Abstract
PurposeTo support the use of quality of life (QOL) assessment tools for older adults, we developed knowledge translation (KT) resources tailored for four audiences: (1) older adults and their family caregivers (micro), (2) healthcare providers (micro), (3) healthcare managers and leaders (meso), and (4) government leaders and decision-makers (macro). Our objectives were to (1) describe knowledge gaps and resources and (2) develop corresponding tailored KT resources to support use of QOL assessment tools by each of the micro-, meso-, and macro-audiences.MethodsData were collected in two phases through semi-structured interviews/focus groups with the four audiences in Canada. Data were analyzed using qualitative description analysis. KT resources were iteratively refined through formative evaluation.ResultsOlder adults and family caregivers (N = 12) wanted basic knowledge about what “QOL assessment” meant and how it could improve their care. Healthcare providers (N = 13) needed practical solutions on how to integrate QOL assessment tools in their practice. Healthcare managers and leaders (N = 14) desired information about using patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) in healthcare programs and quality improvement. Government leaders and decision-makers (N = 11) needed to know how to access, use, and interpret PROM and PREM information for decision-making purposes. Based on these insights and evidence-based sources, we developed KT resources to introduce QOL assessment through 8 infographic brochures, 1 whiteboard animation, 1 live-action video, and a webpage.ConclusionOur study affirms the need to tailor KT resources on QOL assessment for different audiences. Our KT resources are available: www.healthyqol.com/older-adults.
Highlights
Older adults living at home with frailty often have complex problems that affect their ability to function, and their quality of life (QOL) [1, 2]
This project seeks to support the use of QOL assessment tools for older adults by developing introductory and readily available knowledge translation (KT) resources tailored for different users
Uptake and evidence-based use of QOL assessment tools requires KT resources be tailored to address the different knowledge needs [34, 35]. This project aimed to address this gap by learning from four audiences about their needs for tailored, evidenceinformed KT resources regarding use of QOL assessment tools, including (1) older adults and their family caregivers, (2) healthcare providers, (3) healthcare managers and leaders, and (4) government leaders and decision-makers
Summary
Older adults living at home with frailty often have complex problems that affect their ability to function, and their quality of life (QOL) [1, 2] Their family caregivers' QOL can be affected as they often assume primary responsibility for coordinating and providing care, which may create or impact upon their own health issues [3,4,5]. QOL assessment tools can facilitate such assessments by asking patients and family caregivers to respond to questions for measuring their QOL, healthcare experiences, physical, mental, and social health. These tools include health-related QOL measures, patient-reported outcome measures (PROMs), or patient-reported experience measures (PREMs). This project seeks to support the use of QOL assessment tools for older adults by developing introductory and readily available (www.healthyqol.com/older-adults) knowledge translation (KT) resources tailored for different users
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