Abstract
In this article, we consider the possible application of the European General Data Protection Regulation (GDPR) to “citizen scientist”-led health research with mobile devices. We argue that the GDPR likely does cover this activity, depending on the specific context and the territorial scope. Remaining open questions that result from our analysis lead us to call for a lex specialis that would provide greater clarity and certainty regarding the processing of health data for research purposes, including by these non-traditional researchers.
Highlights
The EU’s General Data Protection Regulation 2016/679 (GDPR),[1] which went into effect on May 25, 2018, governs the processing of personal data in Europe and promotes responsible data processing for a range of legitimate purposes.[2]
We explored whether the GDPR applies to citizen scientist-led health research with mobile devices
The analysis above shows that, depending on the territorial scope, citizen scientistled health research with mobile devices is likely to be covered by the GDPR
Summary
The EU’s General Data Protection Regulation 2016/679 (GDPR),[1] which went into effect on May 25, 2018, governs the processing of personal data in Europe and promotes responsible data processing for a range of legitimate purposes.[2]. Funding, if it exists at all, comes from private sources such as personal savings and crowdfunding. Data processor: A natural or legal person, public authority, agency, or other body which processes personal data on behalf of the data controller
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