Abstract
As neonatal intensive care has advanced, long-term outcomes are a crucial marker of clinical care. Surviving preterm infants are described as having normal, moderate, or severe neurodevelopmental impairment, based on a composite measure of neuromotor, cognitive, neurosensory, and language outcomes. These measures have been established by health-care providers but questioned by parents of preterm infants who have articulated a preference for outcomes that are functional and relevant.1 As the discussion of how to measure outcomes unfolds, there is an ethical imperative to reconsider how long-term neonatal outcomes are presented.
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