Abstract
There is empirical evidence that families have responded with much resilience and compassion to caring for persons living with AIDS (PWAs) in their homes (Engelbrecht & Kasiram, 2007; Sekokotla & Mturi, 2004; Simpson & Raniga, 2004). At the same time families in poverty-stricken communities are increasingly struggling and failing to provide optimally for the economic and psycho-social needs of PWAs who are in their care (Bartlett & Finkbeiner, 2006; Darling, Olmstead & Tiggleman, 2009). It is not surprising, however, at a time when the devastating effects of HIV and AIDS are all too evident, that international organisations, national governments and civil society organisations recognise the invaluable role played by extended family members as support caregivers in the care of those terminally ill with AIDS.
Highlights
LITERATURE ON FAMILY MEMBERS CARING FOR PERSONS WITH AIDS There is empirical evidence that families have responded with much resilience and compassion to caring for persons living with AIDS (PWAs) in their homes (Engelbrecht & Kasiram, 2007; Sekokotla & Mturi, 2004; Simpson & Raniga, 2004)
Members who were caring for PWAs in their homes and who were registered clients with the Voluntary Counselling and Testing Site (VCT) project in Bhambayi;
RECOMMENDATIONS AND CONCLUSIONS This study has shown that family caregivers perform a significant role in the care of people chronically ill with AIDS
Summary
LITERATURE ON FAMILY MEMBERS CARING FOR PERSONS WITH AIDS There is empirical evidence that families have responded with much resilience and compassion to caring for persons living with AIDS (PWAs) in their homes (Engelbrecht & Kasiram, 2007; Sekokotla & Mturi, 2004; Simpson & Raniga, 2004). At the same time families in poverty-stricken communities are increasingly struggling and failing to provide optimally for the economic and psycho-social needs of PWAs who are in their care (Bartlett & Finkbeiner, 2006; Darling, Olmstead & Tiggleman, 2009). It is not surprising, at a time when the devastating effects of HIV and AIDS are all too evident, that international organisations, national governments and civil society organisations recognise the invaluable role played by extended family members as support caregivers in the care of those terminally ill with AIDS. Social support from friends, family and partners has been found to be related to PWAs’ ability to master AIDS-related stress (Darling et al, 2009), but may only be beneficial when perceived as satisfactory
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