Intersectional research on dementia care for people from culturally and linguistically diverse backgrounds: a protocol for a scoping review

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IntroductionThe specific preferences that shape the daily lives of people with dementia serve as the basis for the concept of person-centred care. However, information on the complex experiences of culturally and linguistically diverse people with dementia (CALDPwD), which determine their multifaceted preferences, is lacking. Therefore, the objective of this scoping review is to identify the range, extent and nature of evidence available in peer-reviewed and grey literature examining how the multilayered experiences of CALDPwD influence everyday living preferences.MethodsWe aim to conduct a scoping review to explore the multilayered experiences of CALDPwD and the intersectional determinants of their everyday living preferences. Using PubMed, MEDLINE (via Ovid for precision and controlled searching), CINAHL (via EBSCO), Scopus and the Cochrane Library, as well as grey literature, we will systematically search for literature in English, German and Turkish without any publication date restrictions. The titles/abstracts and full texts of the identified records will be independently screened by two reviewers. Data extraction will be performed by one researcher and verified by another. All the authors will discuss the conflicts. We will analyse the identified intersectional determinants of preferences using inductive content analysis.Ethics and disseminationThere are no ethical concerns related to conducting this study. We will share our findings with nursing care practitioners. The results will be presented at conferences and disseminated through peer-reviewed articles and practical publications.DiscussionThe findings of the study will address the important gaps in knowledge on the complex intersecting factors that influence the preferences of CALDPwD. A key strength of this study is its comprehensive search strategy, which includes multiple databases and citation tracking to capture diverse, intersectional perspectives of CALDPwD. However, excluding the studies focused on caregiver’s burden may limit insights into how care systems shape the needs and expectations of this population.

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Caring for people with dementia from culturally and linguistically diverse backgrounds in nursing homes: A scoping review
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Patient and public involvement in stroke research: a scoping review protocol
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Background: Growing consensus supports public and patient involvement (PPI) in research as the lived experience of patients, family carers and users of health and social care services bring unique insights to healthcare research. The impact and burden of stroke present ongoing challenges for those living with its consequences and could potentially limit PPI activity. This review aims to explore PPI in published stroke research to identify and describe the extent, nature and design of PPI activities, the type/s of studies involved and the profile of PPI participants engaged in stroke research. Methods: This systematic scoping review, guided by the Arksey & O’Malley five step framework, will be reported according to the PRISMA-ScR reporting guidelines. PPI is embedded at each stage of this proposed scoping review from conceptualisation, participation, contribution and collaboration. The Population, Concept, Context (PCC) structure defines the research question which asks - How is PPI in stroke research currently being conducted and how do the study authors report their PPI activities and its impact? A comprehensive range of electronic databases including PubMed, CINAHL, EMBASE, PsychINFO and the Cochrane Database of Systematic Reviews will generate a broad range of studies. Grey literature (e.g. OpenGrey, Leanus) and internationally recognised stroke organisation websites will be searched for additional research reports. Data extraction will adhere to the Joanna Briggs Institute guidelines, with results collated and mapped to the research cycle stage/s. Conclusions: The outlined scoping review protocol will comprehensively identify and map the existing scientific literature that reports PPI in stroke research. Findings will be presented in relation to PPI conceptualisation, participant profiles and activities in stroke research, volume, type and range of approaches. Knowledge gaps and future priorities for PPI in stroke research will be identified.

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Patient and public involvement in stroke research: a scoping review protocol.
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Background: Growing consensus supports public and patient involvement (PPI) in research as the lived experience of patients, family carers and users of health and social care services bring unique insights to healthcare research. The impact and burden of stroke present ongoing challenges for those living with its consequences and could potentially limit PPI activity. This review aims to explore PPI in published stroke research to identify and describe the extent, nature and design of PPI activities, the type/s of studies involved and the profile of PPI participants engaged in stroke research. Methods: This systematic scoping review, guided by the Arksey & O'Malley five step framework, will be reported according to the PRISMA-ScR reporting guidelines. PPI is embedded at each stage of this proposed scoping review from conceptualisation, participation, contribution and collaboration. The Population, Concept, Context (PCC) structure defines the research question which asks - How is PPI in stroke research currently being conducted and how do the study authors report their PPI activities and its impact? A comprehensive range of electronic databases including PubMed, CINAHL, EMBASE, PsychINFO and the Cochrane Database of Systematic Reviews will generate a broad range of studies. Grey literature (e.g. OpenGrey, Lenus) and internationally recognised stroke organisation websites will be searched for additional research reports. Data extraction will adhere to the Joanna Briggs Institute guidelines, with results collated and mapped to the research cycle stage/s. Conclusions: The outlined scoping review protocol will comprehensively identify and map the existing scientific literature that reports PPI in stroke research. Findings will be presented in relation to PPI conceptualisation, participant profiles and activities in stroke research, volume, type and range of approaches. Knowledge gaps may be identified thereby offering opportunities and recommendations for future priorities for PPI in stroke research.

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  • Free Coulston + 4 more

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  • BMJ Open
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An Introduction to Scoping Reviews.
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Background Studying the spatial distribution of marine species and its alterations through time is fundamental for understanding how they respond to environmental changes, as well as the changes of marine biodiversity, its geographic patterns, and how to best preserve it. Species distribution models (SDM) and Ecological Niche Models (ENM) are statistical tools widely used to investigate distribution range shifts under future and past climate change. The present work provides a protocol for conducting a scoping review (ScR) to assess the contribution of SDM and ENM to the study of past environmental suitability, its spatial and temporal extent and gaps, as well as to identify methodological challenges. Protocol The ScR follows the Joanna Briggs Institute (JBI) methodology. Two online databases, Web of Science and Scopus, will be used for the bibliographic search. Inclusion criteria will be as follows: studies applying SDM and/or ENM in the marine realms worldwide, with clear methodological details, to identify to what extent they contributed to paleobiology. Both peer-reviewed articles, book chapters and grey literature will be considered for eligibility. No search limitations will be applied regarding publication year, geographic area and source type. Studies in English, Spanish and French will be reviewed. The Covidence software will be used for document selection and data extraction. Conclusions This comprehensive approach will provide a visual representation of the available studies, enhancing the understanding and interpretation of the results focusing on the contribution of SDM and ENM to species potential ancient distribution knowledge, identifying the spatial and temporal extent and the presence of gaps of knowledge in their use.

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Communicating a clear, authentic and socially coherent image among nurses and their associations is essential because it helps shape an accurate perception of their role in society. Thus, although each nurse plays a crucial role individually, real transformation in the public perception of the profession requires coordinated and strategic actions by the organisations representing them. This study explored existing knowledge on how nursing colleges, professional associations and unions communicate with their stakeholders. A scoping review was performed following the methodological framework proposed by Arksey and O'Malley and the Joanna Briggs Institute. Eight electronic databases were searched, including CINAHL, Cochrane, Dialnet, Scopus, Scielo, PsycINFO, PubMed and Web of Science for both peer-reviewed articles and grey literature (e.g., reports, policy documents), using both MeSH terms and keywords. Data were collected using the Covidence platform, and articles published in English, Spanish, Portuguese and Italian were included. No limitations were applied regarding the publication year of the articles. They were then independently analysed based on their titles, abstracts and full text according to predefined inclusion and exclusion criteria. Conflicts were resolved via discussions with a third reviewer. In total, 2033 articles were analysed from databases, of which 47 met the inclusion criteria. Eighteen studies used a structured methodology, while 29 were categorised as grey literature. The findings were organised into five key themes: (1) what organisations communicate (e.g., labour conditions, political content, health information); (2) with whom they communicate (e.g., nurses, journalists, political actors, the public); (3) for what purpose (e.g., advocacy, education, recruitment); (4) through what media (e.g., social media, websites, professional journals) and (5) how communication is evaluated (limited but promising insights on effectiveness). This review provides the first diagnosis of communication management in professional nursing organisations. The lack of communication structures, trained professionals and effective strategies limits the effectiveness of communication among the entities. Studies are necessary to diagnose these shortcomings and design plans to improve the visibility and impact of their messages, positioning nurses as qualified and respected professionals. A review protocol was developed and registered in the Open Science Framework platform. Because the research is a scoping review.

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