Abstract
Background:There is limited knowledge about the perspective of patients undergoing allogeneic haematopoietic stem cell transplantation (HSCT) about having a sibling as donor. It is essential to understand the main concerns of stem cell recipients in order to enable nurses to provide person-centred care.Objectives:The study aim was to explore patients’ main concerns about having a sibling stem cell donor and how the patients handle them, from immediately before until one year after transplantation.Methods:Twenty-eight interviews were performed prospectively during one year with ten adult sibling stem cell recipients with a mean age of 52 years (range 19-68 years). The interviews were analyzed by the Grounded Theory method.Results:The core category Recompensation summarises the process in the generated grounded theory including the three main categories; Invest, Compensate and Celebrate. Recompensation is defined as a lasting compensation given by the recipient to the sibling donor for the loss or harm suffered or effort made. The sense of having to reward, protect, appreciate, maintain peace and work on the relationship with the sibling donor at the same time as having to accept a serious illness, cope with their situation and promote their own recovery is strenuous for the recipients.Conclusion:The main concern for stem cell recipients during their first post-transplant year is to recompensate the sibling donor by investing, compensating and celebrating her/him. Although there is a positive aspect of recompensation, it can also imply pressure and guilt.
Highlights
This study was performed to gain deep knowledge and understanding about the perspective of patients undergoing allogeneic haematopoietic stem cell transplantation (HSCT) with a sibling donor
This study and the recent grounded theory study on adult sibling donors’ main concerns [15] show the processes of both recipients and sibling donors, as well as what happens in their social contexts
The main concern was to fulfil their duty as a sibling by doing what they considered necessary in order to, if possible, save the life of a seriously ill brother or sister
Summary
This study was performed to gain deep knowledge and understanding about the perspective of patients undergoing allogeneic haematopoietic stem cell transplantation (HSCT) with a sibling donor. It is essential to understand the main. Patients’ Main Concerns About Having a Sibling Stem Cell Donor. The Open Nursing Journal, 2018, Volume 12 47 concerns of stem cell recipients in order to enable health professionals to provide person-centred care. Around twothirds of all HSCTs are performed with stem cells from unrelated registry donors and one third with cells from sibling donors. The one-year recipient survival rate is 70-80% [4]. There is limited knowledge about the perspective of patients undergoing allogeneic haematopoietic stem cell transplantation (HSCT) about having a sibling as donor. It is essential to understand the main concerns of stem cell recipients in order to enable nurses to provide person-centred care
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