8- https://doi.org/10.1145/3603555.3603558
Patient Journey Value Mapping: Illustrating values and experiences along the patient journey to support eHealth design
Translate Article 
This paper introduces patient journey value mapping -an approach to capture experiences, emotions and values implicated in patients' care delivery. As patients' values (i.e., what's important to them in their lives) may change along their patient journeys, our approach aims to support designers to respond to patients' changing needs in the (re)design of eHealth, by mapping patients' values and their prioritisations over time. To substantiate the creation of the map, we propose two preceding data collection phases comprising complementary empirical methods. First, important care-related events and associated values are collected retrospectively through interviews, and in-situ through diary studies. Subsequently, the data are analysed to develop materials to elicit values and value tensions through deepening discussions in an interactive workshop based on which the maps are finalised. The approach is illustrated through discussions and reflections on its application in a case study investigating patient values in eHealth for rehabilitation care. • Human-centered computing → User studies; • Applied computing → Health care information systems.
- Book Chapter
- 2
- 10.3233/978-1-61499-512-8-672
- Jan 1, 2015
The objective of the study is to describe the planned hip-surgery care process as experienced by patients and healthcare professionals, as well as a qualitative analysis of problems. Data was collected through 3 focus group meetings with patients and healthcare professionals. We present the results in form of a patient journey model, examples of problems as expressed by patients and examples of proposed eHealth services by both patients and care professionals. The results indicate that although the patient journey is similar for most patients, their experiences are highly individual and designing eHealth to improve the patient journey will require flexibility and adaptability to the individual's needs.
- Research Article
- 10.2196/48221
- Mar 18, 2025
- JMIR human factors
Chronic kidney disease (CKD) is a common condition worldwide and home dialysis (HD) provides economic, quality of life, and clinical advantages compared to other dialysis modalities. Human-centered design aims to support the development of eHealth solutions with high usability and user experience. However, research on the eHealth needs of patients using HD is scarce. This study aimed to support the design of eHealth for patients with CKD, particularly for patients using HD, by developing a kidney disease experience map that illustrates user needs, concerns, and barriers. The research questions were (1) what experiences do patients, particularly older adults, have in their everyday lives with CKD? (2) what user needs do patients with CKD have for HD eHealth? (3) how can these needs be illustrated using the experience map technique? The study focused on patients aged >60 years, as they are at a higher risk of chronic conditions. The study was conducted as part of the eHealth in HD project, coordinated by Hospital District of Helsinki and Uusimaa, Finland. In total, 18 patients in different care modalities participated in retrospective interviews conducted between October 2020 and April 2021. The interviews included a preliminary task with patient journey illustrations and questions about their experiences and everyday lives with CKD. The data analysis was conducted using a thematic analysis approach and the process included several phases. On the basis of the thematic analysis, 5 categories were identified: healthy habits, concerns about and barriers to eHealth use, digital communication, patients' emotions, and everyday life with CKD. These were illustrated in the first version of the kidney disease experience map. The patients had different healthy habits regarding social life, sports, and other activities. They had challenges with poorly functioning eHealth software and experienced other factors, such as a lack of interest and lack of skills for eHealth use. Technical devices do not always meet the emotional or physical needs of their users. This caused feelings of frustration, worry, and fear in patients, yet also fostered situational awareness and hope. The experience map is a promising method for illustrating user needs and communicating the patient's voice for eHealth development. eHealth offers possibilities to support patient's everyday life with chronic disease. The patient's situation and capacity to use eHealth solutions vary with their everyday challenges, opportunities, and their current stage of treatment. The kidney disease experience map will be used and further developed in the ongoing research project "Better Health at Home-Optimized Human-Centered Care of Predialysis and Home Dialysis Patients" (2022 to 2026).
