Abstract

Patient experience is defined as a major quality indicator that should be routinely measured during and after a colonoscopy, according to current ESGE guidelines. There is no standard approach measuring patient experience after the procedure and the comparative performance of the different colonoscopy-specific patient-reported experience measures (PREMs) is unclear. Therefore, the aim was to develop a conceptual model describing how patients experience a colonoscopy, and to compare the model against colonoscopy-specific PREMs. A systematic search for qualitative research published up to December 2021 in PubMed, Cochrane, CINAHL, and PsycINFO was conducted. After screening and quality assessment, data from 13 studies were synthesised using meta-ethnography. Similarities and differences between the model and colonoscopy-specific PREMs were identified. A model consisting of five concepts describes how patients experience undergoing a colonoscopy: health motivation, discomfort, information, a caring relationship, and understanding. These concepts were compared with existing PREMs and the result shows that there is agreement between the model and existing PREMs for colonoscopy in some parts, while partial agreement or no agreement is present in others. These findings suggest that new PREMs for colonoscopy should be developed, since none of the existing colonoscopy-specific PREMs fully cover patients’ experiences.

Highlights

  • Colonoscopy is considered a standard procedure for patients in need of diagnosis, treatment, surveillance, and/or colorectal cancer (CRC) screening [1,2]

  • Seven quality domains have been identified in the current guidelines for lower gastrointestinal endoscopy from the European Society of Gastrointestinal Endoscopy (ESGE); patient experiences being one of them [6]

  • Seven studies clearly stated that some participants had undergone more than one colonoscopy [33,34,37,38,39,41,44]

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Summary

Introduction

Colonoscopy is considered a standard procedure for patients in need of diagnosis, treatment, surveillance, and/or colorectal cancer (CRC) screening [1,2]. The patients’ needs should be reflected in the care they receive and, patients should be seen as partners whose feedback can enhance the clinical performance [8] and safety [9]. They are, the experts of their own experiences [10] and their perspective is an indicator of care quality [11]. There is a need for patient-reported experience measures (PREMs) regarding patients’ experiences before, during, and after a colonoscopy procedure Such an instrument can be used for continuous evaluation of quality improvement projects regarding colonoscopy or for research in the field. The guidelines recommend that the experiences should be reported by the patients themselves by answering questions that are relevant to them [6]

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