Abstract
To explore and understand the impact of paediatric intensive care unit (PICU) admission on longitudinal health outcomes, experiences and support needs of children and their parents in the first 6months after PICU discharge and to examine the role of ethnicity. This study uses a prospective, longitudinal design. The sample will include children (N=110) and at least one parent (N=110) admitted to the PICU (KKH-AM start-up fund, October 2020). Quantitative study: Participants will be recruited at PICU admission. Data will be collected at five time points: during PICU admission (T0), at PICU discharge (T1), 1month (T2), 3months (T3) and 6months (T4) after PICU discharge. Questionnaires will assess physical and cognitive outcomes of the child survivor. Emotional and social health outcomes will be assessed for both the child and the parents. Qualitative study: At least 12 parents will take part in a semi-structured interview conducted at both 1 and 6months after PICU to explore their experiences and support needs after PICU discharge. All interviews will be audio-recorded with verbatim transcription. We will use framework analysis for qualitative data analysis. Understanding of Singapore health outcomes after critical illness in kids (SHACK) and their families is limited. There is an urgent need to comprehensively understand the health trajectory and consequences of the PICU child survivors and their families. This research will be the first to explore the health outcomes, needs and experiences after paediatric critical illness in Asia. This study will provide an understanding of the health outcomes and trajectory of children and parents in the first 6months after PICU discharge and examine the association between race and outcomes after PICU discharge. Identification of modifiable pre-disposing risk factors during the PICU admission will inform future interventions to improve long-term outcomes of children and parents following paediatric critical illness. Clinicaltrial.gov: ClinicalTrials.gov Identifier: NCT04637113.
Highlights
Advances in medical technologies have improved the survival rates of critically ill paediatric patients (Pollack et al, 2014)
The post-intensive care syndrome in paediatrics (PICS-p) framework was conceptualized in recognition of the unique experiences of children and their families after critical illness (Manning et al, 2018)
Most studies are conducted in the United States and the United Kingdom, and less is known about the health outcomes of paediatric intensive care unit (PICU) survivors and their families in Asia
Summary
Advances in medical technologies have improved the survival rates of critically ill paediatric patients (Pollack et al, 2014). Every year in the United Kingdom and United States, approximately 20,000 and 230,000 children, respectively, require admission to the paediatric intensive care unit (PICU) (Garber et al, 2003; PICANet, 2017). The post-intensive care syndrome in paediatrics (PICS-p) framework was conceptualized in recognition of the unique experiences of children and their families after critical illness (Manning et al, 2018). The PICS-p framework incorporates the physical, cognitive, social and emotional health of PICU child survivors and their families. Most studies are conducted in the United States and the United Kingdom, and less is known about the health outcomes of PICU survivors and their families in Asia. There are two quaternary PICUs providing medical care to critically ill children in Singapore
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