Abstract
Experiences with care provided were explored through a novel “Further Needs Questionnaire”. Outcome: A social/educational gathering for Asian Ethnic minority parents/children with cleft lip/palate was organised to informally meet some of the needs identified. Results: First-generation parents of 24 children (10 Ethnic Minority, 14 Caucasian) were recruited. Results suggest that Ethnic Minority parents are less likely to report teasing/bullying compared to Caucasian parents (0% vs 29%), and similarly less likely to report their children when having any difficulties (20% vs 43%). However, 66% of Ethnic Minority parents report being anxious about their child’s future, compared to 42% of Caucasian parents. Ethnic Minority parents were significantly less willing to seek professional support (0% vs. 71%). Conclusions: This study suggests that Ethnic Minority groups may react differently to cleft conditions compared to the Caucasian population. We intend to raise awareness of the access to service issues raised in this small study to stimulate research into an important area of psychological adjustment to having a cleft lip and/or palate.
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