The Role of Community Health Workers in the Control and Management of Leprosy: A Scoping Review

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Introduction: Leprosy remains a persistent public health challenge in many endemic regions, exacerbated by delayed diagnosis and sociocultural stigma. Community Health Workers (CHWs) have emerged as pivotal actors in promoting early detection, treatment adherence, and stigma reduction. Methods: This scoping review synthesizes current evidence on CHW-led leprosy interventions, drawing from articles published in PubMed, Scopus, and Google Scholar between 2000 and 2025. A total of 23 studies from countries including India, Brazil, and Indonesia were included. Data were extracted and analyzed thematically to explore CHW roles, early detection methods, and challenges encountered. Results: CHWs were involved in activities such as door-to-door screening, household contact tracing, community education, and rehabilitative support. Their contributions were associated with reduced diagnostic delays and improved community engagement. However, most studies did not isolate the specific impact of CHWs, limiting causal attribution. Common barriers included inconsistent training, competing responsibilities, weak referral systems, and insufficient funding and policy support. Conclusion: CHWs play a multifaceted role in enhancing leprosy control, but their effectiveness is constrained by systemic and contextual barriers. Future research should adopt more rigorous study designs, including Community-Based Participatory Research (CBPR), to better assess CHW-specific contributions and cost-effectiveness. Strengthening training, supervision, and intersectoral collaboration is essential to maximize the impact of CHW-led interventions.

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The role of community health workers in cervical cancer screening in low-income and middle-income countries: a systematic scoping review of the literature
  • May 1, 2019
  • BMJ Global Health
  • James O’Donovan + 2 more

IntroductionCommunity-based screening for cervical cancer and task sharing to community health workers (CHWs) have been suggested as a potential way to increase screening coverage in low- and middle-income countries (LMICs)....

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Abstract A30: The role of community health workers in disseminating colorectal cancer guidelines in Asian Americans
  • Feb 1, 2017
  • Cancer Epidemiology, Biomarkers & Prevention
  • Karen Kim + 3 more

Background Community health workers (CHWs) are lay people from within the communities where they work, who share common characteristics with their members, such as ethnicity, culture, and language. They are frontline health workers who often serve socially and linguistically isolated populations. As trusted members of their communities, they provide critical links between community and systems of care. CHWs can empower community members with enhanced health knowledge, help navigating health systems, and access to care. This study examined the central role of CHWs in disseminating colorectal cancer screening guidelines in seven Asian immigrant communities (Cambodian, Chinese, Filipino, Korean, Lao, South Asian, and Vietnamese) in Chicago. Method The parent project was designed to use a community-centered dissemination model to promote the adoption of colorectal cancer (CRC) screening guidelines in seven Asian communities. In this study, we used social marketing campaign and CHWs as part of the intervention to disseminate CRC screening guidelines. Although social marketing campaigns can create public awareness, they rarely shape attitudes and bring behavior change. To take community members from awareness to commitment and then action, we used CHWs as influencers. All ten CHWs recruited in this study were bicultural and bilingual health professionals. In addition, all CHWs had at least a bachelor's degree, had worked in the community for more than a year and well understood the social norms of the community. All CHWs were required to attend a 6-hour training course on CRC screening, motivational interviewing techniques, and the application of Stage of Change Theory. A CHW guidebook, which listed rationales and components of the intervention, was given to the CHWs. The roles and responsibilities of the CHW (outreaching, educating, navigating and collecting data) were also clearly stated in the guidebook. All CHEs were committed 20 hours/week for the project during the 12-week intervention period. Both quantitative and qualitative data were collected during and after the CHW intervention through weekly activity logs, site visits notes, and focus groups with implementation CHWs at the end of the project. Results Our ten CHWs placed 320 posters (in English or native language) to promote CRC screening in different venues, such as restaurants, churches, temples, and grocery stores, that were frequented by local community members. They also sent out 4,665 CRC postcards to clients on their mail lists. Besides one-on-one counselling session, CHW also conducted 32 CRC information sessions (> 5 people). Across the seven communities, over 2,400 community residents were reached through one-on-one education or small group information sessions over the 12-week intervention period. Most of the CHWs used familiar places to do their outreach, such as in-house programs (e.g. senior services or immigrant programs) or other places that they have implemented programs before. They also used other opportunities, such when they were shopping at the community store or in a bible study, as well as family and friend gatherings, to disseminate CRC screening guidelines. Although not all people they encountered wanted to be screened, they felt that they at least got them thinking about CRC and had impact on them. For personal experience, most CHWs stated that the project increased their knowledge of CRC and they also felt valued. Discussion Participation of CHWs in this demonstration project was invaluable. Each CHW brought critical knowledge of their community, its language, values, norms, and health beliefs. CHWs are uniquely positioned to deliver culturally ad linguistically tailored intervention and can serve as a source of peer support and social influence. Citation Format: Karen Kim, Michael Quinn, Edwin Chandrasekar, Helen Lam. The role of community health workers in disseminating colorectal cancer guidelines in Asian Americans. [abstract]. In: Proceedings of the Ninth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2016 Sep 25-28; Fort Lauderdale, FL. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2017;26(2 Suppl):Abstract nr A30.

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1 million community health workers in sub-Saharan Africa by 2015
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Community health workers in Sergipe, Brazil : implications for their future role in maternal and child health
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Community health workers in Sergipe, Brazil : implications for their future role in maternal and child health

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  • 10.1186/s12939-023-01944-0
The role of community health workers in primary healthcare in the WHO-EU region: a scoping review
  • Jul 20, 2023
  • International journal for equity in health
  • Tijs Van Iseghem + 6 more

BackgroundExisting evidence on the role of community health workers (CHWs) in primary healthcare originates primarily from the United States, Canada and Australia, and from low- and middle-income countries. Little is known about the role of CHWs in primary healthcare in European countries. This scoping review aimed to contribute to filling this gap by providing an overview of literature reporting on the involvement of CHWs in primary healthcare in WHO-EU countries since 2001 with a focus on the role, training, recruitment and remuneration.MethodsThis systematic scoping review followed the guidelines of the Preferred Reporting Items for Systematic reviews and Meta-Analyses, extension for Scoping Reviews. All published peer-reviewed literature indexed in PubMed, Web of Science, and Embase databases from Jan 2001 to Feb 2023 were reviewed for inclusion. Included studies were screened on title, abstract and full text according to predetermined eligibility criteria. Studies were included if they were conducted in the WHO-EU region and provided information regarding the role, training, recruitment or remuneration of CHWs.ResultsForty studies were included in this review, originating from eight countries. The involvement of CHWs in the WHO-EU regions was usually project-based, except in the United Kingdom. A substantial amount of literature with variability in the terminology used to describe CHWs, the areas of involvement, recruitment, training, and remuneration strategies was found. The included studies reported a trend towards recruitment from within the communities with some form of training and payment of CHWs. A salient finding was the social embeddedness of CHWs in the communities they served. Their roles can be classified into one or a combination of the following: educational; navigational and supportive.ConclusionFuture research projects involving CHWs should detail their involvement and elaborate on CHWs’ role, training and recruitment procedures. In addition, further research on CHW programmes in the WHO-EU region is necessary to prepare for their integration into the broader national health systems.

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  • 10.1177/1524839918754868
Community-Clinical Linkages With Community Health Workers in the United States: A Scoping Review.
  • Jan 24, 2018
  • Health promotion practice
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Despite the proliferation of community-clinical linkage (CCL) interventions with community health workers (CHWs), little is known about the components of these programs or how linkages are realized. In this scoping review, we synthesize evidence concerning the role of CHWs in creating and sustaining CCLs aimed at improving individual health outcomes. Our inclusion criteria included peer-reviewed articles that described a CHW intervention in the United States that used a CCL model. A total of 2,776 titles and/or abstracts were screened and 47 articles underwent full text review. Two independent reviewers rated the screened articles based on additional criteria including the CHW connection to community and evidence of linkage follow up rather than simple referral. For the 11 peer-reviewed articles included in the final review, we describe the CHW's relationship to the community, training, and role within the intervention, linkage, and outcomes. We used a standardized framework to determine commonalities in CHW roles across the interventions. CCLs with CHWs positively affect the delivery of both clinical care and community resources across a range of disease areas in a variety of contexts. To identify effective CCL models, additional information on CHW training, CCL follow-up methods, and the CHW role in CCLs is recommended.

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  • 10.1016/j.socscimed.2022.115257
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  • Feb 1, 2023
  • Social Science & Medicine
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National community health worker (CHW) programmes were central to the vision of primary health care that emerged from the Alma-Ata declaration of 1978. CHWs were identified as agents who could offer basic medical treatment and promote community participation and empowerment. Despite the ambitions of this era, many national CHW programmes were neglected, starved of funding, or discontinued in the decades that followed. These programmes were difficult to sustain in a context of rising debt and structural adjustment, but they also suffered due to poor implementation and a lack of clarity about the role and identity of CHWs. Nevertheless, national CHW programmes have returned to the policy agenda in the past fifteen years and key figures and organisations within global health have begun to argue that they offer a way of strengthening health systems and achieving universal health coverage (UHC). Based on ethnographic research conducted between 2019 and 2020, this article examines a new national CHW programme that has been introduced in Zambia. However, as I show in this article, Zambia's new CHW programme has suffered from many of the same key problems that affected the programmes of the Alma-Ata era: insufficient funding, poor implementation, and a lack of clarity about the role of CHWs. This article shows how these mistakes have been repeated and asks why the lessons of the Alma-Ata era have been lost. Three central problems are identified: national CHW programmes continue to be underfunded and regarded as a "cheap" solution; global health organisations and actors today prioritise technical and quantitative approaches when they design and implement these programmes and therefore overlook the historical experiences and qualitative research of the past thirty years; and, finally, policymakers continue to gloss over the tensions and contradictions within the idea of the "community health worker" itself, creating unclear and unrealistic expectations for CHWs.

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  • BMC Primary Care
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BackgroundGlobal concerns regarding effective response strategies to the COVID-19 pandemic arose amid the swift spread of the virus to low- and middle-income country (LMIC) settings. Although LMICs instituted several measures to mitigate spread of the virus in low resource settings, including task shifting certain demand and supply functions to community actors such as community health workers (CHWs), there remains a lack of synthesized evidence on these experiences and lessons. This scoping review sought to synthesize evidence regarding the roles and challenges faced by CHWs during the fight against COVID-19, along with strategies to address these challenges.MethodologyWe systematically searched several major electronic databases including PubMed, HINARI, Cochrane Library (Reviews and Trials), Science Direct and Google Scholar for relevant literature. The search strategy was designed to capture literature published in LMICs on CHWs roles during COVID-19 period spanning 2019–2023. Two researchers were responsible for retrieving these studies, and critically reviewed them in accordance with Arksey and O’Malley scoping review approach. In total, 22 articles were included and analysed using Clarke and Braun thematic analysis in NVivo 12 Pro Software.ResultsCommunity health workers (CHWs) played a vital role during the COVID-19 pandemic. They engaged in health promotion and education, conducted surveillance and contact tracing, supported quarantine efforts, and maintained essential primary health services. They also facilitated referrals, advocated for clients and communities, and contributed to vaccination planning and coordination, including tracking and follow-up. However, CHWs faced significant challenges, including a lack of supplies, inadequate infection prevention and control measures, and stigma from community members. Additionally, they encountered limited supportive policies, insufficient remuneration and incentives. To enhance CHWs’ performance, regular training on preventive measures is essential. Utilizing digital technology, such as mobile health, can be beneficial. Establishing collaborative groups through messaging platforms and prioritizing access to COVID-19 vaccines are important steps. Additionally, delivering wellness programs and providing quality protective equipment for CHWs are crucial for their effectiveness.ConclusionThe study found that CHWs are vital actors within the health system during global pandemics like COVID-19. This entails the need for increased support and investment to better integrate CHWs into health systems during such crises, which could ultimately contribute to sustaining the credibility of CHWs programs and foster more inclusive community health systems (CHSs).

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Examining the role of community health workers amid extreme weather events in low- and middle-income countries: a scoping review
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  • 10.1016/j.whi.2017.09.006
Addressing Health Disparities from Within the Community: Community-Based Participatory Research and Community Health Worker Policy Initiatives Using a Gender-Based Approach
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  • Women's Health Issues
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Addressing Health Disparities from Within the Community: Community-Based Participatory Research and Community Health Worker Policy Initiatives Using a Gender-Based Approach

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  • 10.1353/cpr.0.0079
Community Health Worker Insights on Their Training and Certification
  • Sep 1, 2009
  • Progress in Community Health Partnerships: Research, Education, and Action
  • Caricia E C Catalani + 3 more

Community Health Worker Insights on Their Training and Certification Caricia E. C. Catalani, Sally E. Findley, Sergio Matos, and Romelia Rodriguez What Is the Purpose of This Review? • To develop a consensus definition of community health workers (CHW) informed by practitioners of the field. • To document CHW training needs, both in content and training methods. • To identify CHW concerns for potential impact of the growing regulation on certification and reimbursement. • To engage CHW leadership and input to inform the study. What Is the Problem? • Uncertainty among employers, funders, stakeholders, and CHWs themselves regarding the definition of a CHW. • Confusion about CHW training needs, both in content and training methods. • Lack of research is hampering the development of training, certification, and reimbursement strategies and policies. What Are the Findings? • CHWs in New York have developed a consensus definition with uniformity of opinion on core elements of the definition. • Community trust is central to CHW identity, essential to the conduct of the practice, and inviolate. • We identified CHW training needs in the area of core competencies often neglected by health care systems, employers, or academia. • We identified characteristics of a credentialing process that would be acceptable to CHW practitioners and help advance and support the field. • Community-based participatory research (CBPR) methods provided unique insights into the definition, training needs, and credentialing concerns of CHWs. Who Should Care Most? • CHWs. • CHW employers, including community- and faith-based organizations, government agencies, hospitals, community health centers, and other health care providers. • CHW program funders, including state, local, and national governments, foundations, and philanthropies. • Primary care providers. • Chronic disease management programs. • Public health professionals and other allied health workers. [End Page 201] Recommendation for Action • CBPR is uniquely adaptable for research to address the growing interest in CHWs and their practice. • CBPR provides a mechanism for CHWs to inform policy makers and regulators about their credentialing desires and concerns and the potential impact of the growing certification and regulation movement across the country. • The CHW definition generated through the CBPR methods applied in this study is a potentially acceptable standard. • CPBR provided a view into a potentially acceptable process for developing a CHW credential. CHWs in New York City are generally supportive of credentialing, but only for a process that involves them and their leaders in its development. • This study has identified various content and methods training parameters that could lead to acceptable statewide credentialing standards for CHWs. CHWs in New York City have articulated specific training needs in two categories, including core competencies and health-specific topics. a Core competencies include skills training in communication, documentation, behavior change, adult learning, informal counseling, goal setting, negotiation/mediation, conflict resolution, and community organizing. b Training in health-specific topics includes chronic disease management, prevention and control, health care systems, insurance eligibility and enrollment, and immigration issues in health. • CHWs recognize the individual and organizational maturity required of institutions to adapt to their specific training needs, both in content and methods, and are eager to advance a supportive relationship. • CHWs identified themselves as nontraditional adult learners and therefore demand that educational institutions interested in providing training develop adult learning, participatory and interactive teaching skills to better serve the practice. CHWs further mentioned that evaluation of their competence should involve performance evaluation as opposed to standard test taking. • CHWs are uniquely qualified to help address some of the persistent disparities in health and health care access for isolated populations traditionally hard to reach with more conventional strategies. • CHWs must be involved in any certification, credentialing or training design from the very beginning. The integration of CHWs at all levels in program planning, implementation, and evaluation will provide the strongest foundation for creating a truly responsive educational program that builds on the CHWs’ knowledge of the communities where they live and work. Every opportunity in program development and implementation must be taken to ensure the voice of CHWs are included and respected. • This study exposes the need for further inquiry into the feasibility of CHW-centered and CHW-led credentialing. [End Page 202] Caricia E. C. Catalani Columbia University, Mailman School of Public Health Sally E. Findley Columbia University, Mailman School of Public Health Sergio Matos Columbia University, Mailman...

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  • Research Article
  • Cite Count Icon 56
  • 10.1371/journal.pone.0198424
Role of community health workers in type 2 diabetes mellitus self-management: A scoping review.
  • Jun 1, 2018
  • PloS one
  • Bonaventure Amandi Egbujie + 5 more

BackgroundGlobally the number of people with Type 2 diabetes mellitus (T2DM) has risen significantly over the last few decades. Aligned to this is a growing use of community health workers (CHWs) to deliver T2DM self-management support with good clinical outcomes especially in High Income Countries (HIC). Evidence and lessons from these interventions can be useful for Low- and Middle-Income countries (LMICs) such as South Africa that are experiencing a marked increase in T2DM prevalence.ObjectivesThis study aimed to examine how CHW have been utilized to support T2DM self-management globally, their preparation for and supervision to perform their functions.MethodThe review was guided by a stepwise approach outlined in the framework for scoping reviews developed by Arksey and O’Malley. Peer reviewed scientific and grey literature was searched using a string of keywords, selecting English full-text articles published between 2000 and 2015. Articles were selected using inclusion criteria, charted and content analyzed.Results1008 studies were identified of which 54 full text articles were selected. Most (53) of the selected studies were in HIC and targeted mostly minority populations in low resource settings. CHWs were mostly deployed to provide education, support, and advocacy. Structured curriculum based education was the most frequently reported service provided by CHWs to support T2DM self-management. Support services included informational, emotional, appraisal and instrumental support. Models of CHW care included facility linked nurse-led CHW coordination, facility-linked CHW led coordination and standalone CHW interventions without facility interaction.ConclusionCHWs play several roles in T2DM self-management, including structured education, ongoing support and health system advocacy. Preparing and coordinating CHWs for these roles is crucial and needs further research and strengthening.

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  • Cite Count Icon 2
  • 10.1093/heapol/czae049
Shifting roles of community health workers in the prevention and management of noncommunicable disease during the COVID-19 pandemic: a scoping review.
  • Jun 24, 2024
  • Health policy and planning
  • Tilahun Haregu + 11 more

Community Health Workers (CHWs) play a crucial role in the prevention and management of noncommunicable diseases (NCDs). The COVID-19 pandemic triggered the implementation of crisis-driven responses that involved shifts in the roles of CHWs in terms of delivering services for people with NCDs. Strategically aligning these shifts with health systems is crucial to improve NCD service delivery. The aim of this review was to identify and describe COVID-19-triggered shifting roles of CHWs that are promising in terms of NCD service delivery. We searched Ovid Medline, Embase, CINAHL, Web of Science and CABI for Global Health for relevant articles published between 1 January 2020 and 22 February 2022. Studies that were conducted within a COVID-19 context and focused on the shifted roles of CHWs in NCD service delivery were included. We used Preferred Reporting Items for Systematic reviews and Meta-Analyses guidelines to report the findings. A total of 25 articles from 14 countries were included in this review. We identified 12 shifted roles of CHWs in NCD service delivery during COVID-19, which can be categorized in three dimensions: 'enhanced' role of CHWs that includes additional tasks such as medication delivery; 'extended' roles such as the delivery of NCD services at household level and in remote communities; and 'enabled' roles through the use of digital health technologies. Health and digital literacy of people with NCDs, access to internet connectivity for people with NCDs, and the social and organizational context where CHWs work influenced the implementation of the shifted roles of CHWs. In conclusion, the roles of CHWs have shifted during the COVID-19 pandemic to include the delivery of additional NCD services at home and community levels, often supported by digital technologies. Given the importance of the shifting roles in the prevention and management of NCDs, adaptation and integration of these shifted roles into the routine activities of CHWs in the post-COVID period is recommended.

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The potential contribution of community health workers to improving health outcomes in UK primary care.
  • Aug 1, 2012
  • Journal of the Royal Society of Medicine
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