\u201cData is the new oil\u201d: citizen science and informed consent in an era of researchers handling of an economically valuable resource

A few weeks ago, we published an editorial discussion on whether artificial intelligence applications should be authors of academic articles [1] . We were delighted to receive more than one interesting reply letter to this editorial in a short time [2, 3] . We hope that opinions on this

Participatory research methods increase the quality and relevance of a study and are a key element of community practice. However, participatory methods can be difficult to employ at the outset of a research study with vulnerable, hard-to-reach populations. Intimate partner violence survivors are a particularly vulnerable population who are at increased risk of experiencing abuse-related trauma and have distinct safety-related needs. In order to engage survivor populations, researchers can employ survivor-centered, trauma-informed approaches to build trust and develop relationships that facilitate increased engagement in the research process over time. This paper outlines the methods and strategies that academic partners used to establish, increase, and maintain participatory engagement with women who experienced harm by intimate partners. The process began with a community-based, qualitative needs assessment study for survivors whose partners were in a relationship violence intervention program. In addition to responding to specific aims, this study simultaneously helped to create a pool of potential collaborators. Academic partners used member checking to establish trustworthiness of the study findings and introduce the participants to the concepts of participatory engagement. Next, researchers established an advisory group to develop practice recommendations, which ultimately led to academic and community partners co-designing a community-based dissemination project. We discuss successes and tensions inherent in the engagement process, important lessons learned, and provide recommendations for future community practice.

From mobile phones and laptop computers to in vitro fertilization and social networks on the Internet, technological devices, products and services are increasingly shaping the lives of people around the world. The pervasiveness of technology and the underlying science that makes it possible has led to a certain ambivalence: most people trust that ‘science’ will eventually help them to live longer, healthier and happier lives. However, they also feel increasingly uncomfortable about certain new technologies, often those that challenge or improve on ‘nature’. Genetically modified crops, gene therapy, stem cell research, cloning, renewed interest in nuclear power: the list of controversial topics involving science and technology is growing steadily and debates on these topics regularly occupy centre stage in public and political arenas. > …the research process itself constitutes a largely overlooked opportunity for addressing social concerns Policy‐makers have responded by calling for increased attention to be paid to the ethical, legal and social aspects of scientific research and technological developments. In particular, new and emerging areas of research—such as genomics, synthetic biology and nanotechnology—have been accompanied by studies of their broader societal implications as well as public‐engagement efforts, in order to guide research and development in ways that respect societal concerns. Such attempts to shape technological trajectories have traditionally occurred both before scientific research, for example, through research policy, technology assessment or public participation, and afterwards, through regulations or market mechanisms. Although these stages are crucial points at which to intervene, the research process itself constitutes a largely overlooked opportunity for addressing social concerns. Indeed, if one acknowledges the central role that scientific research has in the innovation process, this is an area well worth examining. Shaping technological trajectories will, at some point, include shaping the very research processes that help to characterize them (Fisher et al , 2006). Social and …

The Toy Brick as a Communicative Device for Amplifying Children’s Voices in Research

BackgroundGetting research into policy and practice in healthcare is a recognised, world-wide concern. As an attempt to bridge the gap between research and practice, research funders are requesting more interdisciplinary and collaborative research, while actual experiences of such processes have been less studied. Accordingly, the purpose of this study was to gain more knowledge on the interdisciplinary, collaborative and partnership research process by investigating researchers’ experiences of and approaches to the process, based on their participation in an inventive national research programme. The programme aimed to boost collaborative and partnership research and build learning structures, while improving ways to lead, manage and develop practices in Swedish health and social services.MethodsInterviews conducted with project leaders and/or lead researchers and documentation from 20 projects were analysed using directed and conventional content analysis.ResultsCollaborative approaches were achieved by design, e.g. action research, or by involving practitioners from several levels of the healthcare system in various parts of the research process. The use of dual roles as researcher/clinician or practitioner/PhD student or the use of education designed especially for practitioners or ‘student researchers’ were other approaches. The collaborative process constituted the area for the main lessons learned as well as the main problems. Difficulties concerned handling complexity and conflicts between different expectations and demands in the practitioner’s and researcher’s contexts, and dealing with human resource issues and group interactions when forming collaborative and interdisciplinary research teams. The handling of such challenges required time, resources, knowledge, interactive learning and skilled project management.ConclusionsCollaborative approaches are important in the study of complex phenomena. Results from this study show that allocated time, arenas for interactions and skills in project management and communication are needed during research collaboration to ensure support and build trust and understanding with involved practitioners at several levels in the healthcare system. For researchers, dealing with this complexity takes time and energy from the scientific process. For practitioners, this puts demands on understanding a research process and how it fits with on-going organisational agendas and activities and allocating time. Some of the identified factors may be overlooked by funders and involved stakeholders when designing, performing and evaluating interdisciplinary, collaborative and partnership research.

The field of early foreign language learning research has witnessed an increasing trend to employ participatory methods, stemming from a paradigm shift in how children are viewed in research. In contrast to more traditional approaches that place children as the objects of research, children are considered active agents and participants in research with expert knowledge of their own lives. In this paper I discuss the ethical tensions that surfaced prior, during, and after a research project that employed participatory methods with young children. I reflect on how the methodology broadened understanding of emerging power differences in the researcher–participant relationship, such as how asymmetry in knowledge and participation alternate and manifest during a longitudinal project, engaging the researcher and the children in recurring negotiation of roles and power. While ethical considerations are often presented as a checklist with do's and don't’s for how to proceed, with this article I draw on experiences from my own project and aim to dismantle the complex and messy picture of the ethical process in research with young children. I argue that while the application of participatory methods in early foreign language learning research alleviates ethical tensions to an extent, such as by helping reduce epistemic and institutional power between the researcher and the participants, it is essential to report and reflect on the ethical weighing and reflection undertaken throughout the study as unequal power structures will remain regardless of method.

Participatory research (PR) encompasses research designs, methods, and frameworks that use systematic inquiry in direct collaboration with those affected by an issue being studied for the purpose of action or change. PR engages those who are not necessarily trained in research but belong to or represent the interests of the people who are the focus of the research. Researchers utilizing a PR approach often choose research methods and tools that can be conducted in a participatory, democratic manner that values genuine and meaningful participation in the research process. This article serves as an introduction to participatory research methods, including an overview of participatory research, terminology across disciplines, elements that make a research method participatory, and a model detailing the choice points that require decisions about which tools and methods will produce the desired level of participation at each stage of the research process. Intentional choices of participatory research methods, tools, and processes can help researchers to more meaningfully engage stakeholders and communities in research, which in turn has the potential to create relevant, meaningful research findings translated to action.

The article highlights the promising ways of providing access to cloud-based platforms and tools to support collaborative learning and research processes. It is emphasized that the implementation of cloud computing services is a promising trend in the development of modern ICT pedagogical systems. The concept of cloud-based open learning and research platform is considered. The benchmarking studies of using ICT tools for learning and research within the pedagogical systems of higher education are fulfilled. The analysis and evaluation of the existing experience of using different types of software packages to support learning and research processes within the cloud-based environment are proposed. The issues of integration of knowledge-based services, language technologies and database network services within the open systems of learning and research are covered. A model of the cloud-based open learning and research collaborative environment involving the use of cloud-based components based on AWS virtual desktop, IBM Box, WPadV4 and other tools is substantiated. The reasonable ways of tools selection are considered and the prospects for their use within the cloud-based open learning and research platform in pedagogical systems of higher education are described. The research methods are the analysis of official international documents, publications on the subject of the research, observation, comparison, the analysis of the experience of using educational and scientific network packages, application of cloud technologies, benchmarking studies and experimental studies. Conclusions and recommendations encompass the application of cloud-based open learning and research technologies covering research platforms, scientific and educational network packages, and also cloud services for collecting, submitting and processing data as a promising trend in the development and modernization of the educational environment of higher education institutions and collaborative research.

Measuring the impact of user participation in agricultural and natural resource management research

In January 2010, the University of Minnesota, along with academic and industry project partners, began work on a four year project to establish new facilities and research in strategic areas of wind energy necessary to move the nation towards a goal of 20% wind energy by 2030. The project was funded by the U.S. Department of Energy with funds made available through the American Recovery and Reinvestment Act of 2009. $7.9M of funds were provided by DOE and $3.1M was provided through matching funds. The project was organized into three Project Areas. Project Area 1 focused on design and development of a utility scale wind energy research facility to support research and innovation. The project commissioned the Eolos Wind Research Field Station in November of 2011. The site, located 20 miles from St. Paul, MN operates a 2.5MW Clipper Liberty C-96 wind turbine, a 130-ft tall sensored meteorological tower and a robust sensor and data acquisition network. The site is operational and will continue to serve as a site for innovation in wind energy for the next 15 years. Project Areas 2 involved research on six distinct research projects critical to the 20% Wind Energy by 2030 goals. The research collaborations involved faculty from two universities, over nine industry partners and two national laboratories. Research outcomes include new knowledge, patents, journal articles, technology advancements, new computational models and establishment of new collaborative relationships between university and industry. Project Area 3 focused on developing educational opportunities in wind energy for engineering and science students. The primary outcome is establishment of a new graduate level course at the University of Minnesota called Wind Engineering Essentials. The seminar style course provides a comprehensive analysis of wind energy technology, economics, and operation. The course is highly successful and will continue to be offered at the University. The vision of U.S. DOE to establish unique, open-access research facilities and creation of university-industry research collaborations in wind energy were achieved through this project. The University of Minnesota, through the establishment of the Eolos Wind Energy Consortium and the Eolos Wind Research Field Station continue to develop new research collaborations with industry partners.

Environmental health research is gaining interest due to the global concern of environmental factors impacting health. This research is often multifaceted and becomes complex when trying to understand the participation of multiple environmental variables. It requires the combination of innovative research methods, as well as the collaboration of diverse disciplines in the research process. The application of collaborative approaches is often challenging for interdisciplinary teams, and much can be learned from in-depth observation of such processes. We share here a case report describing initial observations and reflections on the collaborative research process of the Data Mining and Neonatal Outcomes (DoMiNO) project (2013–2018), which aimed to explore associations between mixtures of air pollutants and other environmental variables with adverse birth outcomes by using an innovative data mining approach. The project was built on interdisciplinary and user knowledge participation with embedded evaluation framework of its collaborative process. We describe the collaborative process, the benefits and challenges encountered, and provide insights from our experience. We identified that interdisciplinary research requires time and investment in building relationships, continuous learning, and engagement to build bridges between disciplines towards co-production, discovery, and knowledge translation. Learning from interdisciplinary collaborative research experiences can facilitate future research in the challenging field of environmental health.

In this research project, three researchers from three different research backgrounds and academic disciplines drew on Bhabha's third space theory to reflect on their experience conducting collaborative research. The collaborative research process created a third space where the researchers were able to share their perspectives and challenge ideas to achieve consensus. Utilising a critical narrative inquiry approach, the researchers shared their experiences of working with each other in a collaborative research project. They sought to explore: 1) How do three different perspectives of research contribute to the research process? 2) What does the collaborative research practice look like? 3) How can this process contribute to new positions in qualitative research? Narratives were analysed using a cross-case thematic analysis. The findings revealed that the research process was not linear and prescriptive but more so a descriptive process, which created a space for new understandings about collaborative research to emerge.

Participatory video methodology provides a powerful approach for conducting observational research in education, especially when physical access to learning environments is restricted. This study presents a reflexive account of a multi-site, remote video research initiative during the COVID-19 pandemic. Conducted across 19 classrooms in 9 countries in Africa, Asia, and Europe, it highlights how primary school educators foster twenty-first century skills. We detail the affordances and challenges of implementing participatory video research in diverse educational settings, addressing both methodological and practical aspects encountered. We also offer practical solutions for supporting empowered, equitable, and ethical data collection. Central to our approach was fostering teacher autonomy by enabling educators to document and reflect on classroom practices through participatory methods. We introduce the concept of participation equity to capture the nuanced efforts to ensure fair representation of diverse voices in the research process. Additionally, we address distinctive ethical considerations emerging from remote video data collection. These methodological insights have both policy relevance and implications for practice, particularly for educators, school leaders, and researchers adopting participatory video methods in diverse or resource-constrained contexts. As technology advances, safeguarding the rights of educational stakeholders while using digital tools remains a critical concern.

BackgroundCodesign is increasingly valued in health research as a way to actively include stakeholders in the research process, particularly for groups that have been historically excluded, such as young people. Despite its popularity, codesign is often inconsistently defined in literature. This creates challenges for applying it consistently across research projects and for evaluating its effectiveness. To address this definitional ambiguity, we conducted a scoping review to examine and clarify the concept of codesign in research with young people in the health and social sciences.MethodsThis scoping review drew on methodological guidance from JBI. Searches were conducted in Proquest, Scopus, Informit and Science Direct for relevant peer-reviewed publications for the period of January 2003–August 2023. Publications were included if they used the term codesign and/or related participatory research methods with young people aged 15–24 years. Screening, full-text review and data extraction were completed by two independent reviewers. Qualitative synthesis was used to identify definitions.ResultsThe search yielded 1334 publications, with 49 meeting the inclusion criteria. Publications varied with respect to the age range of included young people and focused on a variety of populations, including young people with mental ill-health or with disabilities, First Nations youth and young people involved with specific services or programs. In analysing the way codesign was described, we found considerable variation, with most studies using multiple terms to refer to their methods. Common terms included coproduction (n = 21), coresearch (n = 15), participatory research (n = 10), codesign (n = 9) and participatory action research (n = 7).ConclusionsMany different terms were used to describe codesign research with young people. Codesign was used and operationalized in a myriad of ways and overlapped with methods taken in other participatory approaches. This overlap may reflect the so-called blending of approaches in practice, highlighting the need to tailor different collaborative approaches to specific research projects, processes and participants. Ultimately, the ambiguity and overlap of terms describing collaborative methods such as codesign may matter less than the need for researchers to be transparent about their methods, their understanding of the terms and approaches they are using in research and their justification for undertaking collaborative research.

A team of researchers undertook a collaborative qualitative study to explore beginning dietitians' life experiences and the meaning ascribed to those experiences in the context of dietetic practice. Data were collected using Seidman's three-step in-depth phenomenological interviewing method with 12 beginning dietitians who were graduates of the three participating dietetic programs. We outline the collaborative research process and highlight a writing and data analysis technique described as the collaborative retreat, a face-to-face, two-day gathering that facilitated the researchers' collective decision-making and organization, discussion, and analysis of this complex qualitative data set. Use of a listening guide aided researchers' understanding and interpretation of participant voices. Researchers concluded that the overall collaborative qualitative research process was positive and self-fulfilling, and that it resulted in multiple benefits for them individually and the research project collectively. Researchers were able to work through methodological and theoretical issues as these arose, with the assistance of technology, writing, listening, and dialogue. Relationship building and relationship maintenance emerged as factors critical to the success of the research process. Collaborative research teams that are committed to listening, writing, and dialogue will find that the collaborative retreat can be a productive site of knowledge generation and mentorship.