The Red Kite Questionnaire for Understanding Experiences of Services Together (Re-QUEST): A Co-produced PREM for an inpatient CYPMH service

Abstract

The aim of this project was to co-produce a new Patient Reported Experience Measure (PREM) with young people and parent/carers for a new Children and Young People’s Mental Health (CYPMH) inpatient unit, to collect meaningful and actionable feedback that will support a trauma-informed approach in the service. Young people and parents/carers using the service reported that existing PREMs, such as the Experience of Service Questionnaire (CHI-ESQ) and CAMHS Satisfaction Scale (CAMHSSS-Unit) were unsuitable. Focus groups were held with young people and their parents/carers to develop a new PREM specifically for CYPMH inpatient services. Young people and parents/carers reviewed the existing questionnaires and discussed which aspects of inpatient care they wanted to provide feedback about following their admission. Key themes from the focus groups included the importance of a variety of types of response scales and ensuring the questions captured a range of experiences. Two co-produced, distinct versions of the PREM for young people and parents/carers were constructed using the focus group feedback and were named the Re-QUEST (The Red Kite Questionnaire for Understanding Experiences of Services Together). Both versions of the Re-QUEST were then reviewed by a wider group of young people and parents/carers for acceptability and were unanimously approved. The Re-QUEST was piloted with young people and their parents on their discharge from the service.