Abstract
People with chronic pancreatitis (CP) experience exocrine pancreatic insufficiency (EPI) from a lack of innate digestive enzymes, leading to maldigestion/malnutrition and reduced quality of life (QoL). To better understand the impact of EPI, a dual approach using a traditional US-based registry with gastroenterology sites and an online community (OC) with patient support and real-world evidence reporting is being implemented. We describe collection of patient-reported information from the OC via a survey/research event with a gastroenterologist.
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