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History on repeat: Silencing trans-related health information and violating health professionals’ ethical obligations

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Abstract
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The recent spate of anti-transgender bills in the USA has created challenges for transgender and gender-diverse students’ health. While actions to promote conservatism over research-based guidance and ethical commitments to students are not new, the pace and vitriol of recent political changes is concerning. Even in states with strong civil rights protections for LGBTQIA+ people, the pace of anti-transgender legislation and policies being proposed and enacted has increased. In this context of rapid conservative backlash, it may be worth returning to equity-based strategies that focus on health concerns. While some scholars have argued that the political argument for gender-affirming policies, programmes and practices should move beyond health issues, health-based approaches may be tactically useful even if they may seem to imply a return to baseline arguments for respect and the value of diversity. This article begins with a short history of the complications arising when using research-based health information to counter socially conservative political tendencies. In contexts where conservatives have tried to make their personal values the values of their state, conservative policymakers and voters have ignored the rights of non-conservative families to have educational and political institutions also provide support their children. These policymakers have also neglected key findings from education and health research concerning gender-diverse youth. Within this context, health policymakers, professionals, practitioners and educators alike should work together to stand up and support youth.

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BackgroundMaking high-quality health and care information available to members of the general public is crucial to support populations with self-care and improve health outcomes. While attention has been paid to how the public accesses and uses health information generally (including personal records, commercial product information or reviews on healthcare practitioners and organisations) and how practitioners and policy-makers access health research evidence, no overview exists of the way that the public accesses and uses high quality health and care information.PurposeThis scoping review aimed to map research evidence on how the public accesses and uses a specific type of health information, namely health research and information that does not include personal, product and organisational information.MethodsElectronic database searches [CINAHL Plus, MEDLINE, PsycInfo, Social Sciences Full Text, Web of Science and SCOPUS] for English language studies of any research design published between 2010–2022 on the public’s access and use of health research or information (as defined above). Data extraction and analysis was informed by the Joanna Briggs Institute protocol for scoping reviews, and reported in accordance with the PRISMA extension for scoping reviews.ResultsThe search identified 4410 records. Following screening of 234 full text studies, 130 studies were included. One-hundred-and-twenty-nine studies reported on the public’s sources of health-research or information; 56 reported the reasons for accessing health research or information and 14 reported on the use of this research and information. The scoping exercise identified a substantial literature on the broader concept of ‘health information’ but a lack of reporting of the general public’s access to and use of health research. It found that ‘traditional’ sources of information are still relevant alongside newer sources; knowledge of barriers to accessing information focused on personal barriers and on independent searching, while less attention had been paid to barriers to access through other people and settings, people’s lived experiences, and the cultural knowledge required.ConclusionsThe review identified areas where future primary and secondary research would enhance current understanding of how the public accesses and utilises health research or information, and contribute to emerging areas of research.

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