Abstract
Anecdotal information from families and health care providers suggests a wide variation in services received by patients with DBMD. To document the type, frequency and setting of rehabilitation related therapy services received by patients with DBMD in population based samples from four states. The MDSTARNet is a multistate collaboration that conducts population based surveillance for individuals with DBMD and annual surveys with their primary caregivers. From April 2007 to May 2008, 372 eligible caregivers from four states (AZ, CO, IA and western NY) were identified.
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