Mothers of disabled children: in mourning or on the march?

Abstract

A traditional psychoanalytic view of parenting a disabled child emphasises responses of shock, grief and depression. Parent activists and social model disability authors dismiss such accounts as destructive and prejudiced, foregrounding structural barriers to accessing services and resources. Further, psychoanalysis is criticised for its anachronistic, ideologically uncritical discourse. Each position brings valuable insights as well as silences. This paper seeks to overcome an assumption of mutual exclusivity by creating a new synthesis, drawing on the work of Winnicott and Kittay. Conclusions are that it is both possible and necessary to allow for ambivalent feelings within parents, while attending to the external, material realities of contextual factors.