Abstract
ABSTRACTChronic kidney disease (CKD) has become a public health burden worldwide for its increasing incidence and prevalence, high impact on the health related quality of life (HRQoL) and life expectancy, and high personal and social cost. Patients with advanced CKD, in dialysis or not, suffer a burden from symptoms very similar to other chronic diseases and have a life span not superior to many malignancies. Accordingly, in recent years, renal palliative care has been recommended to be integrated in the traditional care delivered to this population. This research provides an updated overview on renal palliative care from the relevant literature.
Highlights
The history of renal palliative care dates back to the early 1980s when American nephrologists began discussing the practice of dialysis withdrawal in fragile patients with serious comorbidities[1,2]
Patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) are considered the gold standard in assessing the quality of health services provided to the population and as a consequence a paramount component for improvement of the healthcare system
Estimating the prognosis of a patient with Chronic kidney disease (CKD) is of great importance, and the estimation should comply with several purposes such as resource planning, development of a care plan, informed decision making by the patient, and identification of high risk patients who may benefit from an intervention[3]
Summary
The history of renal palliative care dates back to the early 1980s when American nephrologists began discussing the practice of dialysis withdrawal in fragile patients with serious comorbidities[1,2]. The World Health Organization defines Palliative Care as an approach that improves the quality of life of patients (adults and children) and their families who are facing problems associated with life-threatening illness. It prevents and relieves suffering through the early identification, correct assessment, and treatment of pain and other problems, whether physical, psychosocial, or spiritual[9]. Renal palliative care (RPC) is an interdisciplinary model of person-centered medicine that seeks to optimize health-related quality of life (HRQoL) and preserve human dignity through strategies such as adequate communication with patient and family, shared decision making, planning future health care/ treatment, and management of pain and other biopsychosocial and spiritual problems, including grief and proper end-of-life care[5]
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