Abstract

You have accessJournal of UrologyGeneral & Epidemiological Trends & Socioeconomics: Practice Patterns, Quality of Life & Shared Decision Making I1 Apr 2018MP44-06 THE DEVELOPMENT AND COMPARATIVE EFFECTIVENESS OF A PATIENT CENTERED PROSTATE BIOPSY REPORT IN CLINICAL PRACTICE Jasmir Nayak, Nicholas Scalzo, Alice Chu, Geolani Dy, Liam Macleod, Matthew Mossanen, William Ellis, Daniel Lin, Lawrence True, and John Gore Jasmir NayakJasmir Nayak More articles by this author , Nicholas ScalzoNicholas Scalzo More articles by this author , Alice ChuAlice Chu More articles by this author , Geolani DyGeolani Dy More articles by this author , Liam MacleodLiam Macleod More articles by this author , Matthew MossanenMatthew Mossanen More articles by this author , William EllisWilliam Ellis More articles by this author , Daniel LinDaniel Lin More articles by this author , Lawrence TrueLawrence True More articles by this author , and John GoreJohn Gore More articles by this author View All Author Informationhttps://doi.org/10.1016/j.juro.2018.02.1425AboutPDF ToolsAdd to favoritesDownload CitationsTrack CitationsPermissionsReprints ShareFacebookTwitterLinked InEmail INTRODUCTION AND OBJECTIVES The prostate biopsy pathology report represents a critical document used for decision making in patients diagnosed with prostate cancer, yet the content may be beyond the health literacy of many patients. We sought to create and compare the effectiveness of a patient-centered prostate biopsy report compared with standard reports. METHODS Using a modified Delphi approach, a multidisciplinary group of prostate cancer experts provided consensus for critical components of a prostate biopsy report that should be understood to make treatment decisions. Patient focus groups provided input for syntax and formatting to draft our patient-centered pathology reports. 94 patients with recent prostate biopsies were block randomized to receive the standard report with or without the patient-centered report. We evaluated patient activation, self efficacy, provider communication and empathy, and tested for prostate cancer knowledge at pathology disclosure and 1 month later. We compared study groups with descriptive statistics. RESULTS Experts selected primary and secondary Gleason score and number of positive cores as the most important elements of the report. Patients prioritized a narrative design, non-threatening language and format, and information on risk classification. Initial assessments were completed by 84% (79/94) of participants including 40/46 in the standard report group and 39/48 in the patient-centered report group. On initial assessment, patients who received the patient-centered report had significantly improved ability to recall their Gleason score (100% vs. 85%, p=0.026) and number of positive cores (90% vs. 65%, p=0.014). On follow-up assessment, knowledge recall was similar between groups. Provider communication was uniformly high and did not differ between groups. Ratings of patient self-efficacy did not differ by report. 88% of patients who received the patient-centered report felt that it helped them better understand their results and should always be provided. CONCLUSIONS Patient centered pathology reports are associated with significantly higher knowledge about a prostate cancer diagnosis. These easy to read documents may improve patient-provider communication and help facilitate shared decision making among patients diagnosed with prostate cancer. © 2018FiguresReferencesRelatedDetails Volume 199Issue 4SApril 2018Page: e589 Advertisement Copyright & Permissions© 2018MetricsAuthor Information Jasmir Nayak More articles by this author Nicholas Scalzo More articles by this author Alice Chu More articles by this author Geolani Dy More articles by this author Liam Macleod More articles by this author Matthew Mossanen More articles by this author William Ellis More articles by this author Daniel Lin More articles by this author Lawrence True More articles by this author John Gore More articles by this author Expand All Advertisement Advertisement PDF downloadLoading ...

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