How Do Australians' Attitudes to Diagnostic Testing and Screening Risks Relate to Health Literacy, Broader Health Beliefs and Demographic Factors? A Survey Study.

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We investigated Australian adults' attitudes to diagnostic testing and screening risks and the associations of these attitudes with (i) broader healthcare beliefs, (ii) health literacy, (iii) perceived healthiness, and (iv) demographic characteristics. These associations were poorly understood, hindering the development of much-needed communication strategies explaining medical testing risks to lay people. We conducted an online, cross-sectional survey of adults (18+) living across Australia. Adjusted multivariate regression analysis examined predictors of the perceived importance of querying risks when offered diagnostic and screening tests. Bivariate analysis examined test risk perceptions in relation to four clinical scenarios. Most (86% of n = 774) participants believed it important to query risks when offered tests. Greater perceived importance of querying risks was predicted by being female, older, greater perceived healthiness, greater perceived ability to appraise health information, and stronger belief in holistic health. We identified complex relationships between risk perceptions regarding specific tests and perceived importance of querying their risks. Our findings highlight new directions for communication strategies about medical testing risks. They include targeting broader belief systems that influence testing choices, promoting health literacy skills, and relying less on risk-benefit statistics. Our findings also highlight potential communication pitfalls. Our insights matter for improving public health messaging and shared decision-making. They suggest that the norm of providing risk/benefit information might not adequately support individuals in making informed testing choices. It is also important to focus on the ways that individuals think about tests and on fostering their skills and empowerment.

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Health literacy has been shown to play an important role in transitions of care in adult populations, with low health literacy associated with adverse health outcomes. The role of health literacy in the transition from pediatric to adult care has been less well studied. Among adolescents and young adults with spina bifida, high rates of unsuccessful transition have been shown, but how patient health literacy affects transition readiness remains unknown. To determine whether health literacy is associated with transition readiness in adolescents and young adults with spina bifida. This cross-sectional study involved collection of patient-reported questionnaires between June 2019 and March 2020 at a multidisciplinary spina bifida center at a single, free-standing children's hospital. Patient demographic and clinical characteristics were obtained from medical record review. Patients were aged 12 years or older with a diagnosis of spina bifida (myelomeningocele and nonmyelomeningocele) whose primary language was English or Spanish. Data analysis was performed from October 2020 to March 2021. Health literacy as assessed by the Brief Health Literacy Screening Tool. The primary outcome was total Transition Readiness Assessment Questionnaire (TRAQ) score, normalized into units of SD. Nested, multivariable linear regression models assessed the association between health literacy and TRAQ scores. The TRAQ and Brief Health Literacy Screening Tool were completed by 200 individuals (median [range] age, 17.0 [12.0-31.0] years; 104 female participants [52.0%]). Most of the patients were younger than 18 years (110 participants [55.0%]) and White (136 participants [68.0%]) and had myelomeningocele (125 participants [62.5%]). The mean (SD) TRAQ score was 3.3 (1.1). Sixty-six participants (33.0%) reported inadequate health literacy, 60 participants (30.0%) reported marginal health literacy, and 74 participants (37.0%) reported adequate health literacy. In univariable analysis, health literacy, age, type of spina bifida, level of education, self-administration vs completion of the questionnaires with assistance, ambulatory status, and urinary incontinence were associated with total TRAQ score. In all nested, sequentially adjusted, multivariable models, higher health literacy remained a significant, stepwise, independent variable associated with higher TRAQ score. In the fully adjusted model, having adequate compared with inadequate health literacy was associated with an increase in normalized TRAQ score of 0.49 SD (95% CI, 0.19-0.79). Patient-reported transition readiness is associated with health literacy, even after adjustment for education level and other demographic and clinical factors. Developing and implementing health literacy-sensitive care programs during the transition process may improve patient transition readiness.

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ObjectivesAdequate health literacy is important for patients to manage chronic diseases and medications. We examined the association between health literacy and multiple medications in community-dwelling adults aged 50 years and...

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