‘Masculinity feels less relevant to me now’: masculinity perceptions of fathers of children with neurodevelopmental disorders

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ABSTRACT Fathers of children with neurodevelopmental disorders (NDDs) face numerous family responsibilities and must maintain work-family balance (WFB). This struggle is significant to their perception of masculinity, given that societal expectations still cast fathers in the breadwinner role. Research on parents of children with disabilities has primarily focused on mothers or parents in general, with less attention to fathers’ unique experiences. The aim of the present study is therefore to examine the gender identity perceptions of fathers of children with NDDs as they balance work and family responsibilities. It uses a qualitative phenomenological approach based on semi-structured interviews with 12 fathers of young children with NDDs. The findings suggest that maintaining WFB while caring for a child with NDD contributes to shifts in gender identity and gender role distribution, and to adjustments in marital relationships, along with career compromises and increased community involvement. The study concludes that the identity of fathers of children with NDDs is aligned with new conceptions of masculinity and fatherhood, shaped by life circumstances. Alongside their adaptations, they must navigate societal expectations to serve as breadwinners, facing personal, relational, and social costs given their evolving roles.

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