Abstract
Abstract Introduction Epidemiologic information on rare cancers is scarce out of the Western countries. The project of surveillance of rare cancers in Asian countries (RARECAREnet Asia) provides the first standardized incidence in Asia based on the latest cancer group based on ICD-O-3. Material and methods We analyzed population-based cancer registry data on patients diagnosed from 2011 to 2015 in Japan, Korea and Taiwan in comparison with the data in EU. With recent difficulty of data centralization in international studies, the analysis was performed in each country based on SEER*Stat. Results Data quality in the three Asian countries were as high as EU. Based on the revised RARECARE definition (crude incidence Conclusion Most of the continental gaps found in the current study were due to well known risk factors, and we conclude that EU based RARECARE rarity threshold fits well to cancer incidence in East Asia.
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