Intersectional research on dementia care for people from culturally and linguistically diverse backgrounds: a protocol for a scoping review
IntroductionThe specific preferences that shape the daily lives of people with dementia serve as the basis for the concept of person-centred care. However, information on the complex experiences of culturally and linguistically diverse people with dementia (CALDPwD), which determine their multifaceted preferences, is lacking. Therefore, the objective of this scoping review is to identify the range, extent and nature of evidence available in peer-reviewed and grey literature examining how the multilayered experiences of CALDPwD influence everyday living preferences.MethodsWe aim to conduct a scoping review to explore the multilayered experiences of CALDPwD and the intersectional determinants of their everyday living preferences. Using PubMed, MEDLINE (via Ovid for precision and controlled searching), CINAHL (via EBSCO), Scopus and the Cochrane Library, as well as grey literature, we will systematically search for literature in English, German and Turkish without any publication date restrictions. The titles/abstracts and full texts of the identified records will be independently screened by two reviewers. Data extraction will be performed by one researcher and verified by another. All the authors will discuss the conflicts. We will analyse the identified intersectional determinants of preferences using inductive content analysis.Ethics and disseminationThere are no ethical concerns related to conducting this study. We will share our findings with nursing care practitioners. The results will be presented at conferences and disseminated through peer-reviewed articles and practical publications.DiscussionThe findings of the study will address the important gaps in knowledge on the complex intersecting factors that influence the preferences of CALDPwD. A key strength of this study is its comprehensive search strategy, which includes multiple databases and citation tracking to capture diverse, intersectional perspectives of CALDPwD. However, excluding the studies focused on caregiver’s burden may limit insights into how care systems shape the needs and expectations of this population.
24
- 10.1177/1609406919898921
- Jan 1, 2020
- International Journal of Qualitative Methods
2
- 10.1136/bmjopen-2022-061712
- Nov 1, 2022
- BMJ Open
20
- 10.1093/geront/gnaa102
- Aug 13, 2020
- The Gerontologist
12
- 10.1111/jocn.16617
- Jan 22, 2023
- Journal of Clinical Nursing
6
- 10.1016/j.ijnurstu.2023.104674
- Dec 15, 2023
- International journal of nursing studies
47
- 10.1177/1049732317730818
- Sep 16, 2017
- Qualitative Health Research
27
- 10.1093/geront/gnz161
- Nov 30, 2019
- The Gerontologist
18991
- 10.2307/1229039
- Jul 1, 1991
- Stanford Law Review
10
- 10.1186/s13643-023-02309-y
- Aug 17, 2023
- Systematic reviews
983
- 10.1017/s0144686x0000502x
- Sep 1, 1992
- Ageing and Society
- Research Article
11
- 10.12688/hrbopenres.13449.1
- Nov 8, 2021
- HRB Open Research
Background: Growing consensus supports public and patient involvement (PPI) in research as the lived experience of patients, family carers and users of health and social care services bring unique insights to healthcare research. The impact and burden of stroke present ongoing challenges for those living with its consequences and could potentially limit PPI activity. This review aims to explore PPI in published stroke research to identify and describe the extent, nature and design of PPI activities, the type/s of studies involved and the profile of PPI participants engaged in stroke research. Methods: This systematic scoping review, guided by the Arksey & O’Malley five step framework, will be reported according to the PRISMA-ScR reporting guidelines. PPI is embedded at each stage of this proposed scoping review from conceptualisation, participation, contribution and collaboration. The Population, Concept, Context (PCC) structure defines the research question which asks - How is PPI in stroke research currently being conducted and how do the study authors report their PPI activities and its impact? A comprehensive range of electronic databases including PubMed, CINAHL, EMBASE, PsychINFO and the Cochrane Database of Systematic Reviews will generate a broad range of studies. Grey literature (e.g. OpenGrey, Leanus) and internationally recognised stroke organisation websites will be searched for additional research reports. Data extraction will adhere to the Joanna Briggs Institute guidelines, with results collated and mapped to the research cycle stage/s. Conclusions: The outlined scoping review protocol will comprehensively identify and map the existing scientific literature that reports PPI in stroke research. Findings will be presented in relation to PPI conceptualisation, participant profiles and activities in stroke research, volume, type and range of approaches. Knowledge gaps and future priorities for PPI in stroke research will be identified.
- Research Article
10
- 10.12688/hrbopenres.13449.2
- Jul 28, 2022
- HRB open research
Background: Growing consensus supports public and patient involvement (PPI) in research as the lived experience of patients, family carers and users of health and social care services bring unique insights to healthcare research. The impact and burden of stroke present ongoing challenges for those living with its consequences and could potentially limit PPI activity. This review aims to explore PPI in published stroke research to identify and describe the extent, nature and design of PPI activities, the type/s of studies involved and the profile of PPI participants engaged in stroke research. Methods: This systematic scoping review, guided by the Arksey & O'Malley five step framework, will be reported according to the PRISMA-ScR reporting guidelines. PPI is embedded at each stage of this proposed scoping review from conceptualisation, participation, contribution and collaboration. The Population, Concept, Context (PCC) structure defines the research question which asks - How is PPI in stroke research currently being conducted and how do the study authors report their PPI activities and its impact? A comprehensive range of electronic databases including PubMed, CINAHL, EMBASE, PsychINFO and the Cochrane Database of Systematic Reviews will generate a broad range of studies. Grey literature (e.g. OpenGrey, Lenus) and internationally recognised stroke organisation websites will be searched for additional research reports. Data extraction will adhere to the Joanna Briggs Institute guidelines, with results collated and mapped to the research cycle stage/s. Conclusions: The outlined scoping review protocol will comprehensively identify and map the existing scientific literature that reports PPI in stroke research. Findings will be presented in relation to PPI conceptualisation, participant profiles and activities in stroke research, volume, type and range of approaches. Knowledge gaps may be identified thereby offering opportunities and recommendations for future priorities for PPI in stroke research.
- Research Article
6
- 10.21956/hrbopenres.14657.r30802
- Jul 18, 2022
- HRB Open Research
Background: Growing consensus supports public and patient involvement (PPI) in research as the lived experience of patients, family carers and users of health and social care services bring unique insights to healthcare research. The impact and burden of stroke present ongoing challenges for those living with its consequences and could potentially limit PPI activity. This review aims to explore PPI in published stroke research to identify and describe the extent, nature and design of PPI activities, the type/s of studies involved and the profile of PPI participants engaged in stroke research. Methods: This systematic scoping review, guided by the Arksey & O’Malley five step framework, will be reported according to the PRISMA-ScR reporting guidelines. PPI is embedded at each stage of this proposed scoping review from conceptualisation, participation, contribution and collaboration. The Population, Concept, Context (PCC) structure defines the research question which asks - How is PPI in stroke research currently being conducted and how do the study authors report their PPI activities and its impact? A comprehensive range of electronic databases including PubMed, CINAHL, EMBASE, PsychINFO and the Cochrane Database of Systematic Reviews will generate a broad range of studies. Grey literature (e.g. OpenGrey, Lenus) and internationally recognised stroke organisation websites will be searched for additional research reports. Data extraction will adhere to the Joanna Briggs Institute guidelines, with results collated and mapped to the research cycle stage/s. Conclusions: The outlined scoping review protocol will comprehensively identify and map the existing scientific literature that reports PPI in stroke research. Findings will be presented in relation to PPI conceptualisation, participant profiles and activities in stroke research, volume, type and range of approaches. Knowledge gaps may be identified thereby offering opportunities and recommendations for future priorities for PPI in stroke research.
- Research Article
13
- 10.1186/s13643-020-01469-5
- Sep 14, 2020
- Systematic reviews
BackgroundThe experience of loneliness during pregnancy and in new parenthood has not been targeted and developed as a program of research, despite evidence indicating that the incidence of loneliness is highest in those aged 16 to 24 and that loneliness rises during transitional periods. The scarcity of parenthood-loneliness inquiries leaves a gap in our understanding of new parenthood and its effects on the health and well-being of parents and their children. Here, a scoping review protocol will be presented to address this gap. The objective of this study will be to summarize the current knowledge of loneliness experienced during pregnancy and by parents during the postpartum period through the first 5 years of the child’s life.MethodsA scoping review protocol was designed following Arksey and O’Malley’s framework. We will include all types of literature in English, including all study designs, reviews, opinion articles, dissertations, reports, books, and grey literature. To be considered for inclusion, sources should focus on loneliness in pregnant persons, postpartum people, and parents of children 5 years or younger. We will search the following electronic databases (from inception onwards): MEDLINE, EMBASE, CINAHL Complete, Cochrane Library, PsycINFO, Dissertations & Theses Global, Sociological s, Scopus, and Web of Science. Grey literature will be identified searching the British governmental website gov.uk, the Jo Cox Commission on Loneliness, the Campaign to End Loneliness, and the British Red Cross’s Action on Loneliness websites. Two reviewers, working independently of each other, will screen the titles and abstracts of the articles returned by the searches, then screen the selected full-text articles, and extract data. A third reviewer will cast the deciding vote in case no consensus is reached. Results will be given in the narrative form, mapped, and illustrated.DiscussionThis scoping review will capture the state of the current literature on loneliness in pregnancy and new parenthood. Results will be published in a peer-reviewed journal. We anticipate that the study will identify gaps and make recommendations for future areas of study and related interventions. The protocol is available on Open Science Framework at DOI 10.17605/OSF.IO/BFVPZ.
- Research Article
- 10.1136/bmjopen-2024-090338
- Dec 1, 2024
- BMJ Open
IntroductionThe global burden of cancer is escalating, with Asia accounting for over half of cancer-related deaths worldwide. As cancer often diminishes patients’ quality of life and sense of dignity, dignity-related...
- Research Article
4
- 10.11124/jbies-20-00400
- Jun 21, 2021
- JBI evidence synthesis
This scoping review aims to map the evidence on circus activities described and/or evaluated as a health intervention for children, youths, and adolescents. Increased understanding of how these interventions work, and gaps identified, will allow researchers and practitioners to advance the science behind these approaches. Circus activities are proposed in the literature as a health intervention, due to their variety, non-competitive nature, and potential to develop fundamental physical and social skills. For the purposes of this review, circus activities as a health intervention are defined as aerial, acrobatic, equilibristic, and manipulation skills taught to participants to maintain, improve, or modify health, functioning, or health conditions. English-language evidence will be considered where circus activities as a health intervention are described and/or evaluated for participants up to 24 years of age, or who are defined as children, youths, or adolescents. Literature will be excluded where the focus of the intervention is clowning, magic, or drama games, or where circus activities are not the therapeutic part of the activity. MEDLINE (Ovid), CINAHL Complete (EBSCO), Scopus (Elsevier), PsycINFO (Ovid), ProQuest Dissertations and Theses Global, and Google Scholar will be searched for peer-reviewed and gray literature. No restriction on dates, type, methodology, or setting will be imposed, but limits will include "human" and "English language." Screening and data extraction will be performed by two independent reviewers. Reference lists of included sources will be screened. Results will be presented in diagrammatic or tabular format, alongside a narrative description, under headings aligning with the research sub-questions.
- Research Article
8
- 10.11124/jbisrir-d-19-00029
- Jan 1, 2020
- JBI Evidence Synthesis
This scoping review aims to systematically identify and map the roles of primary healthcare professionals in rural and remote areas during natural, man-made and pandemic disasters. Disasters can be caused by natural events, man-made incidents or infective agents resulting in a pandemic. Healthcare practitioners working in primary care settings have important roles during disaster prevention, preparedness, response and recovery. When rural and remote settings are affected by disasters, there are unique challenges for healthcare professionals. This review will aim to contribute to disaster management knowledge within rural and remote primary health care, and assist in the development of practice-based disaster preparedness and future policy discussion. This review will consider studies that include primary healthcare professionals, defined as having first-level contact with patients in the community, in rural or remote areas only. The role of the healthcare professional will also be discussed within the paper. Research from Australia, Canada, the USA, New Zealand and the UK will be included. Databases to be searched include CINAHL (EBSCOhost), PubMed, Scopus and Embase (Elsevier), as well as gray literature within Trove, MedNar and OpenGrey. The search will be limited to articles written in English and published from 1978 to the present. Titles and abstracts will be screened by two independent reviewers, and full-text studies will be retrieved and assessed against the inclusion criteria. Results will be recorded in a Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) diagram. Data will be extracted and presented as a tabular summary with supporting narratives and figures.
- Research Article
8
- 10.1136/bmjopen-2019-031105
- Jan 1, 2020
- BMJ Open
IntroductionThe use of social media has risen steadily since its introduction in the early 2000s, and today there are between 2 and 3 billion users worldwide. Research on the link...
- Research Article
- 10.1097/sp9.0000000000000022
- Jun 1, 2024
- International journal of surgery protocols
Oral cancer is the sixth most prevalent cancer type worldwide. Patients are placed in a crippling predicament due to the functional and psychosocial difficulties brought on by the illness and its treatments. Both surgeons and maxillofacial prosthodontists may encounter challenges with reconstruction and therapy following cancer treatment. Over 20 years, the fibula has remained the mainstay of reconstructions for head and neck cancer. Maxillary and mandibular jaws with fibula reconstructions can use fixed or removable prosthetic rehabilitation solutions. The proposed scoping review aims to ascertain the volume and nature of evidence concerning the difficulties and corrective measures in the prosthetic rehabilitation of fibula-reconstructed head and neck cancer cases. The findings will aid in improving the prosthetic treatment care for the affected population. The Joanna Briggs Institute (JBI) scoping review protocol will be followed in developing and reporting the scoping review methodology. Methods to identify the relevant literature will involve the systematic search of databases like PubMed, Scopus, Google Scholar, Cochrane Library, and gray literature sources for pertinent articles on the subject. Only papers published in English literature will be considered for the review, and the data collection period is limited to the past 20 years. The screening process will utilize defined inclusion/exclusion criteria for Title/Abstract and Full-text screening by two independent reviewers in covidence, and a third reviewer will resolve any conflicts. The data extracted will include specific details about the participants, concept, population, study methods, challenges encountered during prosthetic rehabilitation, and their management. Inductive thematic analysis and descriptive statistics will be applied where appropriate. The narrative synthesis of the evidence will be accomplished through data extraction in a tabular format, and the results will be presented as a narrative summary.
- Research Article
11
- 10.1016/j.jtocrr.2023.100469
- Feb 2, 2023
- JTO Clinical and Research Reports
Interventions Designed to Increase the Uptake of Lung Cancer Screening: An Equity-Oriented Scoping Review
- Research Article
59
- 10.4300/jgme-d-22-00620.1
- Oct 1, 2022
- Journal of graduate medical education
An Introduction to Scoping Reviews.
- Research Article
- 10.12688/openreseurope.18381.1
- Aug 28, 2024
- Open Research Europe
Background Studying the spatial distribution of marine species and its alterations through time is fundamental for understanding how they respond to environmental changes, as well as the changes of marine biodiversity, its geographic patterns, and how to best preserve it. Species distribution models (SDM) and Ecological Niche Models (ENM) are statistical tools widely used to investigate distribution range shifts under future and past climate change. The present work provides a protocol for conducting a scoping review (ScR) to assess the contribution of SDM and ENM to the study of past environmental suitability, its spatial and temporal extent and gaps, as well as to identify methodological challenges. Protocol The ScR follows the Joanna Briggs Institute (JBI) methodology. Two online databases, Web of Science and Scopus, will be used for the bibliographic search. Inclusion criteria will be as follows: studies applying SDM and/or ENM in the marine realms worldwide, with clear methodological details, to identify to what extent they contributed to paleobiology. Both peer-reviewed articles, book chapters and grey literature will be considered for eligibility. No search limitations will be applied regarding publication year, geographic area and source type. Studies in English, Spanish and French will be reviewed. The Covidence software will be used for document selection and data extraction. Conclusions This comprehensive approach will provide a visual representation of the available studies, enhancing the understanding and interpretation of the results focusing on the contribution of SDM and ENM to species potential ancient distribution knowledge, identifying the spatial and temporal extent and the presence of gaps of knowledge in their use.
- Research Article
10
- 10.1136/bmjopen-2021-059441
- Jun 1, 2022
- BMJ Open
IntroductionImproving oral health and reducing oral health inequalities is an important global health priority. ‘Upstream interventions’ are a vital part of the collective effort to reduce oral disease burdens, however...
- Research Article
4
- 10.1016/j.jtv.2023.01.004
- Jan 10, 2023
- Journal of tissue viability
Self-supporting wound care mobile applications for nurses: A scoping review protocol
- Research Article
1
- 10.1111/jan.17095
- Jun 9, 2025
- Journal of advanced nursing
Communicating a clear, authentic and socially coherent image among nurses and their associations is essential because it helps shape an accurate perception of their role in society. Thus, although each nurse plays a crucial role individually, real transformation in the public perception of the profession requires coordinated and strategic actions by the organisations representing them. This study explored existing knowledge on how nursing colleges, professional associations and unions communicate with their stakeholders. A scoping review was performed following the methodological framework proposed by Arksey and O'Malley and the Joanna Briggs Institute. Eight electronic databases were searched, including CINAHL, Cochrane, Dialnet, Scopus, Scielo, PsycINFO, PubMed and Web of Science for both peer-reviewed articles and grey literature (e.g., reports, policy documents), using both MeSH terms and keywords. Data were collected using the Covidence platform, and articles published in English, Spanish, Portuguese and Italian were included. No limitations were applied regarding the publication year of the articles. They were then independently analysed based on their titles, abstracts and full text according to predefined inclusion and exclusion criteria. Conflicts were resolved via discussions with a third reviewer. In total, 2033 articles were analysed from databases, of which 47 met the inclusion criteria. Eighteen studies used a structured methodology, while 29 were categorised as grey literature. The findings were organised into five key themes: (1) what organisations communicate (e.g., labour conditions, political content, health information); (2) with whom they communicate (e.g., nurses, journalists, political actors, the public); (3) for what purpose (e.g., advocacy, education, recruitment); (4) through what media (e.g., social media, websites, professional journals) and (5) how communication is evaluated (limited but promising insights on effectiveness). This review provides the first diagnosis of communication management in professional nursing organisations. The lack of communication structures, trained professionals and effective strategies limits the effectiveness of communication among the entities. Studies are necessary to diagnose these shortcomings and design plans to improve the visibility and impact of their messages, positioning nurses as qualified and respected professionals. A review protocol was developed and registered in the Open Science Framework platform. Because the research is a scoping review.
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