Abstract

Caregivers of patients with Alzheimer's disease (AD) experience serious mental and physical health effects, and Latino caregivers face special challenges. This article presents the experiences of 10 Latino AD caregivers as derived from a categorical-content narrative analysis of clinical encounters with them. Themes include lack of knowledge about AD and appropriate diagnostic and treatment services in the Latino community, structural obstacles to care, such as language, financial, and legal status barriers, and the experience of multiple biopsychosocial problems, all of which greatly compound a sense of burden. Finally, the cultural value of familismo contrasts with the reality of stressed extended families unable or unwilling to provide emotional, physical, and financial supports to primary caregivers.

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