Abstract
Background It is recognised that patient and public involvement (PPI) in research should begin at the earliest stage possible. Whilst this ideal is widely acknowledged, in practice, it is not easily achievable. Constraints of time, funding, ethics and availability of appropriate representatives often mean that PPI is not included until research is fairly well advanced. This jeopardises one object of PPI; to ensure that research is being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them, because it marginalises members of the public during the crucial project scoping and design phases.
Highlights
It is recognised that patient and public involvement (PPI) in research should begin at the earliest stage possible
Constraints of time, funding, ethics and availability of appropriate representatives often mean that PPI is not included until research is fairly well advanced
In a platform study to inform the design of trials delivering incentives for smoking cessation in pregnancy and breastfeeding, two service user groups, with similar characteristics to the intended target population, were co-applicants on the grant and worked closely with researchers based in Scotland and England throughout
Summary
It is recognised that patient and public involvement (PPI) in research should begin at the earliest stage possible. Service user groups as co-applicants on a platform study for a trial Heather Morgan1*, Pat Hoddinott2,1, Gill Thomson3, Nicola Crossland3, Fiona Dykes3, Sharon McCann1, Marion Campbell1
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