Abstract

Patients with MND often develop respiratory muscle weakness. Once diaphragmatic muscle weakness is present, sudden deterioration and death can occur in a highly unpredictable way, often leading to crisis hospital admission. Access to specialist respiratory physiotherapy for support with airway clearance and non invasive ventilation in normal place of residence can avoid the need for hospital admission. This paper reports place of death outcomes across a rural region in the East of England with access to an outreach specialist respiratory physiotherapist.

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