Abstract
ObjectivesPatient education is a holistic therapeutic approach that focuses on the needs of individuals with a chronic condition and aims to improve quality of life. The patient education program “Living better with ADHD” is aimed at children and adolescents with ADHD from 8 to 14 years old and their parents. It consists of 5 themed group sessions and 2 semi-structured individual interviews. The aim of this study was to investigate the change in quality of life of the children and their parents who benefited from the program. Patients and methodThis is a prospective monocentric study of 35 families who participated in the “Living better with ADHD” program between February 2022 and July 2022 and completed the quality of life questionnaires KIDSCREEN-27 for children and WHOQOL-BREF for parents, pre-intervention and then 6 weeks later. ResultsThere was an improvement in the children's quality of life in the area of physical wellbeing and a trend towards an improvement in the quality of life in the “school environment”. This change was not correlated with any of the socio-demographic or clinical variables examined. On the other hand, there was no change in parental quality of life. ConclusionThese preliminary results suggest the value of therapeutic education for children with ADHD. Given the limitations of our method, randomized controlled trials should investigate the effects on quality of life for the long term.
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