Abstract
BackgroundRecently, decision-making process has become increasingly complex. But there is limited information on Chinese patients’ views of shared decision making (SDM) in inflammatory bowel disease (IBD). This questionnaire investigation aimed to understand Chinese patients’ perspectives and expectations of SDM in IBD and analyze the possible factors that influence their views.MethodsAn online survey was conducted from July 19th to 24th, 2020. A total of 1118 patients completed the survey.ResultsOne-third of patients were dissatisfied with the current decision-making model, and the satisfaction of inpatients was lower than that of outpatients. 84% of patients preferred to participate in SDM, who were young and had a high education level, high income, commercial insurance, strong learning ability and knowledge of SDM. Most of those who did not want to participate (72%) were worried about the cost. The kind of medicine (948, 84.8%), surgical indications (505, 45.2%) and operation methods (482, 43.1%) were the topics that patients thought most require SDM. Side effects of medicine (837, 74.9%), costs of therapy (675, 60.4%), and surgical risks (563, 50.4%) were considered to be the most influential factors for SDM. 52.7% of all patients hoped experts in different disciplines would participate in SDM. The most desirable amount of time for discussion was 30 to 60 min (562/1118, 50.3%), that were associated with the cost of SDM.ConclusionWe can meet the needs of patients by reducing costs and strengthening online patient education and exploring a model suitable for Chinese IBD patients.
Highlights
All questions were choice tests except age. Some questions, such as whether you prefer to participate in Shared decision making (SDM), respondents would be further asked different questions based on their choices
Patient characteristics A total of 1118 Chinese patients with inflammatory bowel disease (IBD) participated in this online questionnaire survey
857 had Crohn’s disease (CD), 213 patients had been diagnosed with ulcerative colitis (UC), and 48 patients had been diagnosed with unclassified colitis
Summary
There is limited information on Chinese patients’ views of shared decision making (SDM) in inflammatory bowel disease (IBD). This questionnaire investigation aimed to understand Chinese patients’ perspectives and expectations of SDM in IBD and analyze the possible factors that influence their views. The incidence of inflammatory bowel disease (IBD) in China has increased rapidly [1]. Shared decision making (SDM) is a process shared between patients and physicians through which patients can become informed about available evidence and weigh the pros and cons of various treatments with medical providers [5]. Many scholars have carried out SDM practice of different modes, as well as the development and application of SDM tools [7,8,9]
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