An established German Cancer Information Service is currently developing such a live chat service. As it is only worthwhile if accepted by the target groups, formative evaluation is essential in the course of the chat service’s development and implementation.ObjectiveThis study aimed to explore the acceptance of a live chat on familial cancer risk by patients with cancer and their relatives (research question [RQ] 1) and examine the explanatory power of factors associated with their intentions to use such a service (RQ2). Guided by the Extended Unified Theory of Acceptance and Use of Technology (UTAUT2), we examined the explanatory power of the following UTAUT2 factors: performance expectancy, effort expectancy, social influence, facilitating conditions, and habit, supplemented by perceived information insufficiency, perceived susceptibility, perceived severity, and cancer diagnosis as additional factors related to information seeking about familial cancer.MethodsWe conducted a cross-sectional survey via a German web-based access panel in March 2022 that was stratified by age, gender, and education (N=1084). The participants are or have been diagnosed with cancer themselves (n=144) or have relatives who are or have been affected (n=990). All constructs were measured with established scales. To answer RQ1, descriptive data (mean values and distribution) were used. For RQ2, a blockwise multiple linear regression analysis was conducted.ResultsOverall, 32.7% of participants were (rather) willing, 28.9% were undecided, and 38.4% were (rather) not willing to use a live chat on familial cancer risk in the future. A multiple linear regression analysis explained 47% of the variance. It revealed that performance expectancy, social influence, habit, perceived susceptibility, and perceived severity were positively associated with the intention to use a live chat on familial cancer risk. Effort expectancy, facilitating conditions, information insufficiency, and cancer diagnosis were not related to usage intentions.ConclusionsA live chat seems promising for providing information on familial cancer risk. When promoting the service, the personal benefits should be addressed in particular. UTAUT2 is an effective theoretical framework for explaining live chat usage intentions and does not need to be extended in the context of familial cancer risk.

  • Research Article
  • Cite Count Icon 5
  • 10.1158/1538-7445.am2013-1371
Abstract 1371: The roles of cancer worry and attribution in health and cancer information seeking: An analysis of 2007 Health Information National Trends Survey (HINTS).
  • Apr 15, 2013
  • Cancer Research
  • Xiaofei He

Although cancer population is growing, very few research efforts have been devoted to understanding the impacts of cancer cognitions and emotion on both cancer information and general health information seeking behaviors among people without cancer diagnosis using a nationally representative survey. The present study drew on data from 2007 Health Information National Trends Survey and built two hierarchical logistic regression models to elucidate the differences between information seekers and non-seekers in terms of sociodemographic, cancer cognitions (controllability and locus of causation) and worry. Controllability, a motivational construct for predicting adaptive behaviors, was statistically significantly associated with cancer information seeking (OR=1.38) and general health information seeking (OR=1.67); i.e., the more the respondents thought they can do to prevent cancer, the more likely they sought information. Cancer worry, a general and normative worry about developing cancer, is statistically significantly associated with cancer information seeking (OR=0.68); i.e., the more frequent the respondents worry about getting cancer, the more likely they sought cancer information. Locus of causation, measuring whether people make internal or external attribution, was not statistically significantly associated with cancer information seeking; but people who attribute causes of cancer to their own behavior or lifestyle are more likely to seek information. Cancer information seekers are more likely to be older (OR=0.99), female (OR=0.63), Non-Hispanic White (OR=1.48), married (OR=1.06), more highly educated (OR=0.76), and with family cancer history (OR=2.16). Results for general health information seeking were presented in the following table. Results of this study are generalizable for considering how to raise public awareness of cancer prevention and allocate health educational resources. Table 1. Hierarchal Logistic Regression Models of Health Information Seeking Variable B OR 95% CI Age*** 0.013 1.013 (1.009, 1.017) Gender*** −0.546 0.579 (0.506, 0.663) Race*** Hispanic*** 1.132 3.101 (1.700, 5.657) Non-Hispanic White*** 0.743 2.101 (1.185, 3.727) Black or African American** 0.938 2.555 (1.404, 4.651) American Indian/Alaska Native*** 1.419 4.132 (1.749, 9.764) Asian*** 1.569 4.802 (2.472, 9.328) Native Hawaiian/Pacific Islander −0.356 0.701 (0.123, 3.980) Marital status*** 0.126 1.134 (1.095, 1.174) Education*** −0.462 0.630 (0.603, 0.658) Family history of Cancer*** 0.324 1.382 (1.199, 1.594) Controllability*** 0.510 1.665 (1.296, 2.139) Cancer worry −0.099 0.906 (0.648, 1.266) Locus of causation 0.138 1.148 (0.927, 1.422) Controllability.Cancer worry −0.036 0.964 (0.878, 1.059) Controllability.Locus of causation −0.050 0.951 (0.887, 1.019) Cancer worry.Locus of causation −0.042 0.959 (0.871, 1.055) Note a. Reported values are coefficients in the third block of the regression analysis Note b. * p&amp;lt;.05; ** p&amp;lt;.01; *** p&amp;lt;.001 Note c. This table contains results from the second hierarchical logistic regression model of GENERAL HEALTH information seeking with sociodemographic, cancer cognition, and emotion variables. Given the space limitation, I reported results from the first hierarchical logistic regression model (CANCER INFORMATION seeking) in the above abstract. Citation Format: Xiaofei He. The roles of cancer worry and attribution in health and cancer information seeking: An analysis of 2007 Health Information National Trends Survey (HINTS). [abstract]. In: Proceedings of the 104th Annual Meeting of the American Association for Cancer Research; 2013 Apr 6-10; Washington, DC. Philadelphia (PA): AACR; Cancer Res 2013;73(8 Suppl):Abstract nr 1371. doi:10.1158/1538-7445.AM2013-1371

  • Research Article
  • Cite Count Icon 32
  • 10.1007/s00520-009-0581-y
Cervical cancer patient information-seeking behaviors, information needs, and information sources in South Korea
  • Jan 27, 2009
  • Supportive Care in Cancer
  • Hang-In Noh + 9 more

The aim of this study was to explore the cancer information needs, utilization, and source preferences in South Korean women with cervical cancer. This was a multicenter descriptive study comprising 968 cervical cancer patients (stages 0-IVb; mean age, 55 years; response rate, 34.4% of those who agreed to participate) who had been treated from 1983 through 2004 at any of the six South Korean hospitals. The study data were obtained through a mail-in self-response questionnaire that asked about the patients' cancer information needs, cancer-information-seeking behavior, information sources, and type of information needed. It also collected data about anxiety and depression. Of the 968 cervical cancer patients, 404 (41.7%) had sought cancer information. When patients felt a need for information, their information-seeking behavior increased (overall risk = 4.053, 95% confidence interval = 2.139-7.680). Television and/or radio were the most frequently cited sources, and narratives about cancer experiences were the most easily understood forms of cancer information. More younger patients preferred booklets and pamphlets, while more older patients preferred television and radio. The most needed cancer information at the time of diagnosis and treatment involved diagnosis, stage, and prognosis while after treatment ended it involved self-care techniques. Cervical cancer patients' need of cancer information varied with age and treatment phase. These findings should help guide the development of educational materials tailored to the needs of individual patients.

  • Research Article
  • Cite Count Icon 27
  • 10.3928/24748307-20190430-01
Health Literacy Influences Men's Active and Passive Cancer Information Seeking
  • Jul 1, 2019
  • HLRP: Health Literacy Research and Practice
  • Frances J Drummond + 9 more

Background:For cancer prevention information to be effective, it must be accessible to its target populations. Prevalence of inadequate health literacy (HL) is high, but there is a dearth of information on the impact of HL on men's cancer information seeking.Objective:We investigated (1) men's cancer information seeking behaviors, (2) the effect of HL on men's cancer information seeking behavior, and (3) men's preferences for cancer information, considering their HL level. From a national perspective, we investigated men's information seeking behavior from the Irish Cancer Society (ICS), the largest provider of cancer information in Ireland.Methods:Men from adult literacy classes and men's groups were invited to complete a questionnaire. General and ICS-specific cancer information seeking behavior was investigated. Univariate and multivariate logistic regression models were conducted with “ever” seeking cancer information from any source, and actively seeking and passively acquiring ICS information as dependent variables.Key Results: Overall, 259 men completed the questionnaire and 44% had inadequate HL. About one-half of responders reported “ever” actively looking for cancer information. In the study group, 19% actively sought and 67% passively acquired ICS-specific information. In multivariate analysis, the odds of actively seeking (2.93; 95% CI [1.05, 8.15]) or passively acquiring (4.7; 95% CI [1.99, 11.05]) ICS-specific cancer information was significantly higher among those with adequate versus inadequate HL, respectively. HL was not significantly associated with odds of “ever” cancer information seeking in multivariate analysis (odds ratio 1.81; 95% CI [0.90, 3.63]). Men want information about cancer prevention. Suggested future cancer information sources differed by HL levels. General practitioners and the Internet were the preferred source for men with inadequate (53.3%) and adequate HL (57%), respectively.Conclusions:Men both passively acquire and actively seek cancer prevention information. Multimodal dissemination of cancer prevention information is necessary to reach a wide cross-section of men, including those with inadequate HL. This could potentially lower men's cancer burden and reduce gender inequalities in cancer mortality. [HLRP: Health Literacy Research and Practice. 2019;3(3):e147–e160.]Plain Language Summary: Most men get cancer prevention information by coming across it passively in their daily lives, instead of actively looking for this information. Men with low health literacy are less likely to obtain cancer information both passively and actively. Men want this information. Organizations need to make this information available in many places and formats (e.g., Internet, doctor, television, sports clubs).

  • Book Chapter
  • Cite Count Icon 3
  • 10.3233/978-1-61499-415-2-401
Cancer Information Seeking Behaviors and Information Needs among Korean Americans
  • Jan 1, 2014
  • Park Hyejin + 1 more

Linguistically and culturally isolated Korean Americans have less access to health service and cancer screening tests than all U.S population. Lack of adequate cancer information is one of the barriers to undergoing cancer screening tests. It is necessary to understand their current cancer information-seeking behaviors and information needs if we are to more effectively provide adequate cancer information. The purpose of the study was to identify cancer information seeking behaviors and information needs among Korean Americans. Data were collected from one of the biggest websites for the Korean community in the USA. A total of 273 free-texts from January to June 2013 were reviewed and analyzed for this study. The extracted terms were categorized based on the coding system. The primary reason for asking questions was inquiry followed by sharing experiences. The main topics of the postings were categorized as medical or non-medical. In relation to types of cancer, breast cancer was the greatest concern. The findings from this study can help in establishing more effective strategies to provide better cancer information among Korean Americans by assessing their current cancer information seeking trends and information needs.

  • Research Article
  • 10.1200/jgo.18.14800
Reaching Out to Public Libraries to Help Reduce Cancer Information Disparity
  • Oct 1, 2018
  • Journal of Global Oncology
  • C Yamaki + 4 more

In light of growing interest in people taking more proactive roles in managing the course of long term illnesses, ensuring ready access to cancer information supporting programs has become one of the paramount mandates, for many national cancer control programs. In Japan, the Center for Cancer Control and Information Services, a division of the National Cancer Center Japan (NCC-CIS), is tasked with dissemination of reliable and comprehensive cancer information for all citizens including patients and their families. NCC-CIS compiled cancer information has long been delivered via both dedicated portal “Ganjoho (Cancer Information) Service” ( https://ganjoho.jp ) as well as brochures. As majority of cancer patients and their carers tend to be seniors who are not net-savvy, the portal has its limitations as dissemination channel. A more personalized support is provided by a nationwide network of Cancer Information and Support Centers (CISCs), collocated within 434 state-designated cancer hospitals. CISCs offer both information and counseling support to anyone who has cancer related issues, even if they have never been treated at the given facility. While CISC is a public service, subsidized with national and prefectural funding, many of those in need, remain unaware of the CISCs - at least in part, due to its very location, within a hectic acute care settings. To reach a wider audience, NCC-CIS and CISCs have started to collaborate with public libraries which have traditionally been a neighborhood source of reference information for both the young and old, and clearly more approachable than medical professionals in large hospitals. We have begun by disseminating a “starter-kit” of NCC-CIS publications to public libraries that have signed up with “Cancer Information Gift” project, a donor funded effort launched last summer. To date, almost 60 libraries have taken up this opportunity to either launch a new “Cancer Information Corner”. We have also brought the participating libraries and local CISCs together in regional workshops settings, to explore ways to mutually complement the information services offered by both parties. Collaborative initiatives that have come out of such explorations include “Book Talk on Disease in Library”, an interactive session in relaxed settings, where participants can feel more at ease, raising a wide range of personal concerns, around an issue highlighted in a given book, with both librarians and cancer counselors mediating the discussion. Referrals to CISCs from libraries are also beginning though in low volumes. While the “Cancer Information Gift” project, and its related initiatives are still very much at a nascent stage, we believe this collaboration could potentially go a lot further, to make reliable cancer information (and CISCs) more accessible to a wider segment of those in need, and in the process, help reduce the cancer disparity across the nation.

  • Research Article
  • 10.1158/1538-7755.disp18-a012
Abstract A012: Differences of trust in cancer information from various sources among Hispanic adults in the United States: Analysis of the 2014 HINTS
  • Jun 1, 2020
  • Cancer Epidemiology, Biomarkers &amp; Prevention
  • Marlene Camacho-Rivera + 2 more

Introduction: Across all racial and ethnic groups, recent evidence has demonstrated a widespread adoption of potential eHealth/mHealth tools such as smartphones and social media and networking sites, which can be leveraged to reduce cancer disparities. However, Hispanics are significantly less likely than other racial and ethnic minority groups to seek cancer information; further, those who have sought cancer information experience mistrust and lack confidence in their ability to accurately seek information. Our study aimed to identify social and demographic patterns of cancer information seeking among Hispanic ethnic groups, as well as differences in trust of various sources of cancer information. Methods: Data from the 2014 Health Information National Trends Survey (HINTS) 4, Cycles 2 and 4 were used; a total of 1051 Hispanic participants were included in the analytic sample. Primary predictor was Hispanic ethnicity, categorized as Mexican American, Cuban or Puerto Rican, and other. Primary outcomes were trust in various cancer information sources (e.g., doctor, family or friends, media sources, internet, health agencies/organizations, and religious organizations). Ordinal outcome variables were dichotomized due to nonproportional odds into low levels of trust and high levels of trust. We analyzed the data using multivariable logistic regression, adjusting for social demographic characteristics (e.g., age, nativity, socioeconomic status, cancer history, and smoking). Results: In fully adjusted models, women were 70% more likely to trust cancer information from family or friends, and newspapers or magazines, compared to men. Compared to younger Hispanics, those ages 65 and older were twice more likely to trust cancer information from religious organizations (ages 65-74 OR = 2.19, 95% CI 1.06-4.53; &amp;gt; 75 OR = 2.59, 95% CI 1.08-6.21), as well as family or friends (ages 50-64 OR = 1.90, 95% CI 1.06-3.42; ages 65-74 OR = 2.14, 95% CI 1.07-4.27; &amp;gt; 75 OR = 2.60, 95% CI 1.17-6.04). Interestingly, the oldest Hispanic participants were 3 times more likely to trust cancer information from the Internet. Hispanics without family history of cancer were 2.7 times more likely to trust cancer information from doctors, compared to those with a family history. There were no ethnic subgroup differences in trust of cancer information source. Conclusions: As Hispanics age, trust in cancer information from nonmedical sources, such as family, internet, and faith-based organizations, increased. As no differences between ethnic subgroups were observed, cancer information through various sources may not need to be further tailored to specific subgroups. As the availability of cancer information has become more widespread from technological advancements, health care and public educational approaches should increasingly include family and friends, as well as religious organizations, to ensure accuracy of cancer information and messaging. Citation Format: Marlene Camacho-Rivera, Jason Morency, Rose Saint Fleur-Calixte. Differences of trust in cancer information from various sources among Hispanic adults in the United States: Analysis of the 2014 HINTS [abstract]. In: Proceedings of the Eleventh AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2018 Nov 2-5; New Orleans, LA. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2020;29(6 Suppl):Abstract nr A012.

  • Research Article
  • Cite Count Icon 41
  • 10.1007/s13187-010-0191-x
Cancer Information Seeking and Awareness of Cancer Information Sources among Korean Americans
  • Jan 6, 2011
  • Journal of Cancer Education
  • Kyeung Mi Oh + 3 more

Many Korean Americans (KAs) suffer high cancer incidence levels and have low cancer screening rates. A significant number of KAs lack adequate information about cancer screening tests. However, little is known about the health information seeking behaviors of KAs. This study examines the types of cancer information searched for, the cancer information seeking experiences, and the awareness of major cancer information sources, such as the National Cancer Institutes (NCI) and the NCI's Cancer Information Service, among KAs. It also examines associations with demographic characteristics and media use influencing variations in the awareness of cancer information sources. Data for this study were gathered with a cross-sectional, community-based survey (254 KAs). The survey results indicated that KA's involvement in cancer information seeking is relatively low, and they have somewhat negative experiences in seeking cancer information. In addition, their awareness of cancer information sources was limited. Despite of the heavy use of Korean ethnic media, it did not connect to cancer information source awareness. Rather, use of US mainstream media was significantly related with awareness. Campaigns using the Korean language through partnerships with Korean ethnic media to inform KAs about credible sources of health information appear to be warranted by our findings.

  • Research Article
  • 10.1177/09610006251363633
Bridging cancer information scanning, seeking, and cancer-preventive behaviors: Testing the extended comprehensive model of information seeking
  • Sep 11, 2025
  • Journal of Librarianship and Information Science
  • Qianying Ma + 3 more

An increasing number of Chinese individuals rely on social media, particularly WeChat, to acquire cancer-related health information through active information-seeking and less active information-scanning behaviors. These behaviors have been shown to influence individuals’ health perceptions and practices. Therefore, understanding the determinants of the Chinese public’s cancer-related health information-seeking and -scanning behaviors on WeChat, as well as their behavioral outcomes, is essential. In response, this study applies the Comprehensive Model of Information Seeking (CMIS) to examine the antecedents, interrelationships, and behavioral outcomes of cancer information-seeking and scanning behaviors on WeChat. A cross-sectional online survey of 1478 WeChat users aged 18–69 was conducted between December 20 and 24, 2023. Structural equation modeling (SEM) analysis revealed that perceived susceptibility, perceived credibility, and perceived utility were positively associated with WeChat users’ information-scanning and -seeking behaviors, whereas perceived severity had a negative effect. WeChat self-efficacy was not significantly associated with either behavior. Additionally, individuals who frequently scanned cancer information were more likely to engage in information-seeking behavior, and both behaviors were positively associated with cancer-preventive behaviors. This study extends the CMIS framework to a non-Western social media context by examining cancer information-scanning and -seeking behaviors on WeChat, thereby strengthening its applicability to digital health information behaviors. The findings provide practical implications for health practitioners and library and information science professionals in designing more effective cancer communication and information services tailored to WeChat’s media ecosystem.

  • Research Article
  • Cite Count Icon 35
  • 10.1007/s13187-010-0174-y
A Qualitative Study of Cancer Information Seeking Among English-as-a-Second-Language Older Chinese Immigrant Women to Canada: Sources, Barriers, and Strategies
  • Oct 27, 2010
  • Journal of Cancer Education
  • Laura Todd + 1 more

Little is known about the cancer information seeking experiences of Chinese immigrants despite reported disparities in cancer burden and use of cancer screening. This research used semi-structured interviews to the explore cancer information seeking preferences and experiences of 50 English-as-a-second-language older Chinese immigrant women to Canada with different levels of health literacy. Directed content analysis was used to identify three main themes: sources of cancer information, barriers to cancer information seeking, and strategies used during information seeking. Health literacy did not distinguish the women on any of the major themes. The women expressed strong preferences for interpersonal and interactive cancer information from their physician and trusted others, such as friends and family. Barriers to cancer information seeking included language difficulties and limited time with physicians. The results emphasize the need for cancer information that reinforces cultural norms, language familiarity, and other values specific to cultural identities, such as interpersonally oriented values.

  • Research Article
  • Cite Count Icon 25
  • 10.2147/cmar.s259849
Information Seeking Behavior About Cancer and Associated Factors Among University Students, Ethiopia: A Cross-Sectional Study
  • Jun 22, 2020
  • Cancer Management and Research
  • Adugna Gedefaw + 2 more

IntroductionCancer is among the leading cause of death in sub-Saharan Africa over the last few years, putting a tremendous physical, emotional, and financial strain on individuals, families, and health systems. Many health systems in sub-Saharan Africa are least prepared to manage this burden, and a large number of individuals do not have access to quality cancer-related information to prevent and manage cancer. Understanding the information seeking behavior of individuals, especially university students who are more likely to seek health information than other people, can be seen as an opportunity to provide resources to improve lifestyle or prevent possible health-threatening behaviors of individuals.ObjectiveThis study aimed to assess cancer information seeking behavior (CISB) and its associated factors among students in Debre Tabor University, Ethiopia.MethodsAn institution-based cross-sectional study design was conducted among students at Debre Tabor University from March 01 to March 30, 2019. A total of 844 students were selected using a multistage stratified sampling technique. Data were collected using a structured and pre-tested questionnaire by trained data collectors. Data entry and analyses were performed using Epi info version 7.2 and SPSS version 20, respectively. Descriptive and inferential statistics were used to explore the socio-demographic information and cancer information seeking behavior. Binary logistic regression was used to identify factors associated with cancer information seeking.ResultsThe proportion of cancer information seeking by students in the past 12 months was 30.1%. Their preferred source of information about cancer was health-care providers (48%) followed by the Internet (27.6%). Year of study, Internet access (AOR=6.07, 95% CI= 4.05, 9.10), health literacy level (AOR=1.8, 95% CI=1.21, 2.68), self-reported health condition (AOR=1.85, 95% CI=1.25, 2.73), perceived susceptibility to cancer (AOR=2.48, 95% CI=1.47, 4.2), and perceived severity of cancer (AOR=3.33, 95% CI=1.85, 6.0) were the factors associated with cancer information seeking.ConclusionThe proportion of cancer information seeking among university students was low. Being 3rd- and 4th-year student, internet access, being healthy, adequate health literacy level, concerning about cancer, and higher perceived severity of cancer were significantly associated with cancer information seeking. Increase health literacy and awareness creation about cancer for students will help to seek cancer information.

  • Research Article
  • Cite Count Icon 53
  • 10.1080/10410236.2021.1901422
Cultural Differences in Cancer Information Acquisition: Cancer Risk Perceptions, Fatalistic Beliefs, and Worry as Predictors of Cancer Information Seeking and Avoidance in the U.S. and China
  • Mar 24, 2021
  • Health Communication
  • Linqi Lu + 2 more

Cancer is one of the most common causes of death in China and the United States. Past studies found that cancer risk perceptions, fatalistic beliefs, and worry were prominent predictors of health-related behaviors. Perceived cancer risks, fatalistic beliefs, and worry were associated with cancer information acquisition in the United States. However, little is known about whether these factors played comparable roles in China. This study investigates the psychological antecedents of cancer information acquisition using data from Health Information National Trends Surveys (HINTS) in both countries. Results showed that cancer worry was negatively related to cancer information avoidance in the U.S. but positively related to information avoidance in China. Also, whereas cancer fatalistic beliefs were negatively associated with cancer information seeking in the U.S., the relationships between fatalistic beliefs and cancer information seeking exhibited more complex patterns in China. Implications for cancer communication in different cultures are discussed.

  • Research Article
  • Cite Count Icon 5
  • 10.2196/63403
Technological-Based Interventions in Cancer and Factors Associated With the Use of Mobile Digital Wellness and Health Apps Among Cancer Information Seekers: Cross-Sectional Study.
  • Feb 5, 2025
  • Journal of medical Internet research
  • Ogochukwu Juliet Ezeigwe + 9 more

Mobile digital wellness and health apps play a significant role in optimizing health and aiding in cancer management and decision-making. This study aims to identify the factors influencing the use of mobile health and wellness apps among cancer information seekers in the United States. We conducted a cross-sectional study using data from the Health Information National Trends Survey. Our analysis focused on 4770 participants who sought cancer information. We performed weighted univariate and multivariable logistic regression to determine the association between the use of health and wellness apps and socioeconomic factors, medical history and conditions, and lifestyle and behavioral factors. A total of 4770 participants who sought cancer information were included in the final analysis. Of these, 80.9% (n=2705) were health and wellness app users, while 19.1% (n=793) were nonusers. In the final adjusted model, participants with household incomes ≥US $50,000 had 49% higher adjusted odds of using these apps than those with incomes <US $50,000 (adjusted odds ratio [aOR]=1.49, 95% CI 1.02-2.14). College graduates and those with higher educational levels were avid users compared to those with a high school diploma or less (aOR=1.87, 95% CI 1.30-2.67). Internet users had over 3 times the odds of using these apps compared to nonusers (aOR=3.28, 95% CI 1.70-6.33). Participants within the age group 18-34 years were 3.70 times more likely (aOR=3.70, 95% CI 1.90-7.23) to use a health and wellness app compared to participants within the age group of 75 years and older. Age, education, household income, and use of the internet are the major determinants of the adoption of digital health and wellness apps among seekers of cancer information. Hence, public health programs could be directed toward addressing these factors to improve cancer diagnosis, treatment, and management using these apps.

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