Abstract

BackgroundClinical quality registries (CQRs) are playing an increasingly important role in improving health outcomes and reducing health care costs. CQRs are established with the purpose of monitoring quality of care, providing feedback, benchmarking performance, describing pattern of treatment, reducing variation and as a tool for conducting research.ObjectivesTo synthesise the impact of clinical quality registries (CQRs) as an ‘intervention’ on (I) mortality/survival; (II) measures of outcome that reflect a process or outcome of health care; (III) health care utilisation; and (IV) healthcare-related costs.MethodsThe following electronic databases were searched: MEDLINE, EMBASE, CENTRAL, CINAHL and Google Scholar. In addition, a review of the grey literature and a reference check of citations and reference lists within articles was undertaken to identify relevant studies in English covering the period January 1980 to December 2016. The PRISMA-P methodology, checklist and standard search strategy using pre-defined inclusion and exclusion criteria and structured data extraction tools were used. Data on study design and methods, participant characteristics attributes of included registries and impact of the registry on outcome measures and/or processes of care were extracted.ResultsWe identified 30102 abstracts from which 75 full text articles were assessed and finally 17 articles were selected for synthesis. Out of 17 studies, six focused on diabetes care, two on cardiac diseases, two on lung diseases and others on organ transplantations, rheumatoid arthritis, ulcer healing, surgical complications and kidney disease. The majority of studies were “before after” design (#11) followed by cohort design (#2), randomised controlled trial (#2), experimental non randomised study and one cross sectional comparison. The measures of impact of registries were multifarious and included change in processes of care, quality of care, treatment outcomes, adherence to guidelines and survival. Sixteen of 17 studies demonstrated positive findings in their outcomes after implementation of the registry.ConclusionsDespite the large number of published articles using data derived from CQRs, few have rigorously evaluated the impact of the registry as an intervention on improving health outcomes. Those that have evaluated this impact have mostly found a positive impact on healthcare processes and outcomes.Trial registrationPROSPERO CRD42015017319

Highlights

  • Clinical registries play an important role in monitoring disease and healthcare delivery patterns and generating real world evidence of the impact of treatment and service delivery models on health outcomes [1,2,3]

  • We identified 30102 abstracts from which 75 full text articles were assessed and 17 articles were selected for synthesis

  • Despite the large number of published articles using data derived from Clinical quality registries (CQRs), few have rigorously evaluated the impact of the registry as an intervention on improving health outcomes

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Summary

Introduction

Clinical registries play an important role in monitoring disease and healthcare delivery patterns and generating real world evidence of the impact of treatment and service delivery models on health outcomes [1,2,3]. Clinical registries are being used in quality improvement projects to improve healthcare processes [4,5,6,7,8,9,10,11], adherence to clinical practice guidelines [9, 12,13,14,15] and standards [16,17,18]; and reduce the cost of delivering care [19,20,21]. Clinical quality registries (CQRs) are playing an increasingly important role in improving health outcomes and reducing health care costs. CQRs are established with the purpose of monitoring quality of care, providing feedback, benchmarking performance, describing pattern of treatment, reducing variation and as a tool for conducting research

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