Abstract
BackgroundPatient Reported Outcome Measures (PROMs) are questionnaires that could be used in palliative care (PC) to evaluate patient well-being and monitor their care. PROMs enable a focus on what is important to patients by putting the patient at the center of care. Adapting an existing PROM requires considering cultural differences, general usability and understandability of translated terms.AimTo translate and culturally adapt both the patient and staff three and seven day versions of the Integrated Palliative care Outcome Scale (IPOS) into Estonian. The IPOS consist of 10 questions (staff versions 9 questions) and 17 close ended items. The sub aim is to describe the differences and discrepancies found during the adaptation process and compare the results with previous research.MethodsThe translation and adaptation process of IPOS was conducted using recommended guidelines consisting of six phases and included cognitive interviews with patients (n = 11) and palliative care multidisciplinary team members (n = 8). The study was conducted in two major Estonian hospitals.ResultsThe Estonian IPOS demonstrated face and content validity, acceptance by patients and staff. As a result of expert group review and cognitive interviews with patients and staff, 9 semantic changes were implemented.ConclusionsPatient and staff versions of the IPOS with a recall of 3 or 7 days were translated and culturally adapted for Estonia. The Estonian IPOS four versions are ready for use in Estonia.
Highlights
Patient Reported Outcome Measures (PROMs) are questionnaires that could be used in palliative care (PC) to evaluate patient well-being and monitor their care
The Estonian Integrated Palliative care Outcome Scale (IPOS) four versions are ready for use in Estonia
Studies conducted so far have indicated that the forward translation-back translation method in conjunction with cognitive interviews is sufficient for producing a content valid measure that can be successfully used in clinical practice [6, 13, 15, 20]
Summary
Patient Reported Outcome Measures (PROMs) are questionnaires that could be used in palliative care (PC) to evaluate patient well-being and monitor their care. Palliative care (PC) is an approach with the main goal to improve the health related quality of life (HRQL) of patients and their families in situations with a lifethreatening illness by ensuring physical comfort with timely treatment of pain, and relief from other sensitive areas such as psychosocial and spiritual satisfaction and well-being [1]. Assessing HRQL patient-centred outcomes (i.e. asking patients to assess their physical, social, psychological and spiritual condition) is one of the only ways to research and ensure effective and best possible PC [2]. Measures used in PC should be multidimensional and provide an overview of the physical symptomatology (pain, drowsiness, etc.) and the psychological, social and spiritual condition of the patient [2, 3]
Sign-in/Register to view highlights & summary Talk to us
Join us for a 30 min session where you can share your feedback and ask us any queries you have
Schedule a callDisclaimer: All third-party content on this website/platform is and will remain the property of their respective owners and is provided on "as is" basis without any warranties, express or implied. Use of third-party content does not indicate any affiliation, sponsorship with or endorsement by them. Any references to third-party content is to identify the corresponding services and shall be considered fair use under The CopyrightLaw.
