Abstract

BackgroundA range of health outcomes at a population level are related to differences in levels of social disadvantage. Understanding the impact of any such differences in palliative care is important. The aim of this study was to assess, by level of socio-economic disadvantage, referral patterns to specialist palliative care and proximity to inpatient services.MethodsAll inpatient and community palliative care services nationally were geocoded (using postcode) to one nationally standardised measure of socio-economic deprivation – Socio-Economic Index for Areas (SEIFA; 2006 census data). Referral to palliative care services and characteristics of referrals were described through data collected routinely at clinical encounters. Inpatient location was measured from each person’s home postcode, and stratified by socio-economic disadvantage.ResultsThis study covered July – December 2009 with data from 10,064 patients. People from the highest SEIFA group (least disadvantaged) were significantly less likely to be referred to a specialist palliative care service, likely to be referred closer to death and to have more episodes of inpatient care for longer time. Physical proximity of a person’s home to inpatient care showed a gradient with increasing distance by decreasing levels of socio-economic advantage.ConclusionThese data suggest that a simple relationship of low socioeconomic status and poor access to a referral-based specialty such as palliative care does not exist. Different patterns of referral and hence different patterns of care emerge.

Highlights

  • A range of health outcomes at a population level are related to differences in levels of social disadvantage

  • Study setting The Palliative Care Outcomes Collaboration (PCOC) is a national quality initiative to improve the clinical care of people with life-limiting illnesses

  • National coverage has grown rapidly since its inception in 2006 and, to date, more than 80% of all people seen by specialist palliative care services in Australia have data collected at point-of-care from referral until death

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Summary

Introduction

A range of health outcomes at a population level are related to differences in levels of social disadvantage. The aim of this study was to assess, by level of socio-economic disadvantage, referral patterns to specialist palliative care and proximity to inpatient services. Previous research has suggested that lower socio-economic status has been associated with poorer utilisation of palliative care services [7]. Inequity in the distribution of palliative care services in disadvantaged areas [5] and increased travel times to specialist palliative care facilities from low socioeconomic areas [8] have been shown to further exacerbate disparities in care for people from lower socioeconomic groups. Lower levels of palliative care service uptake by socioeconomically disadvantaged groups are considered to be driven by health and social service structures, and individual characteristics [9,10]

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