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How do clinicians and people with aphasia experience telehealth assessment? A synthesis of four data sources from the FATE-A study

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ABSTRACT Background and aim Telehealth is increasingly used within healthcare, including by Speech and Language Therapists working with people who have aphasia. Aphasia is a communication disability common post stroke that presents challenges for telehealth, (e.g. people with aphasia are more dependent on multimodal communication techniques), which can be difficult to interpret through videoconferencing platforms. Assessments are a core part of the SLT role, and can pose particular challenges for telehealth, (e.g. testing receptive language skills). This study explored how people with aphasia and clinicians experience telehealth in the context of completing assessments, including their priorities for future directions. Methods and procedures This study integrated four different research activities from the “Improving access to healthcare: Face-to-face And Telehealth Equivalence of assessments in Aphasia (FATE-A)” study. The four data sources used were: qualitative responses to a survey (n = 124 Speech and Language Therapists), a focus group study (n = 14 Speech and Language Therapists), usability testing sessions (n = 4 Speech and Language Therapists, n = 6 advisers with aphasia) and Patient and Public Involvement and Engagement (PPIE) workshops (n = 7 advisers with aphasia). Findings from the four sources were inductively analysed to develop descriptive themes taking a meta-synthesis approach. Divergence and convergence of themes between sources was explored. Outcomes and Results There were three main themes: barriers, facilitators, and current and future preferences. Barriers and facilitators included severity of aphasia and other impairments; presence or absence of helpers; competence with technology (both clinician and person with aphasia); challenges around hardware and video-conferencing platforms; poor versus reliable internet connectivity; factors specific to assessments (e.g. lack of standardized assessment for online use); challenges setting up online assessments; and the emotional impact. Additional facilitators included preparation and support with set-up, and support with emotional wellbeing. Clinicians wanted more resources to facilitate online assessment, better hardware and platforms. While clinicians and people with aphasia perceived benefits to telehealth, both stakeholder groups wanted a flexible personalized hybrid service. Although there was broad congruence of themes, different data sources contributed uniquely, for example, the challenges of negotiating multiple steps to get online (usability testing), and preferred terminology (PPIE). Conclusions It is likely that telehealth will continue to be a component of Speech and Language Therapy services. Both people with aphasia and clinicians considered telehealth a valid model of service delivery, so long as it is tailored to the needs of the individual, and is part of a person-centred model of care.

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  • Research Article
  • Cite Count Icon 10
  • 10.1186/s40900-025-00748-6
Measuring impacts of patient and public involvement and engagement (PPIE): a narrative review synthesis of review evidence
  • Jul 4, 2025
  • Research Involvement and Engagement
  • William Lammons + 2 more

IntroductionPatient and public involvement and engagement (PPIE), in its various forms, offers a wide range of potential benefits to research, health services and systems, and to those involved in this collaborative process. As PPIE has expanded over the years, so too have expectations regarding the evaluation of its effects and impacts.MethodsWe conducted a narrative review synthesis of review articles around measurement of PPIE impact – conceptualising ‘impact’ to include any type of effect on people or processes, both proximate and longer-term. We searched PubMed, Cochrane Library of Systematic Reviews, and CINAHL electronic databases and conducted hand searches. Inclusion criteria comprised: public involvement, reporting impacts of public involvement, and using a review methodology. This yielded 27 review articles based on studies in the UK, US, Canada and Australia.We employed a three-part analysis process: 1) extracting all subcategories of impact reported into Excel (n = 37); 2) combining and categorising this list into primary and subcategories of impact based on thematic analysis; and 3) cross-checking these categories with the original review.ResultsOur review of reviews indicates that studies often do not report impacts of PPIE activities and when they do, they report a wide range, with little consistency across studies. We classified four broad types of PPIE impacts on: people (PPIE contributors, researchers, healthcare staff and policymakers), different phases of the research process, services and systems and on PPIE processes themselves. Across these categories, the most commonly documented impacts relate to impacts on PPIE collaborators, including individual empowerment and recovery, on researchers, improving their understanding of and collaboration with people typically excluded from research and on earlier phases of the research process. Studies reported both positive and negative impacts. Methodologically, previous evaluations of PPIE impact predominantly relied on retrospective self-reporting, with little triangulation from other data sources or prospective data collection over time.ConclusionThe impacts of PPIE appear to be under- and inconsistently reported. More robust evaluation of PPIE impact, drawing on the broad categories we present, offers opportunities for PPIE contributors, researchers and funders to better understand the effects of these investments.

  • Research Article
  • Cite Count Icon 5
  • 10.1111/1460-6984.12971
The impact of the COVID-19 pandemic on speech and language therapy services in Ireland: A mixed-methods survey at two time points during the pandemic.
  • Oct 31, 2023
  • International journal of language & communication disorders
  • Nicole Müller + 4 more

During the COVID-19 pandemic, Ireland implemented a series of stringent public health measures, including lockdowns and suspension of non-urgent clinical services. To investigate the impact of the COVID-19 pandemic on the demand for and delivery of speech and language therapy (SLT) services in Ireland in 2020. Two iterations of a cross-sectional, mixed-methods online survey were distributed to speech and language therapists (SLTs) and SLT students in Ireland in the spring and autumn of 2020 using a combination of purposive and snowball sampling. The spring survey yielded 407 responses (including 14 from SLT students), while 197 respondents took part in the autumn (13 students). Survey analysis focused on questions related to the impact of the COVID-19 pandemic on delivery and demand for SLT services (student responses were excluded from analysis owing to low response rate). The largest group in respect of experience were senior SLTs (58% in both surveys). The work settings most strongly represented were HSE primary care (34.4%) and disability services (26.5%) in the spring, and HSE primary care (39.1%), acute hospitals (22.8%) and disability services (20.8%) in the autumn. We used descriptive statistics, including distribution analysis, to analyse the quantitative data. Free text data were interrogated through a variant of a conventional qualitative content analysis. In the spring, cessation of face-to-face services featured prominently (reported by 65.6% versus 14.2% in the autumn), across SLTs' work settings, except acute hospitals. Lower demand was reported by 42.5% in the spring, while in the autumn, 48.7% indicated that demand was higher. SLTs experienced large-scale redeployment (spring: 45.9%, autumn: 38.4%), with HSE primary care SLTs redeployed most (spring: 71.7%; autumn: 62.3%). The need to suddenly pivot to telehealth was a significant challenge in terms of training, technology and logistics. New ways of working emerged and gradually, telehealth became more embedded. SLTs also had to adapt to working with evolving public health measures, such as space restrictions and personal protective equipment (PPE) requirements. Across the two survey iterations, SLTs reported tensions between demands and capacity: while referrals and demand initially decreased in the spring, this led to increased backlog and longer waiting lists, ongoing and increasing pressure on clinicians and services, and negatively impacted clients and families. The COVID-19 pandemic had a significant negative impact on SLT services in Ireland. Going forward, the SLT profession and its services will require sustained support to mitigate long-term negative consequences, such as increased waiting lists. What is already known on this subject The negative impact of the COVID-19 pandemic on SLT services has been examined in several countries. Ireland imposed more stringent pandemic-management measures than many other countries, and it was therefore warranted to investigate how SLT services in the country were affected. What this study adds to the existing knowledge Face-to-face SLT services effectively ceased in most non-urgent contexts in spring 2020. This coincided with large-scale redeployment of SLTs to non-SLT contexts. By autumn 2020, demand had increased again, but not all services had recommenced, and redeployment was still a factor. Although SLTs adapted to the ongoing changes imposed by the pandemic, they voiced concern about increasing backlogs and longer waiting lists, ongoing and increasing pressure on both SLTs and services, and negative impacts on clients and families. What are the actual and clinical implications of this work? The COVID-19 pandemic had a significant negative impact on SLT services in Ireland. Going forward, the SLT profession and its services will require sustained support to mitigate long-term negative consequences, such as increased waiting lists.

  • Research Article
  • Cite Count Icon 6
  • 10.1111/1460-6984.12671
Speech and language therapy service provision in spinal injury units compared to major trauma centres in England: Are services matched?
  • Sep 12, 2021
  • International Journal of Language & Communication Disorders
  • Jackie Mcrae + 2 more

National UK guidance makes recommendations for speech and language therapy staffing levels in critical care and rehabilitation settings. Traumatic spinal cord injury patients often require admission primarily to critical care services within a major trauma centre prior to transfer to a specialist spinal injury unit but may not receive similar levels of care. Dysphagia and communication difficulties are recognised features of cervical spinal cord injury; however, little is known about access to speech and language therapy services to provide rehabilitation and improve outcomes. The aim of this study was to compare the workforce and clinical practices of speech and language therapy services in eight spinal injury units and four major trauma centres in England through an online survey. An online survey was created with 26 multiple-choice questions across seven sub-sections, with options for free-text comments. These were sent to a named speech and language therapy contact at each of the specified units. Responses were uploaded into Excel for analyses, which included descriptive statistics and analysis of themes. Responses were received from 92% (11/12) speech and language therapy services invited, which included seven out of eight spinal injury units and all four major trauma centres. No units met national staffing recommendations. Staff in spinal injury units provided an average of 27h per week input to the unit compared to 80h in a major trauma centre. Despite caseload variations, speech and language range of therapy involvement and prioritisation process were equivalent. Access to instrumental assessment varied, with less use of Fibreoptic Endoscopic Evaluation of Swallowing in spinal injury units despite its clinical value to the spinal cord injury caseload. Speech and language therapy services delivering post-acute and long-term rehabilitation to spinal cord injury patients are limited by their resources and capacity, which restricts the level of therapy delivered to patients. This may have an impact on clinical outcomes for communication and swallowing impairments. Further evidence is needed of the interventions delivered by speech and language therapists and outcomes will be beneficial alongside benchmarking similar services. What is already known on this subject In England, people who sustain a spinal cord injury are admitted to a major trauma centre prior to transfer to a specialist spinal injury unit. Dysphagia and communication impairments are recognised as a complication of cervical spinal cord injury and benefit from speech and language therapy intervention. National recommendations exist for staffing levels, expertise and competencies for speech and language therapists working in critical care and rehabilitation units. What this study adds This study identified variations in the levels of speech and language therapy staffing, seniority, service delivery and access to instrumental assessments for dysphagia between major trauma centres and spinal injury units. None of the services complied with national staffing recommendations. Clinical implications of this study Speech and language therapy services in spinal injury units are often available part-time or have limited access to diagnostic tools which limits the range and intensity of rehabilitation input available. This has clinical implications for outcomes for swallowing and communication as well as long-term consequences for integrating back into community.

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  • Cite Count Icon 9
  • 10.1111/1460-6984.12988
UK paediatric speech and language therapists' perceptions on the use of telehealth in current and future clinical practice: An application of the APEASE criteria.
  • Nov 27, 2023
  • International journal of language & communication disorders
  • Jenna Charlton + 4 more

Telehealth for paediatric speech and language therapy became one of the most salient modes of service delivery during the COVID-19 pandemic. Evidence for speech and language therapy services via telehealth in comparison to face-to-face delivery demonstrates promising outcomes, and studies have begun to explore practitioner and client experiences. However, across the literature, many critical elements of services are overlooked, and there is a need to frame the evidence base within a theoretical model that can draw out practical implications that consider the range of factors having an impact on clinical implementation in real-world contexts. The APEASE (Acceptability, Practicability, Effectiveness, Affordability, Side-effects, and Equity) criteria offer such a model. The current study explored practising UK speech and language therapists' (SLTs) clinical experience of telehealth through the lens of the APEASE criteria and aimed to identify recommendations for future service provision from the practitioner perspective. An online survey structured using the APEASE criteria was developed in collaboration with the UK Royal College of Speech and Language Therapists. Quantitative data were analysed using descriptive statistics and qualitative data were analysed using reflexive thematic analysis. Four hundred and thirty-eight qualified and practicing UK paediatric SLTs completed the survey. Telehealth was broadly acceptable and practicable to SLTs yet there remains some uncertainty about its efficacy and cost-effectiveness compared to face-to-face interventions and how equitable it is for different population groups. SLTs reported that effective implementation of telehealth services was dependent upon several contextual factors; affordability was a perceived barrier to clients having access to telehealth resources, intervention via telehealth was perceived as more acceptable than assessment, and whilst many SLTs welcomed aspects of telehealth, there were concerns about the physical and mental health consequences for practitioners. Six themes for the future development of telehealth in paediatric speech and language therapy were identified: (1) balanced and tailored services; (2) technology and equipment; (3) information and communication; (4) capacity building; (5) monitoring and evaluation; and (6) leadership and governance. Outcomes highlight promising, concerning and uncertain aspects of telehealth in paediatric speech and language therapy. SLTs value a flexible and tailored approach to service delivery and recommend that effective leadership, clear communication, ongoing policy and guidance development, upskilling of users and careful evaluation of impact are required to ensure optimal implementation. The APEASE criteria offer a valuable opportunity to enhance and streamline practice and research to ensure sustainable implementation of telehealth in the paediatric speech and language therapy services of tomorrow. What is already known on this subject The COVID-19 pandemic led to the increased use of telehealth as a main mode of service delivery in paediatric speech and language therapy. Pre-COVID-19, evidence for the use of telehealth in this field included small-scale experimental studies that reported on children with particular disorders and explored telehealth outcomes in comparison to face-to-face delivery. The realities of at-scale clinical practice were not well-represented, and critical elements of service such as cost-effectiveness were often overlooked in the paediatric literature. Furthermore, despite emerging global evidence for temporary telehealth responses to the crisis in speech and language therapy, the long-term and future use of telehealth remains unclear. What this paper adds to existing knowledge The current study applied the lens of the APEASE (Acceptability, Practicability, Effectiveness, Affordability, Side-effects, and Equity) criteria, which were used in this case to consider socioeconomic, ecological and cultural factors to capture an overarching understanding of the use of telehealth in paediatric speech and language therapy, and to inform the role of telehealth in future, longer-term and at-scale service development. Results indicated emerging trends in UK paediatric speech and language therapists' (SLTs') perceptions of telehealth and SLTs perceived a hybrid approach to service delivery, combining mostly face-to-face services with some telehealth, was likely to continue in the future. We identified six themes to guide the future development of telehealth in paediatric speech and language therapy services: (1) balanced and tailored services; (2) technology and equipment; (3) information and communication; (4) capacity building; (5) monitoring and evaluation; and (6) leadership and governance. What are the potential or actual clinical implications of this work? UK SLTs believe that speech and language therapy services using telehealth should be reflective, tailored and flexible to meet the requirements and circumstances of the children, young people and families served, as well as the physical and emotional needs of practitioners. SLTs recommend that this service development is clearly communicated to all stakeholders and suggested that those using telehealth should be supported through appropriate training, and ongoing effectiveness should be monitored. Telehealth is here to stay and the APEASE criteria offer a unique opportunity to ensure sustainable models of service delivery; to support co-ordinated leadership at the local, national and international levels and the development of policy and clinical guidance.

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  • Cite Count Icon 82
  • 10.3109/13682822.2010.484849
National survey of speech and language therapy provision for people with Parkinson's disease in the United Kingdom: therapists’ practices
  • Jun 23, 2010
  • International Journal of Language & Communication Disorders
  • Nick Miller + 4 more

Communication and swallowing changes feature prominently in Parkinson's disease. People with Parkinson's disease appear under-represented in speech-language therapy clinics in the United Kingdom. The nature of the speech-language therapy services in the UK to people with Parkinson's disease has not been examined. To ascertain the number of speech-language therapists in the UK who work with people with Parkinson's disease; to establish the nature of contacts in terms of caseloads, referral stages and routes, management practices, assessments and treatments employed; and to reflect on service provision in relation to published guidelines. A questionnaire survey of speech-language therapists. A total of 185 speech-language therapists responded. They were treating a median of three (inter-quartile range (IQR) = 1-6) people with Parkinson's disease with a further median of five (IQR = 1-10) on review. The majority of contacts were for assessment and advice given, especially in later and earlier stages of Parkinson's disease. Typically, respondents offered a median of six sessions (IQR = 6-8) of treatment, each session lasting a median of 45 min (IQR = 45-60), delivered over a median period of 42 days (IQR = 28-56). Speech-language therapists worked in a variety of settings, predominantly hospital. They received referrals principally from medical specialities, from whom the majority had support. Referrals were perceived in general to be later in Parkinson's disease progression than desired. Assessment focused primarily on impairment measures, in contrast to a belief that therapy focus on activity and participation issues. Speech-language therapists were relatively confident in treating people with Parkinson's disease, but 75% wanted more training. Speech-language therapist services for people with Parkinson's disease in the UK are restricted on most dimensions. Management practices often do not match guideline suggestions. Consideration needs to be given to the training for, content of and delivery of speech-language therapy services for people with Parkinson's disease.

  • Research Article
  • Cite Count Icon 21
  • 10.1111/1460-6984.12843
Access, referral, service provision and management of individuals with primary progressive aphasia: A survey of speech-language therapists in Italy.
  • Jan 13, 2023
  • International journal of language & communication disorders
  • Petronilla Battista + 8 more

In Italy, approximately 650 individuals receive a diagnosis of primary progressive aphasia (PPA) every year. Unfortunately, the frequency with which patients are referred to speech-language services is suboptimal, likely due to skepticism regarding the value of speech-language therapy in the context of neurodegeneration. We conducted a virtual survey of speech and language therapists (SLTs) across Italy, to collect information about the assessment, intervention and management of patients with PPA. To ensure that as many SLTs as possible received the survey, the Italian Federation of SLTs (Federazione Logopedisti Italiani, FLI) aided in disseminating the survey. In total, 336 respondents participated in the online survey, 140 of whom had previous experience with PPA patients. Respondents indicated having seen a total of 428 PPA patients in the previous 24 months (three patients on average, range: 0-40). SLTs who reported never working with PPA identified underdiagnoses, low referral rates and the rarity of the clinical syndrome as major reasons for their lack of experience with PPA. SLTs with experience working with PPA indicated that patients may not have accessed services because of service dysfunction and geographical barriers. Respondents reported using informal interviews during assessments and tests developed for post-stroke aphasia, while impairment-based/restitutive interventions were utilised most often. Findings may serve to inform health policy organisations regarding the current shortcomings and needed recommendations for improving the care of individuals with PPA in Italy. Improving awareness of the utility of rehabilitation among SLTs and other clinical service providers may serve to facilitate access to intervention, which in turn will serve to better support individuals living with PPA. What is already known on the subject Speech and language therapists (SLTs) play a crucial role in the assessment, diagnosis and treatment of people with primary progressive aphasia (PPA). However, the frequency with which individuals with PPA are referred for speech and language services is suboptimal due to skepticism regarding the value of speech and language therapy in the context of neurodegeneration, the scarcity of SLTs with expertise in the treatment of PPA and the lack of awareness of the SLT role amongst referrers. What this paper adds to existing knowledge In recognition of the lack of published information on the provision of speech and language therapy services and clinicians' approaches to the assessment and treatment of individuals with PPA in Italy, we conducted an online survey to evaluate the current referral patterns for speech and language therapy services and to examine the current barriers to access these services for individuals with PPA in Italy. What are the potential or actual clinical implications of this work? The data presented here support that SLTs view treatment as useful for individuals with PPA and other professional figures and may serve to improve access to intervention, which in turn will serve to better support individuals living with PPA. The results highlight the need to inform health policy organisations about current gaps and aid in developing recommendations for improving the care of individuals with PPA, in order to understand how SLTs can best support individuals with PPA and their families.

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  • Cite Count Icon 70
  • 10.1111/1460-6984.12544
Aerosol generating procedures, dysphagia assessment and COVID-19: A rapid review.
  • Jun 1, 2020
  • International Journal of Language & Communication Disorders
  • Lee Bolton + 3 more

Aerosol generating procedures, dysphagia assessment and COVID-19: A rapid review.

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  • Cite Count Icon 13
  • 10.1080/02687038.2019.1697865
“Guiding them to take responsibility”: exploring UK speech and language therapists’ views of supporting self-management of aphasia
  • Dec 8, 2019
  • Aphasiology
  • Faye Wray + 2 more

ABSTRACTBackground: Self-management approaches are increasingly recommended after stroke with the aim of supporting longer-term adaptation, adjustment and condition management. Stroke survivors with aphasia (SSWA) have particularly poor longer-term outcomes; however, the suitability of self-management for SSWA is unclear. Speech and language therapists (SLTs) play a key role in the provision of care for this group of stroke survivors; however, UK SLTs views of self-management have not been explored.Aims: To explore UK SLTs views of “self-management” as an approach in stroke rehabilitation including its application in practice with SSWA.Methods & Procedures: In depth, semi-structured qualitative interviews were conducted with SLTs from five NHS speech and language therapy services. Interview data were analysed using thematic analysis.Outcomes & Results: Eighteen SLTs participated in interviews. Many SLTs were not familiar with the term “self-management”. However, SLTs were positive about the connotations of this term which aligned closely with the values they held about their role and the desired outcomes of rehabilitation. SLTs described multiple aspects of their existing practice which they associated with enabling “self-management” (e.g., self-directed practice of therapy tasks, encouraging SSWA to take responsibility for their own rehabilitation, involving family members in therapy). However, some SLTs identified difficulties involving SSWA as active participants in the rehabilitation process and in facilitating “readiness” to take responsibility for managing in the longer-term. Other barriers to enabling self-management were identified including limited session time for speech and language therapy in the community setting, difficulties involving family members in rehabilitation and a lack of access to other services to support self-management (including specialist psychological support).Conclusions: Making the transition to longer-term adaptation, adjustment and condition management is a complex and challenging task which is likely to require tailored support for many SSWA and their families. Supported self-management may help to facilitate this process; however, SLTs require a structured and clearly defined approach and training to assist implementation in practice. Organisational “buy-in” and support for self-management as a therapeutic approach within speech and language rehabilitation will also be required for successful implementation.

  • Research Article
  • 10.1111/1460-6984.70112
'Why Aren't We Fighting Our Case?': Speech and Language Therapists’ Perspectives on Intervention for Preschool Children With Oral Comprehension Difficulties
  • Jan 1, 2025
  • International Journal of Language & Communication Disorders
  • Katherine Shobbrook + 4 more

ABSTRACTBackgroundOral comprehension difficulties are prevalent amongst preschool children with language needs and are related to academic, social and emotional outcomes. Speech and language therapists (SLTs) frequently deliver comprehension intervention to preschool children, but the influences on their clinical decisions are unknown. Understanding these influences and how chosen interventions align with models of evidence‐based practice (EBP), particularly in an area where research evidence is sparse, is crucial to developing effective intervention and supporting the implementation of research to practice.AimsTo investigate SLTs’ perspectives on the delivery of intervention to preschool children with oral comprehension difficulties and to examine these in the context of models of EBP.Methods and ProceduresSemi‐structured interviewing gathered the perspectives of 14 UK‐based SLTs, representing a range of years of experience, work settings and employment models (NHS and independent). Data were analysed using reflexive thematic analysis.Outcomes and ResultsThe overarching theme ‘Flexibility and Constraint’ described a complex and challenging process whereby SLTs respond to sometimes conflicting influences from external drivers, the needs of the child and adults around them, perspectives on who has responsibility for effecting change, and their own perceptions of clinical autonomy.Conclusions and ImplicationsSLTs’ practice aligns with components of EBP, but the need to be flexible and responsive to individual circumstances is frequently in conflict with constraints affecting the ability to deliver individualised intervention. Implications include how individual SLTs and speech and language therapy services promote the ways in which they are evidence‐based practitioners and advocate for their specialist role in supporting preschool children with oral comprehension difficulties.WHAT THIS PAPER ADDSWhat is already known on this subjectModels of EBP emphasise the considered application of research, patient preferences and clinician‐related factors. This process can be a challenge where few research studies reflect the wide variety of approaches used by SLTs, and contextual factors such as organisational culture and funding may take precedence in decision‐making.What this paper adds to existing knowledgeThis study describes a very wide variety of practices, with some elements aligning with the principles of EBP and others deviating from them. The lack of time and resources is a common constraint that affects the ability to deliver individualised intervention and therapy which reflects up‐to‐date research in this area.What are the potential or actual clinical implications of this work?Perspectives on clinical autonomy and the need to advocate for the specialist role of the SLT have far‐reaching implications. These include how therapy for individual children with oral comprehension difficulties is planned and delivered, how speech and language therapy services are structured, and how the profession as a whole advocates for its role with preschool children experiencing comprehension difficulties.

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  • Cite Count Icon 46
  • 10.1186/s12913-019-4051-z
Engaging multiple stakeholders to improve speech and language therapy services in schools: an appreciative inquiry-based study
  • Apr 15, 2019
  • BMC Health Services Research
  • A L Gallagher + 3 more

BackgroundEffective collaboration between speech and language therapists (SLTs) and teachers is essential in meeting the needs of children with developmental language disorders in school, but it is difficult to achieve. Currently, many children receive inadequate speech and language therapy services and/or support in school.The aim of this study was to engage key stakeholders (SLTs, teachers, parents and children with DLD) in the co-design of their ideal speech and language therapy service and support in school. The study was undertaken in order to inform the development of a conceptual model to guide collaborative practice when working with this population.MethodsA qualitative study involving a diverse range of key stakeholders and using appreciative inquiry. This is a method which enables those involved to construct their ‘ideal’ about a topic of interest. Recruitment was carried out using purposive sampling. We conducted focus groups with practitioners (SLTs and teachers) and parents as well as semi-structured interviews with children who have DLD using ‘draw and tell’ techniques. A total of five focus groups and nine interviews were conducted with participants (n = 27).ResultsThe children described their ideal supports as those which enabled them to connect, contribute and achieve. They describe ways in which environmental barriers in school needed to be addressed to allow them to do so. The professionals primarily described ways in which the language skills of the child could be improved. Both parents and practitioner groups described the importance of strengthening networks between service providers and service users. They also highlighted the need to promote a collaborative culture if stakeholders are to work effectively together across sectors.ConclusionsThere were differences in perspectives about the ways in which speech and language therapy services and supports could be improved, demonstrating the importance of engaging a diverse group of stakeholders. Of note were the unique insights the children brought about the barriers they faced as a result of their difficulties. Based on our findings we propose that children should be given influence in decisions about the supports that they receive in school. Implications for policy, research and practice are discussed.

  • Research Article
  • 10.70438/dujl/1019/0007
Speech and Language Therapy for Post-Surgical Cleft Palate Children
  • Jan 1, 2018
  • The Dhaka University Journal of Linguistics
  • Md Jahangir Alam

Introduction: Cleft lip and palate is one of the major public health concerns in Bangladesh, where 3.9 out of every 1000 newborn babies born with a cleft lip and/or palate, making it one of the most common birth defects in Bangladesh (Ghani, Mannan, Sen, Uzzaman, and Harrison, 2006). Cleft Palate (CP) care in Bangladesh is directed by lack of a coordinated multidisciplinary (MDT) managementwhere speech and language therapists can play an important role. There is no study conducted in Bangladesh on speech difficulties after CP surgery and the necessity of speech and language therapy. The aim of this study was to identify the common speech difficulties of post-surgical cleft palate Bangla speaking children and the importance of speech and language therapy services. Methods and Procedures: 25 children with post-surgical CP and 4 plastic surgeons (currently conducting cleft surgeries) were selected as participants using nonrandom purposive sampling procedure. A mixed methods research design was used in the study where the data was generated through assessing the children’s post-operative CP speech and semi structured face-to-face interviews. Data gathered from the assessment was analysed using descriptive statistics. The interviews were analysed thematically following content analysis. Results: Common speech difficulties in post palatal surgery were hyper nasality, dentalization, palatalization, backing, glottal stop, misarticulation of sounds, omission of sounds, velopharyngeal incompetence. Among the 25 participants, 14 (56%) participants were in high priority for speech therapy, 4 (16%) participants were in low priority, and for 7 (28%) participants speech therapy was not necessary. The qualitative analysis revealed that speech difficulties are common for children with post-surgical CP and speech and language therapists have a significant role to play in CP care team after the palate fixation.

  • Research Article
  • Cite Count Icon 1
  • 10.3399/bjgp23x733701
Dementia and ethnicity - partnering with community organisations to co-produce research priorities and study design exploring access to dementia services for ethnic minority patients.
  • Jul 1, 2023
  • British Journal of General Practice
  • Josephine Reynolds + 2 more

Dementia is a rapidly growing problem projected to rise steepest in ethnic minority communities; nearly 600% over 40 years compared to the UK population. Despite this, patients from ethnic minorities are referred less to memory clinics, diagnosed at more advanced stages, and present more often in crisis. To complete extensive patient and public involvement and engagement (PPIE) work and build academic-community partnerships to prioritise research questions and co-design a study exploring dementia and ethnicity. Collaborative partnerships formed with Shipshape (South Asian), SACMHA (African and Caribbean) and Lai Yin (Chinese) community organisations and PPIE with >80 people. Shipshape Men's Club for elders with memory problems.Consultation meeting with SACMHA staff and home visits to African Caribbean house-bound elders.Deep End Research Alliance Dementia workshop.Carers event co-organised by Shipshape and Lai Yin. Community and patient: no word for dementia in several languages; dementia under-diagnosed and seen by some as unnecessary biomedical/western label and over-medicalisation; families function as single units rather than individuals and younger generations accommodate for memory problems, concealing dementia; and communities prioritise physical health over dementia and their link is under-recognised.Research and health services: dementia services not culturally competent or appropriate; all communities complained about 'parachute' academics; tangible action needed rather than perpetually re-visiting the 'problem'; and acronyms and phrases such as 'hard-to-reach' were unpopular. Lack of consensus on preferred terminology. Participatory action research project using Photovoice qualitative methodology was co-designed with communities. Stakeholders to co-produce complex intervention prototype seeking to improve dementia services for ethnic minority communities.

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  • Cite Count Icon 4
  • 10.1111/1460-6984.13027
`It's not just linguistically, there's much more going on': The experiences and practices of bilingual paediatric speech and language therapists in the UK.
  • Mar 23, 2024
  • International journal of language & communication disorders
  • Mélanie Gréaux + 2 more

Despite the high prevalence of bilingualism in the United Kingdom, few speech and language therapists (SLTs) are bilingual themselves. Most SLT research on bilingualism has generated knowledge to inform service delivery for bilingual clients, but few studies have investigated how being a bilingual SLT influences one's professional experiences and practices. Better understanding the unique positionality of bilingual SLTs can yield critical insights to meaningfully address issues of diversity, inclusion and equity in the profession. To investigate the experiences and practices of bilingual paediatric SLTs in the United Kingdom through the lens of Cultural-Historical Activity Theory-International Classification of Functioning, Disability and Health (CHAT-ICF), a new theoretical framework developed to conceptualise the activities of professionals working in the field of disability. In this qualitative study, 19 bilingual paediatric SLTs practising in the United Kingdom were interviewed individually. Participants were recruited through a snowball sampling strategy, and semi-structured interviews conducted online. The data were analysed using reflexive thematic analysis and following a hybrid inductive-deductive approach to map the results onto the CHAT-ICF framework. Six overarching components of the CHAT-ICF framework hosted the 12 sub-themes identified to capture the experiences and practices of bilingual SLTs: (1) Subject (intersectionality); (2) Tools (language skills, education, clinical resources); (3) Rules (systemic barriers, sense of responsibility); (4) Community (sense of inclusion); (5) Division of labour (parents, colleagues); and (6) Practice (empathy with children, holistic mindset, flexible approaches). The use of the CHAT-ICF theoretical lens revealed two fundamental structural phenomena: (1) the distribution of sub-themes across many components of CHAT-ICF demonstrated that being a bilingual SLT is a multifactorial experience; and (2) the chain reactions between sub-themes illustrated the dynamic nature of bilingual SLTs' experiences which can be harnessed to challenge marginalisation and promote equity in the profession. This is the first qualitative study to date to provide in-depth insights into the experiences and practices of bilingual SLTs in the United Kingdom. These insights can be mobilised to inform the meaningful inclusion of bilingual SLTs in workforce planning efforts and service development. Recommendations include using intersectional lenses, providing cultural and anti-racism awareness training to SLTs, developing more diverse clinical resources and flexible approaches for bilingual families, valuing bilingualism in recruitment processes and increasing accountability at the leadership level. Research giving voice to bilingual SLTs, and other underrepresented demographics in the SLT workforce, can catalyse action to promote a more diverse and inclusive profession in line with the Royal College of Speech and Language Therapists' strategic vision 2022-2027. What is already known on the subject Most research on bilingualism in speech and language therapy is focused on issues related to service provision and delivery for bilingual clients with little consideration for bilingual speech and language therapists' (SLTs) unique positionality. A few survey studies have shown that bilingual SLTs report significantly higher competency and greater confidence when working with clients who speak multiple languages, but there are significant gaps in understanding how bilingualism impacts other aspects of their professional experiences. What this paper adds to existing knowledge This is the first study to provide in-depth insights into the experiences and practices of bilingual SLTs in the United Kingdom. We show that being bilingual profoundly impacts many aspects of their professional experiences, including their clinical identity, skillset, sense of inclusion in the workplace, work relationships and clinical approaches. Bilingual SLTs expressed developing trust relationships with bilingual families and adopting flexible approaches to account for their clients' environmental factors, all of which can contribute to more equitable SLT services. This study also makes a novel contribution by proposing and using the Cultural-Historical Activity Theory-International Classification of Functioning, Disability and Health (CHAT-ICF) framework to conceptualise and investigate SLTs' experiences and practices. What are the potential or actual clinical implications of this work? This study provides evidence-based recommendations to inform progress towards the Royal College of Speech and Language Therapists' strategic vision 2022-2027 and the diversification of the profession. Actions to support bilingual SLTs and diversify the profession include shifting a rigid mindset of linguistic and cultural `competence' to self-growth and awareness, developing more diverse clinical resources and flexible approaches for bilingual families, valuing bilingualism in SLT recruitment processes and career progression and increasing accountability and leadership around issues of diversity in the workplace. The novel CHAT-ICF framework has the potential to be used to support therapists' reflexivity in their practice or structure audits of rehabilitation services. Intersectionality theories and transformative processes can catalyse positive change in clinical services and research around bilingualism.

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  • Research Article
  • Cite Count Icon 29
  • 10.4102/ajod.v7i0.338
Communication rehabilitation in sub-Saharan Africa: The role of speech and language therapists.
  • Apr 12, 2018
  • African Journal of Disability
  • Karen Wylie + 3 more

BackgroundWorkforce factors present a significant barrier to the development of rehabilitation services for people with communication disabilities in sub-Saharan Africa (SSA). Exploring how the work of speech and language therapists (SLTs) in the region is organised and delivered can provide insight into existing services, areas for future workforce development and improved rehabilitation access for people with communication disability.ObjectivesThis paper describes the employment and service provision patterns and work roles of a sample of SLTs in SSA.MethodA broad, purpose-designed, mixed-methods survey was designed to collect data from SLTs living in Anglophone countries of SSA. Descriptive statistics and qualitative content analysis were undertaken. This paper reports on a subset of data from the wider survey.ResultsA description of the employment and work roles of the 33 respondents to the survey and characteristics of their service users is presented. SLTs were commonly employed within private and not-for-profit sectors and frequently worked in temporary jobs. SLTs engaged in a range of work roles, including capacity building and training others. Services were provided by SLTs across age ranges, health conditions and settings, with paediatric, urban services commonly reported. Costs for service users and urban-centred services give indications of barriers to service access.ConclusionKnowledge of the way in which speech and language therapy services are organised and provided has the potential to shape the development of communication disability rehabilitation in SSA. This research has identified a range of issues requiring consideration as the profession develops and grows.

  • Research Article
  • Cite Count Icon 1
  • 10.46827/ejse.v10i4.5391
EXPLORING THERAPY-RELATED CONSTRAINTS IN THE DELIVERY OF SPEECH AND LANGUAGE THERAPY SERVICES TO CHILDREN WITH CEREBRAL PALSY IN KIBERA SLUMS, NAIROBI CITY COUNTY, KENYA
  • May 26, 2024
  • European Journal of Special Education Research
  • Mutuiri Caroline Mwende + 1 more

<p>This study sought to establish therapy-related constraints in delivering Speech and Language Therapy (SLT) services to children with CP in Kibera slums. The study was guided by the four-level model of the healthcare system and adopted a descriptive survey research design. The target population included caregivers of children with CP, speech therapists (in training), occupational therapists, and other healthcare providers offering speech services, a total of 51 participants. Purposive sampling was used to select study participants, and the entire study population served as the sample size. Data was collected through questionnaires for caregivers and interviews with speech therapists (in training), occupational therapists, and other healthcare providers offering speech services. The study ensured validity through professional reviews and a pilot study conducted at a similar institution within the Lang’ata constituency in Nairobi County. Reliability was determined using Cronbach’s Alpha to assess the consistency of research instruments. Qualitative data from interviews were analyzed thematically, while quantitative data from the questionnaires were analyzed using descriptive statistics, including frequency counts, percentages, and tables utilizing SPSS. The study revealed that a significant percentage of caregivers were discontented with the way the therapist treated their children with cerebral palsy, which not only resulted to inconsistent therapy attendance, but also poor cooperation with the speech therapists. In addition, inadequacy of available speech therapists, low quality of services provided, limited speech therapy resources and monetary constraints were cited as obstacles to seeking speech therapy services despite some care centres offering subsidized or free services. The study concluded that addressing these therapy-related constraints is essential to providing effective care and delivery of speech and language therapy services to children with CP. The study recommended that the government should prioritize the recruitment of speech and language therapists in underserved areas, particularly in slum communities and collaborate with NGOs to conduct disability awareness campaigns in Kibra in order to combat stigmatization and ensure that community members are well-informed about the available services for children with CP.</p><p> </p><p><strong> Article visualizations:</strong></p><p><img src="/-counters-/soc/0747/a.php" alt="Hit counter" /></p>

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