Abstract

Background: Due to the aging society the number of informal caregivers is growing. Most informal caregivers are women working as nurses within a health organization (also labeled as double-duty caregiver) and they have a high risk of developing mental and physical exhaustion. Until now little research attention has been paid to the expectations and needs of double duty caregivers and the role of self-management in managing private-work balance.Objective: The overall aim of this study was to investigate the expectations and needs of double duty caregivers in Netherlands, and to examine the meaning of self-management in managing work-life balance.Method: Different research methods have been applied in this exploratory study. Firstly, a scoping review has been conducted on the topics self-management and sustainable employability of double-duty caregivers using the search engines: CINAHL, MEDLINE, PubMed, and Google Scholar. Furthermore, a qualitative study has been conducted through focus groups with double duty caregivers.Results: Twenty studies that met the inclusion criteria (i.e., nurses with double duty caregiving tasks) could be identified. We found that double duty caregivers have different motivations for being a double duty caregiver based on internal and external expectations. Double duty caregiving causes a lot of mental and physical pressure for the caregiver. To be able to combine both duty’s, double duty caregivers need flexibility and understanding from the workplace. Through two focus groups (N = 17) we found that social support from the workplace is not enough to be able to manage the situation. Self-management skills are important to be able to communicate effectively with the workplace and community care organizations about the kind of support needed. Also, health care organizations should offer the same support to double duty caregivers as any other informal caregiver.Discussion: Double-duty caregivers are at high risk of developing symptoms of overload and risk of reduced self-management quality and employability levels across time. Health care organizations and the double duty caregiver often wait too long to act instead of taking more preventive measures. Furthermore, community care organizations should dialog with double duty caregivers about their wishes concerning the division of caring tasks. This finding calls for special attention, with long-term solutions at both macro (health-care level), organizational (meso-level), and employee level (micro level).

Highlights

  • According to data from World Population Prospects: the 2019 Revision, by 2050, one in six people in the world will be over the age of 65 (16%), up from one in 11 in 2019 (9%)

  • On the basis of this study we have developed a theoretical model than can be used in future longitudinal research or effect evaluations of interventions (Figure 2 and Table 2)

  • We have specially focused on doubleduty care nurses as we believe that the working conditions and social of nurses support at work is a significant problem to tackle within health organizations due to the labor market shortages

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Summary

Introduction

According to data from World Population Prospects: the 2019 Revision, by 2050, one in six people in the world will be over the age of 65 (16%), up from one in 11 in 2019 (9%). Population aging is to become one of the most significant social transformations of the twenty-first century, with implications for most sectors of society, including labor and financial markets, the demand for goods and services, such as housing, transportation and social protection, as well as family structures and intergenerational ties (United Nations, 2019). Due to the aging population and decentralization of health care more people are expected to live at home as long as possible. 2. What gives you the most satisfaction in your life (both work and private)? 5. To what extent does your private situation affect your work? 6. To what extent does your work affect your private life? Until now little research attention has been paid to the expectations and needs of double duty caregivers and the role of self-management in managing private-work balance

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