Impact of Natural Disasters on Children Receiving Palliative Care Lessons Learned from Hurricane Harvey

Abstract

To discuss the implications of natural disasters for pediatric palliative care patients and suggest a series of best practices for pediatric palliative care patients, their families, and their healthcare providers. Data from the aftermath of Hurricane Katrina provide insight into the effects of natural disasters on children with chronic medical conditions. We supplement this with details from our recent experience caring for pediatric palliative care patients during Hurricane Harvey as well as new data about grief and bereavement in the context of natural disasters. Pediatric palliative care patients are a group that should be considered at high risk in the setting of a natural disaster. They are at increased risk of new medical problems or exacerbations of chronic conditions. Additionally, their past history places them at increased risk for disturbances in their psychosocial functioning including posttraumatic stress syndrome. This highlights the need for increased involvement of pediatric palliative care teams in preparation for a natural disaster, during the event, and in the aftermath.