Abstract
ABSTRATC Study based on Heidegger's existential phenomenology. The objective was to understand the experience of parents of children with cancer in treatment failure conditions. Participants were eight parents of eight patients seen at an oncology center from January to May 2014. Interviews were conducted guided by the question: Tell me about your experience of being a family member of a child with cancer in treatment failure conditions? Three ontological themes emerged: the phenomenon unveiled in the discovery of the child's cancer; experiencing the process involving the child's cancer; unveiling the possibility of the child's death. It was evidenced that the experience of these parents was permeated by intense and devastating feelings towards the early loss, annihilating dreams of a desired future. It is essential for nursing to look more attentively at the family of terminal patients.
Highlights
Over the last years, childhood cancer has been the main cause of death in Brazil among children and adolescents
In the search to understand the experience of the parents of children with cancer in conditions of treatment failure, departing from a set of conceptions related to the experiences and life histories involving the families, we were allowed to, based on the units of meaning in the testimonies, disclose the structure of the phenomenon under investigation
The results were grouped in ontological themes, which will be presented and discussed
Summary
THE EXPERIENCE OF PARENTS OF CHILDREN WITH CANCER IN TREATMENT FAILURE CONDITIONS. The objective was to understand the experience of parents of children with cancer in treatment failure conditions. A VIVÊNCIA DOS PAIS DA CRIANÇA COM CÂNCER NA CONDIÇÃO DE IMPOSSIBILIDADE TERAPÊUTICA. RESUMO: Estudo fundamentado na fenomenologia existencial heideggeriana, cujo objetivo foi compreender a vivência dos pais da criança com câncer na condição de impossibilidade terapêutica. LA EXPERIENCIA DE LOS PADRES DE NIÑOS CON CÁNCER EN LA CONDICIÓN DE FRACASO TERAPÉUTICO. Tuvo como objetivo comprender la experiencia de los padres de niños con cáncer en la condición de fracaso terapéutico. Se realizaron entrevistas guiadas por la pregunta: ¿Dime cómo es su experiencia de ser miembro de la familia de un niño con cáncer en la condición de fracaso terapéutico?
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