Is Health Literacy Associated With Parental Comprehension of Discharge Medications for Children With Medical Complexity?

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Children with medical complexity (CMC) are a high-risk population for many reasons including polypharmacy, which predisposes to medication errors. Parental comprehension of discharge medications is essential to reducing the risk for medication errors in CMC. The aim of this study was to determine whether parental health literacy is associated with comprehension of discharge medications among CMC. This was an observational cross-sectional study of English- and Spanish-speaking parents (n = 60) of CMC younger than 18years admitted to the pediatric intensive care unit or acute care floor of 2 affiliated hospitals. Surveys were self-administered at time of discharge. Newest vital sign is a validated tool that identifies patients at risk for low health literacy. A score less than or equal to 3 indicated low health literacy. Comprehension was a composite score encompassing 6 domains (medication name, indication, dose, frequency, duration, and side effects) and was measured as a continuous variable. Simple and multiple linear regression models assessed the association between health literacy and comprehension, accounting for covariates. The unadjusted parental comprehension score was 1.16 higher (SE 0.33) in caregivers with appropriate health literacy (P < .01). Health literacy explained 17% of the variance in comprehension. Once adjusting for income, the association between health literacy and comprehension was no longer significant (P = .05). Low parental health literacy is associated with worse comprehension of discharge medications for parents of CMC, but the relationship is confounded by income. Initiatives to improve medication comprehension with special attention to health literacy and social determinants of health may help address this problem.

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  • Discussion
  • Cite Count Icon 1
  • 10.1007/s11606-012-2085-6
Literacy-sensitive intervention for COPD patients.
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To the Editors: —We commend Kiser et al. for their work addressing the impact of a literacy-sensitive, self-management intervention on improving inhaler technique for patients with chronic obstructive pulmonary disease (COPD).1 Given the high prevalence of inhaler misuse among patients with COPD,2 there is a great need for targeted approaches such as those utilized in this study. We applaud their use of verbal administration for the majority of the study. However, because the commonly used Short Test of Functional Health Literacy in Adults (S-TOFHLA) is a written tool, we wonder what role poor vision might have played in classifying participants’ health literacy. In studies at our institution, we found that among hospitalized patients one-third of participants had poor vision (worse than 20/50 vision in both eyes), 56 % of whom were found to have poor health literacy using a verbal tool.3 This raised concern that poor vision is an additional, unaddressed risk factor for hospitalized patients with COPD. This is salient because research has shown that poor vision can be a separate barrier to self-management, such as the ability to open medication containers,4 and among hospitalized patients, appropriate inhaler technique.2 Given these findings, it is important to understand the role of vision for self-management strategies, with respect to assessing health literacy level and/or whether poor vision compounds health risks associated with low health literacy. Lastly, the average age in Kiser’s study was 63 years old. Because older adults are at increased risk for low health literacy,5 it may be especially important to understand the association between health literacy and vision for older patients. We have found that patients aged 65 years or older are at a dual risk for low health literacy and poor vision, compared to their younger counterparts.3 With the rising numbers of older Americans, it is becoming even more important to differentiate between inhaler misuse due to poor vision and misuse due to low health literacy, as interventions may differ. Future work should attempt to achieve greater clarity between these risk factors.

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