Abstract
Study Objective Surveys report seven-in-ten Americans use some form of social media1. Risks of social media platforms include spread of misinformation and information overload. Patients share and obtain health-care related information on such platforms. We aim to evaluate content and authorship of popular gynecological topics posted on Instagram. Design Retrospective content analysis. Setting Instagram. Patients or Participants N/A Interventions N/A Measurements and Main Results A query of endometriosis, adenomyosis, fibroids, and hysterectomy yielded 237 hashtags. The top 10 and most recent 20 posts (determined by Instagram's internal algorithm) for 10 popular hashtags were quantitatively (likes, comments) and qualitatively (content, authorship) reviewed. Posts cross-tagged with infertility, other chronic diseases; videos; or foreign language posts were excluded. The 10 popular hashtags investigated were linked to 2,301,238 posts: #endometriosis (N=1,461,668), #endometriosisawareness (N=324,041), #fibroids (N=143,197), #adenomyosis (N=98,101), #hysterectomy (N=87,176), #endometriosiswarrior (N=52,503), #endometriosisawarenessmonth (N=47,728), #hysterectomyrecovery (N=35,124), #endometriosissucks (N=26,568), #endopain (N=25,132). Of 300 posts evaluated, 97.3% were by non-healthcare authors (patients, 55%); 1.6% were authored by verified physicians/professional society. The most common content for non-healthcare authored posts was personal experience (30.67%). Educational content accounted for 4.6% posts; none were authored by a health-care profile (p Conclusion Over 2 million posts on gynecological conditions were identified on Instagram. The majority were authored by patients sharing their personal experience. The most popular topic was endometriosis. Few educational posts were identified. Official healthcare presence was significantly lacking. Physician involvement in social media may lead to improvements in patient education, physician-patient relationship, and knowledge in MIGS.
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