Abstract

Childbirth and breastfeeding have become medicalized due to a variety of factors over the past century and support with breastfeeding is a concept that is recently being revisited with initiatives such as the ‘breast buddy’ campaign. While current research addresses the breastfeeding hopes, desires and experiences of mothers with children with no feeding impairments, there has been no research to date which explores the lived feeding experiences of mothers of children born with cleft lip and palate. There are many difficulties with feeding a child with cleft lip and palate. The Clinical Standards Advisory Group's (CSAG, 1998) proposal for the care pathways and location of care recommends that specialist cleft lip and palate nurses visit new mothers of babies with cleft lip and palate within 24 hours with the aim of assisting midwifery units by offering specialist feeding advice and support. This small scale study explores the lived experiences of parents of children with cleft lip and palate. It suggests that the implementation of CSAG's proposals have been problematic and that there needs to be greater collaboration between midwifery units and specialist cleft lip and palate nurses.

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