THE ROLE OF THE FAMILY IN FULFILLING THE SPIRITUAL NEEDS OF THE ELDERLY IN RT 021/ RW 009 SAKO VILLAGE PALEMBANG CITY

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The purpose of this study is to describe the role of the family in meeting the spiritual needs of the elderly in RT.021 RW.009, Sako Village, Palembang City. The type of research used is descriptive with a qualitative approach. Data collection was done by interview, observation and documentation. The subjects of this study were eight people, namely four elderly and four elderly families. The results showed that the role of the family in fulfilling the spiritual needs of the elderly had not been implemented properly. The role of the family in meeting the spiritual needs of the elderly, among others, is a relationship with God, a relationship with oneself, a relationship with others and a relationship with nature. The role of the family in the relationship with God has not been carried out properly, the elderly family pays less attention to and reminds the elderly to worship. However, the elderly already have their own awareness to increase their deeds of worship as provisions in the afterlife. Relationships with oneself are like helping the elderly in finding their purpose in life and helping the elderly solve their problems. Relationships with other people such as providing information and taking trips. Relationships with nature such as facilitating the elderly to keep the environment clean and facilitating the elderly in maintaining the coolness of the environment by farming. To support the spiritual activities of the elderly, the family provides care in the form of spiritual care, physical care, psychological care and social care and it is hoped that the Sako Village will further improve spiritual facilities for the elderly.

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Background and aim Spirituality as the essence of human existence and a healing factor in mankind has been increasingly emphasized in recent years. Spirituality along with three other domains of holistic care, namely biological, psychological and social has a particular importance.Holistic view provides a suitable approach for health professionals including nurses to focus on all aspects of human. World Health Organization (WHO), International Council of Nurses (ICN), ethical codes of universities worldwide and most theorists of nursing have emphasized on the instruction of spirituality and spiritual care in the frame of holistic approach. Since nurses are responsible to provide physical, psychological, social, cultural and spiritual care, they need to know how to respond to spiritual needs of their patients. This review article is intended to reveal the importance of spirituality and spiritual care instruction in nursing and focuses on legal as well as ethical requirements for its incorporation in educational planning as a challenge in baccalaureate nursing curriculum in Iran. Materials and methods A comprehensive review of literature in the Internet was performed to cover all material from 1980 to 2009. Keywords of the review included nursing, spirituality care education and spiritual care in domestic as well as international databases such as IranMedex, Irandoc, PubMed, ScienceDirect, ERIC, ProQuest and Ovid. Findings The review indicated that in most curriculums of western and eastern countries, instruction of spirituality and spiritual care is included; however, due to different reasons, nurses still do not have necessary preparations to identify and satisfy spiritual needs of their clients and require further academic education. In Iran, no study was found related to the necessity of inclusion of spirituality and spiritual care in the curriculum of baccalaureate nursing students. Conclusion Nursing educators play a critical role in the preparation of students to diagnose and satisfy clients’ spiritual needs. The principles of spirituality and spiritual care should be included and taught in the curriculum of the students. Keywords: Spirituality, Spiritual care, Nursing education, Curriculum. * Corresponding Author: Abdollah Khorami Markani, PhD Student, Faculty of Nursing and Midwifery, Shahid Beheshti University of Medical Sciences , Shariati, Tehran, Iran. E-mail: Khorami.Abdolah@gmail.com

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Children with cancer: the quality of life Christine Eiser. Lawrence Erlbaum Associates, Mahwah NJ, 2004. pp. 304, $79.95/£52.95 (hardback). 080583544X
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Major advances in cancer treatment over the past two decades have dramatically improved survival rates for paediatric oncology patients. Cancer in children is no longer a deadly disease but a chronic illness. Thus, the quality of life (QOL) for children who have cancer is an important issue for those who are currently suffering and those who have completed treatment. Some consensus about the definition of quality of life has been reached; that it is subjective and multidimensional. When children assess their own quality of life, the first problem encountered is how to measure the subjective perspective of QOL when children have limited cognitive ability or are too sick to use measurement tools. This is the first book that addresses the issues of quality of life for children with cancer including conceptual/theoretical issues, measurement, and how the QOL is affected throughout treatment, from diagnosis to long-term survival. The book has seventeen chapters, with findings based on research by the authors and which are clearly documented. The author indicates that this book is written as in two major themes: ‘to increase public awareness of the progress that has been made in treating childhood cancer’ and to what extent ‘treatment for cancer affects the child's QOL’ (p. 3). In order to present both comprehensive and substantial context, the author has organized this book into five major parts. The first part emphasizes the importance of holistic care of children. The next chapters deals with an overview of medical care for childhood cancer, the history and consequent development of psychosocial care, the theoretical and methodological assumptions of QOL, and emotional, social and behavioural outcomes for children with cancer. Medical treatment discussed includes an overview of treatment, prognosis and long term survival. Psychosocial care is also described in chronological order (from diagnosis to long term survival). There are pragmatic discussions of theories and methods in assessing QOL, which are very informative. However, there is one important theoretical framework—Hinds and Haase's work on ‘substantive models for quality of life in paediatric oncology patients’—which is not included (Hinds and Haase, 1998). Part II covers a variety of effects of treatment for paediatric cancer and includes chapters on effects of diagnosis of cancer in children at different ages and different approaches to communicating with paediatric oncology patients. It also includes outcomes used to measure behaviour and adjustment of the patients, such as depression, anxiety, self-esteem, body image, and coping. The issues of validity between parental proxy and patient report are also discussed in describing children's behaviour and adjustment. The normality of going back to school is also important for long term survivorship. The chapter also covers the child's school behaviour and social relationships, as well as interventions to promote the child's reintegration after she/he returns to school Part III covers the importance of family cancer care, by considering how cancer treatment affects children, parents and healthy siblings. The responses of the family to diagnosis, treatment, and long term physical and psychological effects are described. Psychological interventions and follow up clinics for survivors and parents are needed to promote a healthy lifestyle. Gender differences (between mothers and fathers) are also discussed. Part IV describes the long term consequences of surviving paediatric oncology in terms of later physiological and psychological effects. Paediatric oncology patients are highly vulnerable to some lifestyles related to the risk of cancer (such as smoking and sexual activity). The author states ‘it is not enough to give people health information but they need also to understand how themselves can improve their health’ (p.213). Interventions to promote a healthy lifestyle are suggested and a recommendation is made that children should be examined in clinics on a regular basis for continuous care. Part V covers the need for assessing quality of life as an outcome indicator for paediatric oncology. This differs from adult oncology in that the treatment protocol for paediatric oncology is more aggressive in aiming to cure the disease, and survivors are at risk for later physical and psychological effects. Different measures of quality of life, both parent-completed and children's self-reports, are discussed in terms of concepts, and psychometric properties, both for paediatric oncology patients currently undergoing treatment and long term survivors. This book will help multidisciplinary health care professionals in dealing with the complex and difficult problems of paediatric oncology patients, their parents and healthy siblings. This is the only recent comprehensive book on physical and psychological care, as well as quality of life in survivors. An important part of this book is its overview of physical and psychological care from diagnosis to long term survival. This is a very practical work for all health care professionals, including the paediatric oncologists, paediatricians, nurses, psychologists and social workers who care for these patients. I highly recommend this book to my colleagues in the field of paediatric oncology.

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