Abstract

This autoethnographic story is constructed around the skeleton of a play performed at the 2014 Doing Autoethnography conference. I delve into, and write through, the difficult experience of coming to terms with the chronic illness Dystonia. When readers absorb my explanation of how I have chosen to live my life, it becomes apparent that my attitude towards the illness is a departure from the expected “acceptance of disability.” I consider Dystonia to be a disruption to my life. I “acknowledge” Dystonia because it is something that will forever be present; I will never “accept it.” I critically examine the notion of “normal,” and outline how my “normal” has changed. Throughout the article run reflections on my evolving “movement.”

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